A picture of the landscape of St Johnβs - Newfoundland.
A poster presented at an academic conference.
Weβre really happy to be sharing our work at the @longcovidweb.bsky.social symposia in the wonderful city of St Johnβs, Newfoundland π¨π¦
If youβre attending the event either online or in person, please come and say hello!!
20.10.2025 17:58 β π 11 π 1 π¬ 0 π 0
This update is therefore to let all of you in the community know that we are still here and continuing to work hard in our bid to help the many millions of people living with Long Covid.
20.10.2025 07:53 β π 15 π 0 π¬ 2 π 0
Once the results have been fully analysed and then checked by other independent researchers (a process called peer review) we will let you know the outcome. This process takes a long time.
20.10.2025 07:53 β π 6 π 1 π¬ 1 π 0
Next steps will be to analyse the data to see how feasible it is for people with Long Covid to receive this drug and look for any suggestions as to how the drug has affected participants.
20.10.2025 07:53 β π 5 π 0 π¬ 1 π 0
Sorry for the silence:
The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.
20.10.2025 07:53 β π 32 π 7 π¬ 1 π 1
So good to have you join us for the day!! Lots of great discussions and ideas.. now to find ways to implement them!
24.06.2025 06:16 β π 11 π 5 π¬ 0 π 0
Three people stood looking directly at a camera.
An exercise bike next to laboratory equipment.
A door sign.
A medicine bag on a drip stand.
And just like that we have completed ERASE in Derby
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
19.06.2025 12:56 β π 15 π 4 π¬ 2 π 0
Our global effort to raise the urgency of research into Long Covid in children published in The ERJ β¬οΈ
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
23.05.2025 09:48 β π 78 π 38 π¬ 2 π 1
Researcher in Clinical Exercise Science (Long COVID)
Exciting opportunity to contribute to impactful Long COVID research.
Weβre recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch.
Please share with your network!
www.derby.ac.uk/jobs/current...
18.05.2025 09:27 β π 32 π 25 π¬ 0 π 1
An infusion bag hanging from a drip stand.
54 Patients..
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
16.05.2025 09:56 β π 4 π 1 π¬ 0 π 1
University embarks on ground-breaking long Covid research project - Marketing Derby
A ground-breaking research project led by the University of Derby, which aims to find a treatment for symptoms of long Covid, is underway...
University of Derby: 'University embarks on ground-breaking long Covid research project'
'The Β£1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...'
www.marketingderby.co.uk/news/univers...
28.04.2025 12:42 β π 20 π 6 π¬ 0 π 1
#LongCovid
@profmarkfaghy.bsky.social
@lindsayskipper.bsky.social
@sarahbarleymc.bsky.social
@longcovidadvoc.com
@mikster-derby.bsky.social
@michaeltikus.bsky.social
28.04.2025 13:19 β π 5 π 2 π¬ 0 π 0
Access has been a βpostcode lotteryβ, says @profmarkfaghy.bsky.social, an associate professor in respiratory physiology at @derbyuni.bsky.social
and policy advisor for @longcovidkids.bsky.social
He adds that children and young people are at a βdisadvantage from the outsetβ.
29.04.2025 16:21 β π 0 π 1 π¬ 1 π 0
YouTube video by University of Derby
Understanding long Covid: How University research contributes to a global problem
An insight into our #LongCovid #research at the @DerbyUni
www.youtube.com/watch?v=pSwH...
01.05.2025 09:13 β π 14 π 6 π¬ 1 π 0
Thank you @profmarkfaghy.bsky.social and your brilliant team π
You might be interested in this, @jonathandaviesmp.bsky.social
#LongCovid #Derbyshire
28.03.2025 14:27 β π 4 π 2 π¬ 1 π 0
More than happy to chat @jonathandaviesmp.bsky.social ππΌ
28.03.2025 19:25 β π 2 π 0 π¬ 0 π 0
https://www.itv.com/news/2025-03-11/not-forgotten-fresh-hope-for-long-covid-cure-five-years-on-from-pandemic
Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid
βIt is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the futureβ @profmarkfaghy.bsky.social
t.co/kfLzV0B0fy
12.03.2025 20:49 β π 8 π 4 π¬ 0 π 0
Ondine was a big voice and a strong advocate for #Longcovid and will be sorely missed by everyone.
