-Mask up. Listen to patients. Care. Run tests. Treat symptoms. Monitor. Offer telehealth when possible.
-Care must be accessible!
-Medicines/treatments must be made accessible!
#LongCovidAwareness
@RobertKennedyJr @HHSGov
@AmerMedicalAssn @AAMCtoday
16.07.2025 00:59 β π 0 π 0 π¬ 0 π 0
Mandatory Long Covid training for primary care providers, pulmonologists, cardiologists, neurologists, gastroenterologists, therapists (possibly other specialists, especially if in hospital setting) *Encourage them to subscribe to & read journals like The Lancet, JAMA, & BMJ.
16.07.2025 00:59 β π 0 π 0 π¬ 1 π 0
Develop Evidence-Based Clinical Guidelines/Long Covid standard of care (global)
-Medical schools need to provide proper Long Covid education.
-CME (Continuing Medical Education) should offer updated Long Covid education (accredited online courses, webinars, & workshops).
16.07.2025 00:59 β π 0 π 0 π¬ 1 π 0
β‘οΈLong Covid clinics/teams could be helpful to patients if they have the proper Long Covid education/knowledge.
16.07.2025 00:59 β π 0 π 0 π¬ 1 π 0
Many patients feel that Long Covid clinics have not been helpful over the years.
In order for Long Covid patients to receive real care doctors/specialists must have knowledge about Long Covid.
Whether we have Long Covid clinics or not--HCWs should be educated about Long Covid.
16.07.2025 00:59 β π 0 π 0 π¬ 1 π 0
Patients are concerned about the future of WashUβs long COVID clinic
Long COVID patients who visit a Wash U clinic say theyβre being directed to another center after the clinicβs medical director has moved on.
βCOVID is still making people sick. We have people who just joined the group a few months ago β¦ there's people who are just getting very, very, very sick for the first time, and I don't want them to have fewer resources.β
#LongCovid
#LongCovidAwareness
16.07.2025 00:59 β π 8 π 4 π¬ 1 π 0
In Plain Breath
What Dirty Air Is Doing To All Of Us
In Plain Breath--
What Dirty Air Is Doing To All Of Us
@AdamVanBavel
substack.com/inbox/post/1...
#LongCovid
#LongCovidAwareness
@usedgov
@aacu
@CDCgov
@WHO @UN
@realDonaldTrump @RobertKennedyJr
16.06.2025 02:30 β π 4 π 2 π¬ 0 π 0
International Long Covid Awareness poster
Colors: Teal, black, gray
Font reads:
Millions suffering.
Infections & reinfections.
No mitigations.
No cure.
CURE LONG COVID NOW
4 icons of medications & International Long Covid Awareness ribbon
Healthcare workersβincluding therapists & clinical trial teamsβ
Long Covid patients need you!
Mask up. Listen. Care. Test. Treat. Monitor. Offer telehealth & remote clinical trials when possible. Patients are counting on you!#LongCovidAwareness #CureLongCovidNow #LongCovid
16.05.2025 05:43 β π 4 π 0 π¬ 0 π 0
alt text:
International Long Covid Awareness poster by Hazie Thompson
Colors: Teal, black, gray
Font reads:
Millions suffering.
Infections & reinfections.
No mitigations.
No cure.
CURE LONG COVID NOW
4 icons of medications & International Long Covid Awareness ribbon
Cuts to public health funding, Long Covid clinics closing, & too many other steps backward while
hundreds of millions are being impacted.
Too many people are trying to survive this misery.
Governments, we need you to start taking real action to move forward.
#LongCovidAwareness
15.04.2025 23:11 β π 2 π 0 π¬ 0 π 0
As we wrap up another Long Covid Awareness Month, we want to express our heartfelt gratitude to all those with Long Covid, advocates, organizations, allies, and voices who came together to raise awareness worldwide. Your efforts are driving the continuing push for change and highlighting the urgent need for action for everyone impacted by Long Covid. The road is rough and it doesnβt stop hereβ weβll all keep raising awareness every day, whether itβs online, at medical appointments, in emails to government officials, in conversations with friends and family, or in any way we can. Because we know COVID doesnβt discriminate, & anyone is at risk of developing Long Covid.
