#ICANCME2025 Great discussion On Addressing Ableism/Internalized Ableism in Research and Clinical Settings by Dr. Daisy Fung. Very interesting all the areas judgement and abelism can be seen in.
#ICANCME2025 Great discussion On Addressing Ableism/Internalized Ableism in Research and Clinical Settings by Dr. Daisy Fung. Very interesting all the areas judgement and abelism can be seen in.
06.11.2025 20:45 β π 1 π 0 π¬ 0 π 0
#ICANCME2025 Executive function is the CEO of the brain.
#ICANCME2025 Executive function is the CEO of the brain.
06.11.2025 18:38 β π 1 π 0 π¬ 0 π 0
What a great presentation by Todd Davenport
What a great presentation by Todd Davenport
06.11.2025 18:33 β π 1 π 0 π¬ 0 π 0
ICANCME2025 if Post Exertional Malaise (PEM) is a part of ME than why isn't research studies designed with that in mind?
#ICANCME2025 if Post Exertional Malaise (PEM) is a part of ME than why isn't research studies designed with that in mind?
06.11.2025 18:29 β π 2 π 0 π¬ 0 π 0
Graph showing ME is the most underfunded illness in underfunded illnesses
#ICANCME2025 Check this outπ
β‘οΈME is one of the most underfunded of underfunded diseases. WOW that is so wrong.
06.11.2025 18:28 β π 1 π 1 π¬ 0 π 0
Advertising for 2025 ME Conference
#ICANCME2025 Day # 3 has kicked off and I am expecting another fantastic day.
06.11.2025 18:27 β π 1 π 0 π¬ 0 π 0
Please check out my new "Powerful Women (plus me)" Starter Pack #2. go.bsky.app/F9RVWsx
(Technical problems arose in Starter Pack #1. I've tried to ensure everyone who had been in that pack now is either in Starter Pack #1 or Starter Pack #2. If I missed you, please forgive me and DM so I can fix.)
06.11.2025 17:38 β π 121 π 60 π¬ 33 π 5
Agenda for #ICANCME2025 Conference
#ICANCME2025 Wow what an agenda for Day # 3
06.11.2025 18:26 β π 1 π 0 π¬ 0 π 0
HAPPENING TODAY
Join Fibromyalgia Association Canada for our Annual General Meeting on May 26th! π (In English- closed captions for French provided.)
Members only fibrocanada.ca
π
Date: May 26, 2025
π Time: 2:30 pm
π Location: sign up here fibrocanada.ca/en/agm-2025/
26.05.2025 11:29 β π 2 π 1 π¬ 0 π 0
π£ You're invited!
Join Fibromyalgia Association Canada for our Annual General Meeting π (English w/ French captions)
ποΈ May 26, 2025
π 2:30 PM
π Sign up: fibrocanada.ca/en/agm-2025/
Letβs keep working together to raise awareness, share knowledge & build community
#AGM #FAC #Togetherwearestronger
23.04.2025 15:33 β π 1 π 1 π¬ 0 π 0
Thank you Cape Breton Regional Municipality for lighting in purple May 12th for Fibromyalgia Awareness Day. This means so much to those of us with #fibromyalgia.
Fibromyalgia Association Canada (#FAC) appreciates your support!
@cbrmgov #light4fibro #AwarenessMatters #communitysupport
07.05.2025 00:30 β π 3 π 1 π¬ 0 π 0
Breathing for both of us - Healthy Debate
I walked into the obstetrics unit β 36 weeks pregnant, out of breath and scared. I had been here before, but this time was different.
Breathing for both of us. For mothers like me, living with chronic illness and #disability, #pregnancy isnβt just a journey β itβs a high-stakes balancing act made more perilous by the lack of research, by @proulxlaurie.bsky.social healthydebate.ca/2025/05/topi... via @healthydebate.bsky.social
09.05.2025 14:08 β π 21 π 9 π¬ 1 π 1
Thrilled to join fellow patient partners in this upcoming #webinar on growing your influence in patient engagement!
π May 12, 2026
β° 12 PM PDT
Letβs keep pushing the boundaries of #PatientPartnership
The work is far from finished
Sign up lnkd.in/eiRyWdFR
#PatientVoice #PXP @pxphub.bsky.social
11.05.2025 00:10 β π 3 π 1 π¬ 0 π 1
Can alternative treatments help fibromyalgia and have you tried any?
A study looks at how acupuncture, massage & other therapies may reduce pain, improve sleep & boost well-being. pubmed.ncbi.nlm.nih.gov/38268732/
Check out #FACβs Research Committee's Lay Summary fibrocanada.ca/.../how-effe...
02.04.2025 19:25 β π 0 π 0 π¬ 0 π 0
Fibromyalgia Association Canada (FAC) wants your input!
POLL CLOSING SOON!!
Every month, weβll post a one-question pollβyour voice matters! Participate here:
fibrocanada.ca/en/informal-...
(Please save your responses for the poll itself!)
#FAC #ResearchMatters #PollsMatter #survey
29.03.2025 12:31 β π 1 π 1 π¬ 0 π 0
Cancer patient advocate. Canadian. Interested in patient involvement in cancer research, evidence-based advocacy, shared decision making globally. #cansky #oncsky #kcsm #kidneycancer #shareddecisionmaking
AndrΓ© Picard is the health columnist at The Globe and Mail and the author of six bestselling books. I share stories and opinion pieces from a broad range of publications. Shares are not endorsements.
All about patient engagement, especially in pharmaceutical policy & research. Living with juvenile rheumatoid arthritis since I was 14. Writer, cat lover, and classical music nerd π§
Executive Director at the LEAD Coalition (a diverse, national coalition working to overcome #Alzheimers disease and other forms of #dementia). @umichlaw.bsky.social and WashU alum.
You may have known me as @LEAD_Coalition on the bird site
π³οΈβππ΅π°π¨π¦
π£οΈ chronic illness and mental health awareness
βΏοΈ AS | FM | PMDD | dermatillomania | & more
βπ½ writer and editor
π₯ patient research partner
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
CANadian Consortium of Clinical Trial TRAINing platform β’ Better Prepared. Better Care. Together β’ Research Institute of the McGill University Health Centre (RI-MUHC) Montreal, QC β’ https://wecantrain.ca
Retired nurse and healthcare executive; now a patient partner in research. Live life with #spinalstenosis #arthritis #fibromyalgia #DDD #IBS #endometriosis βTurning negatives into positives dailyβ π¨π¦
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Fighter Canadian #Resister #ElbowsUp #ClimateActivist
soisfibromyalgiareal.com
Our official account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide
RAF Veteran
Fibro Warrior
Everyone is welcome here
Mental Health & Suicide Awareness Matters
I Support Small Businesses
Please be kind and love yourself
Your life is so special π
Please Follow Your Dreams
Sorry, No DMS or Cripto
Mwaaah xxxxxxxxxxxx
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate β’ Chair of #MedicalEducation Group β’ #PwME #Disability
(Unceded) #Canada
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official Bluesky account (check usernameπ)
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