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Mehro

@mehroe.bsky.social

Caregiver & Organizer. Here for updates: (Long) COVID, MCAS, ME/CFS, dysautonomia, and other disabilities. If I follow > unfollow > follow, it’s to see follow recommendations.

43 Followers  |  234 Following  |  5 Posts  |  Joined: 24.11.2023  |  1.9846

Latest posts by mehroe.bsky.social on Bluesky

Preview
Study Shows a Need for Vigilance When Observing Long COVID Symptoms in Younger Children

"Researchers said they can confirm that younger children can have long COVID. Clinicians and caregivers may not recognize long COVID in these children because they are unfamiliar with it."
#Medsky
www.rutgers.edu/news/study-s...

28.07.2025 01:54 — 👍 28    🔁 17    💬 0    📌 3
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COVID-19 Surges Linked to Spike in Heart Attacks New data analysis from the Smidt Heart Institute at Cedars-Sinai found that deaths from heart attacks rose significantly during pandemic surges, including the COVID-19 Omicron surges, overall reversing a heart-healthier pre-pandemic trend.Prior to the COVID-19 pandemic, heart attacks were the leading cause of death worldwide but were steadily on...

The spikes in heart attack deaths have tracked with surges of COVID-19 infection. ..Furthermore, the data showed the increase was most significant among individuals ages 25-44.

COVIDisnotover #cleantheair #maskforyourlife

www.cedars-sinai.org/newsroom/cov...

27.07.2025 03:00 — 👍 30    🔁 19    💬 0    📌 0

Gov. Hochul has the ability to pass the NY Health Act, which would guarantee healthcare for everyone in NY.

We have the votes to pass it in the state legislature, but Gov. Hochul refuses to endorse.

Any rhetoric on healthcare, is meaningless.

You have the power to fix this.

03.07.2025 23:42 — 👍 5    🔁 3    💬 1    📌 0

Republicans keep saying the “genuinely disabled” don’t have to worry about losing Medicaid.

All disabilities are genuine.

You also need healthcare to get a diagnosis. To get the paperwork done. To “prove it”.

They’re ensuring people get trapped in red tape loopholes so they can’t get care.

04.07.2025 04:47 — 👍 870    🔁 286    💬 20    📌 31
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Patient-Reported Treatment Outcomes in ME/CFS and Long COVID: ST2 Treatment Responses

I see many people asking, "Has anyone tried XYZ for LC (or ME/CFS)? You can view patient-reported treatment outcomes for ME/CFS & Long COVID in this spreadsheet. Scroll to the right to see treatment results for ME/CFS (Columns S - AA) or Long COVID (Columns AB - AJ). docs.google.com/spreadsheets...

20.01.2025 05:07 — 👍 139    🔁 58    💬 31    📌 9

A new #LongCovid clinical trial is enrolling for bezisterim, an investigational anti-inflammatory drug that crosses the blood-brain barrier.

It has been studied in neurological & neurodegenerative disorders, including Alzheimer’s & Parkinson’s. 1/

20.06.2025 19:48 — 👍 119    🔁 59    💬 3    📌 7

Omg you’re totally right, iron total range should be 40-190

03.06.2025 05:28 — 👍 1    🔁 0    💬 1    📌 0

The doctor (an endocrinologist) is actually the one who put me on Ferrocite 106mg tablet to boost Ferritin (was 11 three mo ago, now 30).

They didnt mention high iron last week when they saw these results, but I’ll ask them about heavy metals.

03.06.2025 00:45 — 👍 0    🔁 0    💬 1    📌 0

Could this be autonomic?
I have other symptoms of dysautonomia as well.

Thinking about switching to Lactoferrin from Ferrocite 106mg tablet — thoughts?

(My first dysautonomia specialist visit is in July.)
Thank you in advance!

02.06.2025 21:08 — 👍 0    🔁 0    💬 1    📌 0

Jaime, do you happen to know what this indicates?

Iron, total 165 [ref 40-90 mcg/dL]
Iron binding capacity 363 [250-450 mcg/dL]
% Saturation 45 [16-45%]
Ferritin 30 [16-154 ng/mL]

^After starting Ferrocite 106mg tablet 3 mo ago [all #s lower before but IBC which ⬇️ this time, ferritin was 11].

02.06.2025 21:04 — 👍 0    🔁 0    💬 1    📌 0
Preview
Nutrition Advice Decoded: What Foods Are Actually Good For Us, What Should We Avoid, and Why Is It All SO Confusing? - Gastropod If you're confused about what nutrition science has to say about which foods are healthy and which are not, you're not alone. This episode: how nutrition research actually gets done—and what that mean...

It was fun to participate in this episode of the @Gastropodcast on nutrition science along with @marionnestle.bsky.social, Dariush Mozaffarian, and Saul Newman.

gastropod.com/nutrition-ad...

25.03.2025 23:35 — 👍 36    🔁 10    💬 2    📌 0
Long Covid scientific consultancy poster reading:
Helping bring clarity to long covid, covid vaccine injury and similar illnesses. Have you or a loved one had a COVID infection or vaccination, & things haven't been right since?
Maybe symptoms like… (symptoms pointing to an outline of a body)
Thirst, dry mouth or dry eyes
Problems thinking clearly
Tinnitus
Palpitations
Chest pain
Difficulties exercising
Exhaustion
Insomnia
Rashes
Legs change colour or swell when you stand up
Muscle/joint pain
Fingers, arms, or legs tingling
Food intolerances
Nausea
Breathlessness
...among many other things

If so, Long Covid Scientific Consultancy aims to help! 

