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International Long Covid Awareness

@lcawarenessint.bsky.social

*Raising awareness about Long Covid with the Long Covid community International Long Covid Awareness Day=March 15th International Long Covid Awareness Month=March #LongCovid #LongCovidKids #LongCovidAwarenessDay

203 Followers  |  44 Following  |  58 Posts  |  Joined: 04.02.2025  |  2.198

Latest posts by lcawarenessint.bsky.social on Bluesky

-Mask up. Listen to patients. Care. Run tests. Treat symptoms. Monitor. Offer telehealth when possible.
-Care must be accessible!
-Medicines/treatments must be made accessible!
#LongCovidAwareness
@RobertKennedyJr @HHSGov
@AmerMedicalAssn @AAMCtoday

16.07.2025 00:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Mandatory Long Covid training for primary care providers, pulmonologists, cardiologists, neurologists, gastroenterologists, therapists (possibly other specialists, especially if in hospital setting) *Encourage them to subscribe to & read journals like The Lancet, JAMA, & BMJ.

16.07.2025 00:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Develop Evidence-Based Clinical Guidelines/Long Covid standard of care (global)
-Medical schools need to provide proper Long Covid education.
-CME (Continuing Medical Education) should offer updated Long Covid education (accredited online courses, webinars, & workshops).

16.07.2025 00:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

➑️Long Covid clinics/teams could be helpful to patients if they have the proper Long Covid education/knowledge.

16.07.2025 00:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Many patients feel that Long Covid clinics have not been helpful over the years.
In order for Long Covid patients to receive real care doctors/specialists must have knowledge about Long Covid.
Whether we have Long Covid clinics or not--HCWs should be educated about Long Covid.

16.07.2025 00:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Patients are concerned about the future of WashU’s long COVID clinic Long COVID patients who visit a Wash U clinic say they’re being directed to another center after the clinic’s medical director has moved on.

β€œCOVID is still making people sick. We have people who just joined the group a few months ago … there's people who are just getting very, very, very sick for the first time, and I don't want them to have fewer resources.”
#LongCovid
#LongCovidAwareness

16.07.2025 00:59 β€” πŸ‘ 8    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
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In Plain Breath What Dirty Air Is Doing To All Of Us

In Plain Breath--
What Dirty Air Is Doing To All Of Us
@AdamVanBavel

substack.com/inbox/post/1...
#LongCovid
#LongCovidAwareness
@usedgov
@aacu
@CDCgov
@WHO @UN
@realDonaldTrump @RobertKennedyJr

16.06.2025 02:30 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

International Long Covid Awareness poster 
Colors: Teal, black, gray
Font reads:
Millions suffering. 
Infections & reinfections.
No mitigations.
No cure.
CURE LONG COVID NOW

4 icons of medications & International Long Covid Awareness ribbon

International Long Covid Awareness poster Colors: Teal, black, gray Font reads: Millions suffering. Infections & reinfections. No mitigations. No cure. CURE LONG COVID NOW 4 icons of medications & International Long Covid Awareness ribbon

Healthcare workersβ€”including therapists & clinical trial teamsβ€”
Long Covid patients need you!
Mask up. Listen. Care. Test. Treat. Monitor. Offer telehealth & remote clinical trials when possible. Patients are counting on you!#LongCovidAwareness #CureLongCovidNow #LongCovid

16.05.2025 05:43 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
alt text:
International Long Covid Awareness poster by Hazie Thompson
Colors: Teal, black, gray
Font reads:
Millions suffering. 
Infections & reinfections.
No mitigations.
No cure.
CURE LONG COVID NOW

4 icons of medications & International Long Covid Awareness ribbon

alt text: International Long Covid Awareness poster by Hazie Thompson Colors: Teal, black, gray Font reads: Millions suffering. Infections & reinfections. No mitigations. No cure. CURE LONG COVID NOW 4 icons of medications & International Long Covid Awareness ribbon

Cuts to public health funding, Long Covid clinics closing, & too many other steps backward while
hundreds of millions are being impacted.
Too many people are trying to survive this misery.
Governments, we need you to start taking real action to move forward.
#LongCovidAwareness

15.04.2025 23:11 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
As we wrap up another Long Covid Awareness Month, we want to express our heartfelt gratitude to all those with Long Covid, advocates, organizations, allies, and voices who came together to raise awareness worldwide. Your efforts are driving the continuing push for change and highlighting the urgent need for action for everyone impacted by Long Covid. The road is rough and it doesn’t stop hereβ€” we’ll all keep raising awareness every day, whether it’s online, at medical appointments, in emails to government officials, in conversations with friends and family, or in any way we can. Because we know COVID doesn’t discriminate, & anyone is at risk of developing Long Covid.
International Long Covid Awareness ribbon in teal, gray, & black
The three colors in the ribbon represent:
past present and future of Long Covid
 