International Long Covid Awareness ribbon in teal, gray, & black
The three colors in the ribbon represent:
past present and future of Long Covid
Gray: Loss and Grief
Teal: Hope and Support
Black: Loneliness and Isolation
#CureLongCovidNow #LongCovidMakesUsOne
#LongCovidAwarenessMonth
#LongCovidAwarenessDay
#LongCovid #ILCAD2025
01.04.2025 03:31 β π 4 π 1 π¬ 0 π 0
The image contains a handwritten message on a beige or light brown background. The text is written in different colors, including blue and green. It reads:
**"I THINK OF GRIEF FOR MY OLD LIFE.
I keep getting clots on my lungs despite blood thinners, I'm exhausted, I have POTS and migraines. The symptoms are relentless.
#LongCOVIDAHP
Helen"**
Such a moving start to @longcovidsupport.bsky.social community strategy launch event.
I'd like to thank the kind person who made my piece for the banner as I've just been too unwell and had too much going on.
Thank you, you're a βοΈπ«Ά
#LongCovid
#LongCovidAwarenessDay
#LongCovidAwareness
15.03.2025 14:26 β π 15 π 4 π¬ 0 π 0
#MyLongCovidRock
#LCKRocks
#LongCovidAwareness
#Windsor #WindsorCastle
16.03.2025 10:40 β π 24 π 11 π¬ 0 π 0
YouTube video by Long Covid Kids
Long Covid & Me | Understanding Long Covid In Children And Young People
NEW
Long Covid and Me: Understanding Long Covid in Children.
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
#LCandME #LongCovidKids #LongCovidAwareness
www.youtube.com/watch?v=e0U7...
15.03.2025 08:40 β π 37 π 25 π¬ 2 π 2
All the events were amazing and a success. Please send it to our Instagram .
Thank you all
www.instagram.com/long_covid_c...
16.03.2025 22:30 β π 3 π 2 π¬ 1 π 0
P.S.A. if you share anything from our socials, no need to tag us. Although we appreciate it very much, we don't do the work for recognition. We do it to help people by providing science based information. If you want to tell your followers to come follow us on the other hand, that would be awesome.
18.03.2025 18:46 β π 4 π 2 π¬ 0 π 0
π¨ Mythbusting #LongCovid with Dr Amir Khanπ¨
Long Covid is real. Itβs serious. And itβs affecting millions.
On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.
Watch, learn, and shareβbecause the more we talk about Long Covid, the harder it is to ignore.
15.03.2025 09:12 β π 448 π 294 π¬ 16 π 123
Thank you note reads:
Thank you all for being a part of International Long Covid Awareness Day 2025!
Thank you for every effort made to raise awareness & represent for our community!
Take extra care of yourselves! -ILCA
IInternational Long Covid Awareness ribbon teal, gray, black
THANK YOU!!
π©΅π©Άπ€
#CureLongCovidNowΒ
#LongCovidMakesUsOne
#ILCAD2025
#LongCovidAwarenessDay
16.03.2025 09:15 β π 12 π 5 π¬ 1 π 0
-Post as soon as you can--but anytime today is okay!
-Post on all platforms
Post this info with your fabric pieces:
-Number of days sick
-Country
-Use one of these hashtags:
#CureLongCovidNow #LongCovidMakesUsOne #ILCAD2025 #LongCovidAwarenessDay
15.03.2025 14:52 β π 2 π 0 π¬ 0 π 0
Screenshot of x account post:
Pieces of teal, gray, and black fabric
Print on fabric pieces read:
COVID DAMAGED MY EYES
CURE LONG COVID
COVID CAN TRIGGER T1D
LONG COVID KILLS
TODAY!
Your fabric doesn't have to be fancy.. It can be written on a rag, an old tshirt, or a piece of a paper bag. All that matters is that you participate if you can, to represent for all of us.
You may post you holding the fabric or just the piece of fabric.