I shared many lovely moments with Ondine as part of our involvement in the
@covidinquiryuk
I am gutted and lost for words!
We will continue to advocate with Ondine looking down!
12.03.2025 13:50 β π 29 π 8 π¬ 2 π 0
Here is our piece that was featured on @itvnews.bsky.social yesterday, which talks about #longcovid research.
www.itv.com/news/2025-03...
12.03.2025 10:07 β π 6 π 2 π¬ 0 π 0
Decided to get back on the socials after a short break due to personal issues where my time and attention was needed elsewhere.. we've still been working hard but just not public facing but I'm back and we have some important updates and information to share over the course of the next few weeks!
10.02.2025 10:59 β π 16 π 1 π¬ 0 π 0
Apologies Maureen. This was my error, we have included alt text on previous posts.
12.12.2024 08:35 β π 1 π 0 π¬ 1 π 0
A sign displaying the words merry Christmas with a small Christmas tree.
Thank you to everyone who has contributed to and engaged with the #12waysofERASE
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
12.12.2024 08:34 β π 46 π 5 π¬ 1 π 0
We will not give up!
And for those of us in the team living with this truly life-altering disease, we will always know just how important it is that some people never give up on us.
12.12.2024 08:34 β π 69 π 8 π¬ 1 π 1
The team is full of very determined (some would say stubborn) people.
We will keep having uncomfortable conversations and keep mentioning the elephant in the room - which is that COVID-19 has done great harm to many people and continues to do so.
12.12.2024 08:34 β π 82 π 16 π¬ 2 π 0
#12waysofERASE
Day 12
We have and continue to have knockbacks as a team⦠funding refusals, paper rejections and many more!
But we are trying to research a condition which some of the world is trying to pretend does not exist and in a life where infections are still spreading in great volumes.
12.12.2024 08:34 β π 94 π 22 π¬ 3 π 4
Professor of mathematical medicine and biology, University of Nottingham. Research interests: multiscale mathematical and systems modelling, tissue mechanics and mechanobiology, in respiratory medicine #asthma #COPD #LAM and #LongCovid. Views my own.
Developmental psychologist. Pro nature. Pro equality. Generally woke
Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Providing support & holistic healthcare services to people of all ages affected by #MECFS
Charity number: 1036419 / SC040452
Feed for Long Covid new arrivals on BlueSky. Reposts from trusted LC advocacy and supportive accounts who've migrated from other social media.
Named in honour of surreal British 1970s cartoon Noah And Nelly. "All aboard the Skylark!"
National nonprofit led by people with lived experience helping families navigate pediatric Long COVID with support, resources, and advocacy.
At the Canadian Covid Society, we strive to protect the health and safety of people in Canada against the harms of COVID-19 and long Covid, through education, engaging and empowering the public and organizations with scientific knowledge.
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Professor of MSK imaging at the University of Exeter. Diagnostic Radiographer. Osteoporosis, AI, MSK, New Tech researcher. Views my own
Mum β’ Lover of nature and clean, fresh air β’ Passionate about science β’ βWithout data, youβre just another person with an opinion.β
Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Consultant Radiologist UK.
Medical imaging educator.
Founder/Director of radiologymasterclass.co.uk.
Investigating links between poor oral health and systemic disease | oral microbiome | COVID-19 & LongCOVID.
Oral Health Section Editor - Springer Nature
mountaineer, chutney/ cake maker, based in UK Lake District.β€οΈEU ; trying to be π; v lecturer in health policy leadership/MBA dissertation sup RKCollege Zurich.π· masking until we get st vaccines. #LongCovidAdvocacy https://www.mef.org.uk/about/committee
Love music, books, animals, baking, great TV & nostalgia.
Insta Threads: diane_haywood_71
Twitter: DianeH @DianeHaywood71
German, English, Spanish
Sociology, Medicine, General Practice
Living but not thriving with Long Covid | Peer support committee member for Long Covid Physio | PPIE representative in #LongCOVID research