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Margaret O’Hara

@margaretohara.bsky.social

Patient Advocate in #LongCovid and #HyperemesisGravidarum Patient Involvement in Research in #NHS

238 Followers  |  182 Following  |  38 Posts  |  Joined: 15.10.2024  |  2.4039

Latest posts by margaretohara.bsky.social on Bluesky

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Westhill mum of long Covid girl invites SNP health chief to see suffering for himself Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better.

A 'mum whose daughter has struggled for years with the effects of Covid is inviting SNP health secretary Neil Gray to hear her story in person at their home'
“Her room is like a hospital. She’s very sick and that’s what I want him to see.” @helen-goss.bsky.social

bit.ly/3IJ3PZY #LongCovidKids

05.10.2025 12:38 — 👍 52    🔁 26    💬 3    📌 1
04.10.2025 22:08 — 👍 30    🔁 9    💬 1    📌 0
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Okayama study underscores risk of long COVID, new variant | The Asahi Shimbun: Breaking News, Japan News and Analysis OKAYAMA--More than half of patients who visited Okayama University Hospital’s COVID-19 aftercare (CAC) outpatient clinic continued follow-up treatments for 180 days or more, a group of researchers sai...

Japan: "Okayama study underscores risk of long COVID, new variant"

Of the 774 long COVID Omicron patients, 370 were in the ‘early recovery group’ (within 6 months). The other 404 (52%) had symptoms 180+ days, with some lasting 2–3 years. Women made up about 60% of this persistent group.

#LongCOVID

02.10.2025 23:18 — 👍 127    🔁 58    💬 2    📌 4
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Dear Bridget Phillipson, Please Can We Talk About Health? Dear Bridget Phillipson, Please can we talk about health? It’s autumn 2025. We’re one month into the school year, in England. Two of my children are ill, again.With Covid, again.It&#821…

Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.

stevebheadteacher.wordpress.com/2025/09/30/d...

03.10.2025 06:28 — 👍 284    🔁 146    💬 12    📌 12
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The accompanying editorial tells the sad truth that is largely being ignored
www.thelancet.com/journals/lan...

30.09.2025 22:42 — 👍 223    🔁 92    💬 7    📌 7

Proud to have been involved in this work! Not surprised by this major under-recording of #LongCovid in healthcare records but it proves that using healthcare records/coding as evidence of the number of p/w Long Covid is substantially inaccurate…and downright dangerous.

30.09.2025 16:11 — 👍 6    🔁 4    💬 1    📌 0
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Long Covid Risk for Children Doubles After a Second Infection, Study Finds

New York Times: “Long Covid Risk for Children Doubles After a Second Infection, Study Finds”

‘The new research provides evidence that Covid reinfections can increase the risk of long-term health consequences’

www.nytimes.com/2025/09/30/h...

01.10.2025 04:13 — 👍 399    🔁 235    💬 9    📌 20

important article highlighting the continuing benefit to both mother and newborn of vaccinating pregnant women against Covid.

The US under RFK Jr just stopped recommending vax for pregnant women. The UK has withdrawn vax for pregnant women too - I think both are very stupid decisions.

30.09.2025 17:43 — 👍 253    🔁 108    💬 7    📌 1
Screenshot of research paper title and authors. Header says Health Expectations Open Access An International Journal of Public Participation in Health Care and Health Policy. Below this it says Original Article Open Access. The title of the paper is Understanding the Clinical Characteristics and Timeliness of Diagnosis for Patients Diagnosed With Long Covid: A Retrospective Observational Cohort Study From North West London. The list of authors reads Denys Prociuk, Jonathan Clarke, Nikki Smith, Ruairidh Milne, Cassie Lee, Simon de Lusignan, Ghazala Mir, Johannes De Kock, Erik Mayer, Brendan C. Delaney, LOCOMOTION Consortium. It is dated as First Published on 25 September 2025. The reference is https://doi.org/10.1111/hex.70429.

Screenshot of research paper title and authors. Header says Health Expectations Open Access An International Journal of Public Participation in Health Care and Health Policy. Below this it says Original Article Open Access. The title of the paper is Understanding the Clinical Characteristics and Timeliness of Diagnosis for Patients Diagnosed With Long Covid: A Retrospective Observational Cohort Study From North West London. The list of authors reads Denys Prociuk, Jonathan Clarke, Nikki Smith, Ruairidh Milne, Cassie Lee, Simon de Lusignan, Ghazala Mir, Johannes De Kock, Erik Mayer, Brendan C. Delaney, LOCOMOTION Consortium. It is dated as First Published on 25 September 2025. The reference is https://doi.org/10.1111/hex.70429.