Harriet A. Carroll, PhD
www.LC-SC.co.uk
Harriet@lc-sc.co.uk

Long Covid scientific consultancy poster reading: Helping bring clarity to long covid, covid vaccine injury and similar illnesses. Have you or a loved one had a COVID infection or vaccination, & things haven't been right since? Maybe symptoms like… (symptoms pointing to an outline of a body) Thirst, dry mouth or dry eyes Problems thinking clearly Tinnitus Palpitations Chest pain Difficulties exercising Exhaustion Insomnia Rashes Legs change colour or swell when you stand up Muscle/joint pain Fingers, arms, or legs tingling Food intolerances Nausea Breathlessness ...among many other things If so, Long Covid Scientific Consultancy aims to help! Harriet A. Carroll, PhD www.LC-SC.co.uk Harriet@lc-sc.co.uk

Poster reading:
Do you:
Feel unsure about what is going on,& you’re struggling to find answers or make sense of things?
Want help interpreting test results, or deciding what tests to ask for?
Want help navigating evidence, not be sold another protocol?
Read so much that you are now overwhelmed & dont know where to start?
Feel abandoned or dismissed by your healthcare provider, or been told there is nothing that can be done to help?
In my own journey, I remember frantically trying to find answers & getting constantly dismissed by doctors. Looking back, I wish I had some guidance from someone. This guidance is what Long Covid Scientific Consultancy aims to provide. I hope to support you in making evidence-based decisions on your journey...

5 star reviews:
“None of [my medical team] have had the depth of knowledge & understanding that Harriet demonstrated”~Anita
“It’s wonderful to have access to someone who is so knowledgeable & whom I feel I can can really trust” ~Jill

Poster reading: Do you: Feel unsure about what is going on,& you’re struggling to find answers or make sense of things? Want help interpreting test results, or deciding what tests to ask for? Want help navigating evidence, not be sold another protocol? Read so much that you are now overwhelmed & dont know where to start? Feel abandoned or dismissed by your healthcare provider, or been told there is nothing that can be done to help? In my own journey, I remember frantically trying to find answers & getting constantly dismissed by doctors. Looking back, I wish I had some guidance from someone. This guidance is what Long Covid Scientific Consultancy aims to provide. I hope to support you in making evidence-based decisions on your journey... 5 star reviews: “None of [my medical team] have had the depth of knowledge & understanding that Harriet demonstrated”~Anita “It’s wonderful to have access to someone who is so knowledgeable & whom I feel I can can really trust” ~Jill

Want help navigating the #longCOVID #postvac and related #chronicillness space? Want evidence, rather than be sold another protocol?

If so, I aim to help bring some clarity to things!

Book an appointment: lc-sc.co.uk/book-an-appo...
✉️ harriet@lc-sc.co.uk (🚫please no DMs)

14.11.2024 23:30 — 👍 22    🔁 11    💬 1    📌 4

I literally have a note from my pulmonologist to say that I cannot risk another respiratory infection and must be allowed to keep my mask on at all group functions at work. I feel like this pressure is getting worse both formally and informally.

05.10.2024 03:26 — 👍 37    🔁 10    💬 1    📌 0
CDC National Wastewater Surveillance System map as of August 10 shows most US states in the “very high” range and all remaining states with data in the “high” or “moderate” range.

CDC National Wastewater Surveillance System map as of August 10 shows most US states in the “very high” range and all remaining states with data in the “high” or “moderate” range.

Screenshot of two images: 

A 2021 CNBC article quotes Dr Fauci stating, “Dr. Fauci says U.S. Covid cases need to fall below 10,000 a day to get to a 'degree of normality'.” The phrase “below 10,000” is underlined in red and an arrow points up to the second image’s last data point. The second image is a graph that estimates daily covid infection numbers based on the CDC wastewater levels. As of July 31, 2024, the estimate is over 1M per day.

Screenshot of two images: A 2021 CNBC article quotes Dr Fauci stating, “Dr. Fauci says U.S. Covid cases need to fall below 10,000 a day to get to a 'degree of normality'.” The phrase “below 10,000” is underlined in red and an arrow points up to the second image’s last data point. The second image is a graph that estimates daily covid infection numbers based on the CDC wastewater levels. As of July 31, 2024, the estimate is over 1M per day.

Current COVID surge: 1M cases/day. Act now:

1) Ask Congress for free vax: tinyurl.com/MoreVax

2) Donate to mutual aid or get free n95s: covidactionmap.org

3) Phone bank to stop mask bans tinyurl.com/MaskBank

4) Share the COVID+ Plan doc so folks know what to do when sick: tinyurl.com/SickPlan

10.08.2024 19:19 — 👍 633    🔁 493    💬 12    📌 16
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Opinion | Here’s how to get free Paxlovid as many times as you need it There’s a terrific new program for free Paxlovid, but many people don’t know about it.

This article has a pretty clearly laid-out process for how a lot of people can get free paxlovid if they need it. Check it out:
www.washingtonpost.com/opinions/202...

03.09.2024 04:45 — 👍 734    🔁 487    💬 36    📌 20
Blockenheimer for Bluesky

@taylorlorenz.bsky.social can't reply to your post, but there's a tool that lets you block or mute anyone that interacts with a post: @new.blockenheimer.click for info or blockenheimer.click

03.09.2024 05:06 — 👍 15    🔁 2    💬 2    📌 1

Same!

18.02.2024 05:56 — 👍 0    🔁 0    💬 0    📌 0

@mehroe is following 20 prominent accounts