Gray: Loss and Grief
Teal: Hope and Support
Black: Loneliness and Isolation

As we wrap up another Long Covid Awareness Month, we want to express our heartfelt gratitude to all those with Long Covid, advocates, organizations, allies, and voices who came together to raise awareness worldwide. Your efforts are driving the continuing push for change and highlighting the urgent need for action for everyone impacted by Long Covid. The road is rough and it doesn’t stop hereβ€” we’ll all keep raising awareness every day, whether it’s online, at medical appointments, in emails to government officials, in conversations with friends and family, or in any way we can. Because we know COVID doesn’t discriminate, & anyone is at risk of developing Long Covid. International Long Covid Awareness ribbon in teal, gray, & black The three colors in the ribbon represent: past present and future of Long Covid Gray: Loss and Grief Teal: Hope and Support Black: Loneliness and Isolation

#CureLongCovidNow #LongCovidMakesUsOne
#LongCovidAwarenessMonth
#LongCovidAwarenessDay
#LongCovid #ILCAD2025

01.04.2025 03:31 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
The image contains a handwritten message on a beige or light brown background. The text is written in different colors, including blue and green. It reads:

**"I THINK OF GRIEF FOR MY OLD LIFE.
I keep getting clots on my lungs despite blood thinners, I'm exhausted, I have POTS and migraines. The symptoms are relentless.

#LongCOVIDAHP

Helen"**

The image contains a handwritten message on a beige or light brown background. The text is written in different colors, including blue and green. It reads: **"I THINK OF GRIEF FOR MY OLD LIFE. I keep getting clots on my lungs despite blood thinners, I'm exhausted, I have POTS and migraines. The symptoms are relentless. #LongCOVIDAHP Helen"**

Such a moving start to @longcovidsupport.bsky.social community strategy launch event.

I'd like to thank the kind person who made my piece for the banner as I've just been too unwell and had too much going on.

Thank you, you're a ⭐️🫢

#LongCovid
#LongCovidAwarenessDay
#LongCovidAwareness

15.03.2025 14:26 β€” πŸ‘ 15    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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All the events were a success #quebeccity #vancouver #toronto a huge thank you to everyone that was involved. Many pictures and videos to come. A million thank you to everyone.
#CureLongCovidNow #LongCovidMakesUsOne #ILCAD2025 #LongCovidAwareness
#LongCovidAwarenessDay

15.03.2025 22:10 β€” πŸ‘ 18    πŸ” 5    πŸ’¬ 2    πŸ“Œ 0
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#MyLongCovidRock
#LCKRocks
#LongCovidAwareness

#Windsor #WindsorCastle

16.03.2025 10:40 β€” πŸ‘ 24    πŸ” 11    πŸ’¬ 0    πŸ“Œ 0
Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids Long Covid & Me | Understanding Long Covid In Children And Young People

NEW

Long Covid and Me: Understanding Long Covid in Children.

In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.

#LCandME #LongCovidKids #LongCovidAwareness

www.youtube.com/watch?v=e0U7...

15.03.2025 08:40 β€” πŸ‘ 37    πŸ” 25    πŸ’¬ 2    πŸ“Œ 2
Post image

All the events were amazing and a success. Please send it to our Instagram .

Thank you all

www.instagram.com/long_covid_c...

16.03.2025 22:30 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Just some of the pictures of landmarks that got lit up around the world for #LongCovidAwerenessDay . From #canada to #china by way of #florida and #Scotland the whole world lit up. Will post more as we get them Please feel free to use our pics, share, tag....we made this for the community

17.03.2025 21:07 β€” πŸ‘ 21    πŸ” 10    πŸ’¬ 1    πŸ“Œ 0
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Pictures of the #world events. From #germanyπŸ‡©πŸ‡ͺ #china #usa #europe #canada and every where in between .Will post more as we receive them. Thank you so much everyone. Stronger together. Feel free to use,tag,share or anything with our pics. We made them for the community

18.03.2025 13:46 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

P.S.A. if you share anything from our socials, no need to tag us. Although we appreciate it very much, we don't do the work for recognition. We do it to help people by providing science based information. If you want to tell your followers to come follow us on the other hand, that would be awesome.

18.03.2025 18:46 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year. - The Sick Times March 15, 2025 marks the third annual observance of Long COVID Awareness Day. Efforts organized around the day educate the public on Long COVID, and put pressure on governments, policymakers, public h...

The Sick Times: 'Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year.'

'March 15, 2025 marks the third annual observance of Long COVID Awareness Day'

thesicktimes.org/2025/03/14/o...

14.03.2025 22:10 β€” πŸ‘ 64    πŸ” 28    πŸ’¬ 1    πŸ“Œ 0
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Pictures of the #vancouver #quebeccity #toronto events. Will post more as we receive them. Thank you so much everyone. Stronger together. Feel free to use,tag,share or anything with our pics. We made them for the community
#CureLongCovidNow #LongCovidMakesUsOne #ILCAD2025 #LongCovidAwareness

18.03.2025 13:30 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Preview
Confessions of a Covid Long-Hauler Confessions of a Covid Long-Hauler by: Nita Jain April 7th, 2020 is a day which will forever live in infamy in my memory. It all began inconspicuously enough in early April. After taking a solitary stroll one afternoon, I developed a sore throat, joint pain in my knees, and weakness in my upper body. For […]

"Confessions of a Covid Long-Hauler"
#LongCovidAwarenessMonth #curelongcovidnow
longcovidland.com/confessions-...

