‘We haven’t learned anything’: Readers despair over UK’s Covid response in 2025 Many of the protections and behaviours that helped us during the pandemic — like staying home when sick, wearing masks, and improving ventilation – have quietly disappeared, say Independent readers

@rthonwesstreeting.bsky.social
‘More like polio’ this article is on point and we have millions with long covid. A dismal vaccine offering, no advice on masking for an airborne virus with serious post infection risks and no lasting immunity, which is why Taiwan are offering 4 vaccines a year!

Can I get an ETA on most media headlines going from “Mysterious malady isn’t all in your head” to the decades-overdue “The neglect & abuse of #pwME is a global health & human rights scandal”?

#GreatestMEdicalScandal #ExposeMENow #MEKills #MillionsMissing #JohnVsJonVsME #ME

Louder for the people in the back: "It has been a public health failure that the public does not realize how much organ damage #COVID infection can cause to things that aren’t your lungs (or throat or nose or taste buds)."

The image below is based on data collected from 80,071 kids and teens:

“Over a third of COVID infections are asymptomatic… “Stay home [or mask up or take a test] if you feel sick” and “here’s a list of common COVID symptoms” are…pieces of advice that…won’t do much to contain or control a virus that is often asymptomatic.”

The Invisible Impact Of COVID-19 On Hypermobility Syndromes And Neurodivergence -Bodies, Brains And Burnout Discover the latest research on hypermobility, post-COVID syndrome, and innovative treatments at our expert-led event. Learn about neuromodulation, early diagnosis, and specialist care to improve pati...

📢 Brain, Body, Burnout
The invisible impact of COVID19 on hypermobility & neurodivergence: how our bodies, brains & burnout are affected.
July 11th Royal Society of Medicine
#Autism #ADHD #EDS #hEDS #HSD #Covid #dysautonomia #gastro #fibro #ChronicFatigue

www.rsm.ac.uk/events/rheum...

How Serious Can It Be? “Myalgic Encephalomyelitis? (ME)?  ’Chronic Fatigue Syndrome’?  How serious can it be?  An illness which makes you mostly rest in bed?  It can’t really be all that bad. A little bit of extra time i…

Our Sunday writing group is trying to find a way of explaining to the outside world what ME is like.

It’s co-hosted by Stuart who I think does a really good job with this well-researched piece.

pillowwriters.wordpress.com/2024/07/08/h...

Thank you so much, this is great. I hope MPs from other parties such as my MP @timrocamp.bsky.social can also support much needed funding for the ME Delivery Plan 🤞🏻

I cried reading this letter to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social. Please, please fund the plan, people with ME/CFS have waited too long already.

A huge thank you to Tessa Munt and the other 71 LibDem MPs for this much-appreciated and much-needed support.

😢

Oh no, that’s such a shame. What a loss to the EDS community 😔

Oh yikes! We’ve not had a problem, added to my son’s diagnoses by our GP.

Dr Paul Brennan - IDCT - Inherited Disorders of Connective Tissue Dr Paul Brennan is a Consultant clinical geneticist working in the Northern Genetics Service with interests in cardiovascular genetics and cancer genetics

Dr Brennan diagnosed my son via a remote appointment and would’ve done testing if needed. He was great, one of the best Drs we’ve seen.

idct.co.uk/dr-paul-bren...

Earlier diagnosis and better care needed for ME and Long COVID patients, report finds Significant improvement in the diagnosis and care of myalgic encephalomyelitis (ME) and Long COVID is urgently needed across NHS and social care services, according to a new report. The University of ...

University of Exeter:'Earlier diagnosis and better care needed for ME and Long COVID patients, report finds'

'Significant improvement in the diagnosis and care of myalgic encephalomyelitis (ME) and Long COVID is urgently needed across NHS...'

news.exeter.ac.uk/faculty-of-h...