#LongCovidAwarenessDay #ILCAD2025
15.03.2025 14:52 β π 1 π 0 π¬ 1 π 0
Light fixture shining a teal light for International Long Covid Awareness
Reflecting on 5yrs of Long Covid: Those who have lost their lives to Long Covid, the suffering of those still sick, & all loss in this pandemic
We mourn, we remember, we continue to fight for our lives & for people's health around the world
#LongCovidMakesUsOne
#CureLongCovidNow
15.03.2025 05:59 β π 21 π 12 π¬ 0 π 1
Today would have been my mumβs birthday instead sheβs gone after a covid induced stroke acquired from my father due an outbreak in his nursing home. They died, last year, within days of each other. Masks in healthcare settings would have saved both their lives.
#CovidStillKills
13.03.2025 00:52 β π 510 π 111 π¬ 55 π 1
Caring for a child with long Covid means navigating medical uncertainty, school struggles, and daily exhaustion. Caregivers fight for answers, balance work and home, and provide endless support. They need understanding, resources, and real solutions. #LongCovidFamilies
13.03.2025 10:34 β π 20 π 8 π¬ 0 π 0
Green background with nine large white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Coming Together.
White background with two large green half circles at the left and right edges, meeting in the centre. In the bottom left corner is a black Long Covid Support logo. In the bottom right in green text it says Reflecting on Our Progress.
Green background with two triangles each formed from six white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Shaping Whatβs Next.
π£ 1/3. Final reminder!!
Join us for the Long Covid Support Community Strategy Launch!
ποΈ Saturday 15th March 2025, 2-4pm GMT
π Lyric Theatre, Hammersmith AND π» Online
Further details and link below to register β¬οΈ
#LongCovid
#LongCovidAwarenessDay
13.03.2025 09:19 β π 10 π 9 π¬ 1 π 1
Facilitator | Researcher | Advocate
Director of development at Research-Aid Networks π
Author of The Long Covid Symptom Diary, now available in EN, DE, NL & ES! - www.ddxpublishing.com
Listing local events, businesses & services that take Covid precautions. Also posting calls to action.
https://x.com/CovidSaferSF
https://instagram.com/covidsafersf
covidsafersf (at) yahoo.com
ME/CFS | Long COVID | IACC
#Queer and #trans #disabled people have always had to find new paths for our survival
#Illder storyteller and strategist: http://thecrankyqueer.substack.com
#PandemicsAreChronic
β€οΈT4Tβ€οΈMask4Maskβ€οΈ #FBLC
Austin based non-profit dedicated to supporting & improving the lives of those with Long Covid and other chronic illnesses. Reposts β endorsements. Not medical advice.
Covid Conscious Cutie part of the Still Coviding community! Antizionist Jew! Immune compromised warrior battling Long Covid & fighting fascists. Pro Peace & Love & Intersectionality & human rights for all! None of us are free until all of us are free!
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality.
https://www.youtube.com/@ChronicIllnessChannel
Clean The Air http://bit.ly/CleanTheAirUK
Mom, Marketing exec, Living with Long Covid, Long Covid Advocate
#LongCovidAwareness #LongCovid
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Childrenβs Nursing. #FBLC
Freelance #copywriter. PhD Geology. Life on βΈ 1st π #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne π·
Passionate healthcare IT professional dedicated to improving lives in the neurodivergent community. Advocate for innovative health practices in primary care. My articles are posted here for free. https://www.notesforfriends.com/
Filmmaker, photographer, environmental activist, runner. Working to clean the air and end fossil fuels. I don't have long COVID but support those who do. #covidisntover #maskup #airquality #climate https://linktr.ee/markedixon
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
A monthly chat about dating, sex & relationships in the disability and chronic illness community. SAVE #roeVwade
Red EspaΓ±ola de InvestigaciΓ³n en COVID persistente
Spanish Research Network in Long COVID
reicop.org
AsΓ³ciate: https://reicop.org/asociate/
Former Professional Communicator. Alberta, Canada. Infected March 13/2020. 1st Wavers identified & named OUR disease. It is LONG COVID. Switch flipped: from victim to WARRIOR. #LongCovid https://covidtoolbox.com and https://longcovidland.com