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@solvingms.bsky.social

@solvingms.bsky.social

To fund scientific and/or medical research and to advocate for people with Multiple Sclerosis (MS). #SolvingMS https://www.solvingms.org Research Database https://solvingms.org/research-database

145 Followers  |  140 Following  |  10 Posts  |  Joined: 02.11.2023  |  1.7075

Latest posts by solvingms.bsky.social on Bluesky

LIVE TRAINING - Hip Flexor Strengthening With Coach T
YouTube video by The MS Gym LIVE TRAINING - Hip Flexor Strengthening With Coach T

Yesterday’s micro-live @themsgym.bsky.social

It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!

#neuroplasticity #neurorehab #themsgym

www.youtube.com/watch?v=lAHP...

21.11.2024 15:43 — 👍 5    🔁 1    💬 2    📌 0
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Long COVID and its relationship to MS If intermittent EBV reactivation drives long COVID and MS, it should respond to EBV antiviral strategies. I am aware that many pwMS have started taking antivirals off-label to manage their MS ....

Thank you for hearing us, Dr. Giovanonni. #MS peeps, please encourage Dr. G. To join Bluesky. This will be an interesting follow: #covid #longcovid #antivirals #TAF #vemliidy #valacyclovir #bcelldepletion

“Long Covid and it’s relationship to MS”

gavingiovannoni.substack.com/p/long-covid...

22.11.2024 12:13 — 👍 4    🔁 3    💬 1    📌 1
Objectives, methods, results, conclusion for Clinical & Translational ImmunologyVolume 13, Issue 11 e70015

Objectives, methods, results, conclusion for Clinical & Translational ImmunologyVolume 13, Issue 11 e70015

“Autologous Epstein–Barr virus-specific adoptive T-cell therapy in a patient with lupus nephritis” November 19, 2024

onlinelibrary.wiley.com/doi/full/10....

22.11.2024 16:43 — 👍 0    🔁 1    💬 0    📌 0
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Research Database - Solving MS

Yes! solvingms.org/research-dat...

21.11.2024 13:09 — 👍 1    🔁 0    💬 0    📌 0

Trevor Wicken! He’s the real deal. He’s made such an incredible difference in the lives of MS’ers. And the MS Gym is now on Bluesky! @themsgym.bsky.social @klstenhouse.bsky.social is an admin at The MS Gym and knows and helps a ton. Hit her up!

20.11.2024 23:56 — 👍 4    🔁 0    💬 1    📌 0

Thank you! @brunoamaral.eu is the Bruno Karen is referring to.

19.11.2024 14:36 — 👍 1    🔁 0    💬 0    📌 0

We hope to see her! Having any chronic illness is hard and finding your people is priceless. There are always trolls but it’s great we have a dedicated feed and can block people! Send her our best!

18.11.2024 14:43 — 👍 0    🔁 0    💬 0    📌 0

Follow us for research and look at our followers: many are here for research or share research.

18.11.2024 13:10 — 👍 0    🔁 0    💬 1    📌 0
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A phase 2a open-label clinical trial to determine the effect of famciclovir on EBV activity as measured by EBV shedding in the saliva of patients with multiple sclerosis - PubMed No significant effect of famciclovir on EBV shedding was seen in this small pilot study. Given the low numbers, a small effect of famciclovir cannot be excluded. Salivary EBV shedding in this natalizu...

There is some data that the acyclovir prodrug #valacyclovir (which I take to halt ebv reactivations) is more effective than #guanasineanalogue antivirals.

Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2

pubmed.ncbi.nlm.nih.gov/38131621/

16.11.2024 17:09 — 👍 2    🔁 2    💬 1    📌 0

Temperature intolerance/changes in barometric pressure are a result of demyelination of the nerves.

18.11.2024 01:20 — 👍 0    🔁 0    💬 0    📌 0
BEHIND-MS: Exploring the Link Between Epstein-Barr Virus and Multiple Sclerosis
YouTube video by EMSP Brussels BEHIND-MS: Exploring the Link Between Epstein-Barr Virus and Multiple Sclerosis

The BEHIND-MS project introduces the project’s objectives and groundbreaking research efforts. This five-year European research initiative is focused on understanding the role of the EBV in the onset and progression of MS. #EBVcausesMS

youtu.be/LvbXvLLsVLw

17.11.2024 03:32 — 👍 8    🔁 2    💬 1    📌 0

This is what this group does! We will be posting very soon!

15.11.2024 22:20 — 👍 2    🔁 0    💬 0    📌 0

@allyann.bsky.social please add #MS

14.11.2024 02:30 — 👍 2    🔁 0    💬 1    📌 0

Thank you!

08.12.2023 19:51 — 👍 0    🔁 0    💬 0    📌 0

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