19.03.2025 12:31 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
Video thumbnail

🚨 Mythbusting #LongCovid with Dr Amir Khan🚨

Long Covid is real. It’s serious. And it’s affecting millions.

On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.

Watch, learn, and shareβ€”because the more we talk about Long Covid, the harder it is to ignore.

15.03.2025 09:12 β€” πŸ‘ 448    πŸ” 294    πŸ’¬ 16    πŸ“Œ 123
Thank you note reads:
Thank you all for being a part of International Long Covid Awareness Day 2025!
Thank you for every effort made to raise awareness & represent for our community!
Take extra care of yourselves! -ILCA
IInternational Long Covid Awareness ribbon teal, gray, black

Thank you note reads: Thank you all for being a part of International Long Covid Awareness Day 2025! Thank you for every effort made to raise awareness & represent for our community! Take extra care of yourselves! -ILCA IInternational Long Covid Awareness ribbon teal, gray, black

THANK YOU!!
πŸ©΅πŸ©ΆπŸ–€

#CureLongCovidNowΒ 
#LongCovidMakesUsOne
#ILCAD2025
#LongCovidAwarenessDay

16.03.2025 09:15 β€” πŸ‘ 12    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

-Post as soon as you can--but anytime today is okay!
-Post on all platforms

Post this info with your fabric pieces:

-Number of days sick
-Country
-Use one of these hashtags:

#CureLongCovidNow #LongCovidMakesUsOne #ILCAD2025 #LongCovidAwarenessDay

15.03.2025 14:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Screenshot of x account post:
Pieces of teal, gray, and black fabric
Print on fabric pieces read:
COVID DAMAGED MY EYES
CURE LONG COVID
COVID CAN TRIGGER T1D
LONG COVID KILLS

Screenshot of x account post: Pieces of teal, gray, and black fabric Print on fabric pieces read: COVID DAMAGED MY EYES CURE LONG COVID COVID CAN TRIGGER T1D LONG COVID KILLS

TODAY!

Your fabric doesn't have to be fancy.. It can be written on a rag, an old tshirt, or a piece of a paper bag. All that matters is that you participate if you can, to represent for all of us.
You may post you holding the fabric or just the piece of fabric.
#LongCovidAwarenessDay #ILCAD2025

15.03.2025 14:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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A huge shout-out to every person and organization around the world working together for covid awareness. A huge THANK YOU!! I'll try to tag every in the post,if we forget people or organizations we apologize in advance. If there's anyone we've missed please tag them and put their logo in the tread.

15.03.2025 03:22 β€” πŸ‘ 11    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0
Light fixture shining a teal light for International Long Covid Awareness

Light fixture shining a teal light for International Long Covid Awareness

Reflecting on 5yrs of Long Covid: Those who have lost their lives to Long Covid, the suffering of those still sick, & all loss in this pandemic
We mourn, we remember, we continue to fight for our lives & for people's health around the world
#LongCovidMakesUsOne
#CureLongCovidNow

15.03.2025 05:59 β€” πŸ‘ 21    πŸ” 12    πŸ’¬ 0    πŸ“Œ 1

Today would have been my mum’s birthday instead she’s gone after a covid induced stroke acquired from my father due an outbreak in his nursing home. They died, last year, within days of each other. Masks in healthcare settings would have saved both their lives.
#CovidStillKills

13.03.2025 00:52 β€” πŸ‘ 510    πŸ” 111    πŸ’¬ 55    πŸ“Œ 1

Caring for a child with long Covid means navigating medical uncertainty, school struggles, and daily exhaustion. Caregivers fight for answers, balance work and home, and provide endless support. They need understanding, resources, and real solutions. #LongCovidFamilies

13.03.2025 10:34 β€” πŸ‘ 20    πŸ” 8    πŸ’¬ 0    πŸ“Œ 0
Green background with nine large white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Coming Together.

Green background with nine large white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Coming Together.

White background with two large green half circles at the left and right edges, meeting in the centre. In the bottom left corner is a black Long Covid Support logo. In the bottom right in green text it says Reflecting on Our Progress.

White background with two large green half circles at the left and right edges, meeting in the centre. In the bottom left corner is a black Long Covid Support logo. In the bottom right in green text it says Reflecting on Our Progress.

Green background with two triangles each formed from six white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Shaping What’s Next.

Green background with two triangles each formed from six white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Shaping What’s Next.

πŸ“£ 1/3. Final reminder!!
Join us for the Long Covid Support Community Strategy Launch!

πŸ—“οΈ Saturday 15th March 2025, 2-4pm GMT
πŸ“ Lyric Theatre, Hammersmith AND πŸ’» Online

Further details and link below to register ⬇️

#LongCovid
#LongCovidAwarenessDay

13.03.2025 09:19 β€” πŸ‘ 10    πŸ” 9    πŸ’¬ 1    πŸ“Œ 1

@lcawarenessint is following 20 prominent accounts