'… often the medical practitioner will not know about physical symptoms related to neurodivergence and diagnose "anxiety". The student is then either marked as engaging in Emotional Based School Avoidance or given unauthorised absence coding.' #SEND

THIS IS HUGE! Researchers at Scripps Research Institute have developed a groundbreaking UNIVERSAL coronavirus vaccine that triggers STONG immune responses AND shows promise in neutralizing MULTIPLE coronaviruses, including those responsible for causing COVID-19, MERS, AND even the “common cold.” 🧪🧵⬇️

That works, thank you ☺️

Hi, link isn’t working for the blog.

Absolutely shocking to see a Labour secretary of state stand at the despatch box and proudly announce slashing support for some of those who need it most - including removing the UC health top-up for young people, as if young disabled people don't exist?! #DisabilityBenefits

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

This cause is close to my heart - please sign: you.38degrees.org.uk/petitions/in...

Millions of lives on hold around the world with this dreadful illness. Decades of neglect. The UK has the opportunity to be a leader.
Please #FundThePlan

Cardiologists seeing more cases of POTS since the start of the COVID-19 Pandemic POTS is a condition that disrupts the body's ability to regulate blood flow while changing positions. Dr. Charles Hong says they have seen a sharp rise since COVID.

Cardiologists seeing more cases of POTS since the start of the COVID-19 Pandemic.

"Dr Hong said the condition can be debilitating, with symptoms like dizziness, fainting, brain fog, shortness of breath and even gastrointestinal issues."

Thank you for all that you do 😊

🆕 Full Article in the Times by Sean O'Neill #MECFS

If we can’t learn from errors, families relive tragedy for nothing

The inquest into my daughter’s death showed me that the system is almost entirely broken

archive.ph/2025.02.23-1...

James shared his story of living with #MECFS in the Sunday Times today.

There’s now a fundraiser set up by his girlfriend to raise money for @actionforme.bsky.social

Please share if you can! Article below -

www.printfriendly.com/print?url=ht...

How to support your child with Long Covid : the importance of the family Here is the first in-depth analysis on how to support your child with long covid, not from a pharmacological perspective.

How to support your child with Long Covid : the importance of the family

danilobuonsenso.substack.com/p/how-to-sup...

If you find it useful, please like and share it wifely! free access.

Next episode will be on role of schools and teachers

• PEM • Cognitive Dysfunction • Lightheadeness • Extreme Fatigue 5:22/8:11 from PEM to cognitive dysfunction, Sci SHOW Exercise Actually Makes Chronic Fatigue Syndrome Worse Sei SciShow Join 8.13M subscribers Subscribe 103,368 views 20 Feb 2025 #SciShow #science #education 8K Share ...

Sympathetic 8-minute video on popular YouTube channel, SciShow, already has over 100,000 views in less than 24 hours.

"Exercise Actually Makes Chronic Fatigue Syndrome Worse"

www.youtube.com/watch?v=wxSw...

#MEcfs #CFS

Plan to help ME sufferers will not include extra funding Charities and MPs ‘incredibly disappointed’ at government’s decision, which they say will make it harder to support patients and find new treatments

‘No extra cash for new services or research’.
#ME #DeliveryPlan
The Times today.

www.thetimes.com/article/0612...

Plan to help ME sufferers has been delayed for too long Ministers must show that care and research for these neglected patients is a priority

Plan to help #ME sufferers has been delayed for too long 33months and 5 Health Secretaries

www.thetimes.com/article/ff2a...

Renewed petition to SCRAP SEND Safety Valve and write off council High Needs debt - Special Needs Jungle Rachel Filmer has relaunched her petition to scrap the SEND safety Valve scheme and forgive LA high needs debts to stop more harm

Are you signing the petition to SCRAP #SEND Safety Valve and write off council High Needs debt? www.specialneedsjungle.com/petition-scr...

Which of these people has Covid and is spreading it? We don't know. Even they don't know. 60% of those with Covid are asymptomatic, they don't know they have it or have yet to feel the symptoms. That's why everyone should be wearing a mask, even if they feel fine. Mask Up

Most people still unaware of asymptomatic spread and why wearing a mask even when feeling ok is what everyone should be doing.