📣 1/4. Paper out from the UK’s LOCOMOTION study on incidence of #LongCovid diagnosis.
 
🚩 Huge under-recording of Long Covid in primary healthcare records!
 
Big thank you to our Members & co-authors @nikki-s.bsky.social & @ruairidhm.bsky.social for their hard work🙏

Link to paper on below 🧵 ⬇️

30.09.2025 12:10 — 👍 35    🔁 16    💬 2    📌 3
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Calls for government to apologise over Long Covid failings as inquiry resumes A WEYMOUTH campaigner is calling on the government to apologise to children over its handling of Long Covid.

"We teach our children to say sorry. It’s time the government did the same for children and young people with Long Covid"
@sammiemc.bsky.social CEO & Founder, LCK

www.dorsetecho.co.uk/news/2550166...

#Dorset #COVIDInquiry #RockSolidAction #LongCovidKids

29.09.2025 15:14 — 👍 32    🔁 12    💬 0    📌 0

How utterly moronic of Labour not to realise that it has nothing to do with contribution, whatever that means, you’ll never appease Reform voters with this, they just don’t like Brown & Black people and nothing any of them do will ever be good enough, they’ll still want them deported. So depressing

29.09.2025 16:02 — 👍 7    🔁 1    💬 1    📌 0
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AI medical tools found to downplay symptoms of women, ethnic minorities Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.

AI medical tools found to downplay symptoms of women, ethnic minorities

Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.

None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.

28.09.2025 13:15 — 👍 181    🔁 76    💬 11    📌 10
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This tweet has been doing the rounds on Twitter now that Nathan Gill has pleaded guilty.

If only someone had tried to investigate UKIP & Russian interference 🧐

There’s another timeline where the Guardian supported me, doubled down on the investigation & I look 5 years younger ..

28.09.2025 16:46 — 👍 3523    🔁 1389    💬 60    📌 41

Is that a worse problem than the 100,000 children who have Long Covid and have had their lives and education utterly destroyed? I very much doubt it.

28.09.2025 10:54 — 👍 0    🔁 0    💬 0    📌 0
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The Britcard – progressive or concerning? | British Politics and Policy at LSE The Government is considering Labour Together's proposal to introduce mandatory digital ID cards in an effort to tackle irregular migration. There are problems with that.

'Rather than addressing the fundamental problems with existing verification systems, the Britcard threatens to digitise and amplify the very hostile environment policies that created these problems in the first place'

blogs.lse.ac.uk/politicsandp...

28.09.2025 10:03 — 👍 243    🔁 88    💬 27    📌 3

A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
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27.09.2025 11:30 — 👍 157    🔁 72    💬 3    📌 21
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Impact of COVID-19 infection on the sleep of infants and toddlers - PubMed Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers, with these effects persisting beyond the acute infection ph...

#Research
Impact of COVID-19 #infection on the sleep of #infants and #toddlers

Conclusion: Our findings demonstrate that COVID-19 infection causes significant and prolonged disruptions to sleep architecture in infants and toddlers

pubmed.ncbi.nlm.nih.gov/40993557/
#LongCovidKids #LongCovid #Sleep

27.09.2025 19:09 — 👍 20    🔁 14    💬 1    📌 0
Post image 28.09.2025 06:45 — 👍 9    🔁 8    💬 2    📌 1
Dark blue graphic with text 'Response: ScotGov Funding Announcement' with a man wearing an FFP3 mask

Dark blue graphic with text 'Response: ScotGov Funding Announcement' with a man wearing an FFP3 mask

While we welcome the Scottish Government announcement of £4.5 million recurrent #LongCovid and #MECFS funding, serious concerns remain. Patients are told money is being allocated, but there is no clarity on how it will be used.

Read the full statement on our website: www.longcovid.scot/blog/res...

26.09.2025 15:12 — 👍 5    🔁 3    💬 0    📌 0

The strongest predictor of autism is genetics.

Data:
• If one identical twin has ASD, the other has a 90–99% chance.
• Compare that to 31–67% chance for fraternal twins.
• Non-twin siblings have ~20% likelihood of ASD, 7-fold higher than general population.

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24.09.2025 20:16 — 👍 263    🔁 71    💬 9    📌 6

‚„Immunity debt” doesn’t exist, but immune damage does. Children are sicker now than pre-pandemic – many with disabling chronic illnesses. This cycle of harm can only stop when we accept reality – there’s no off ramp without cleaning classroom air.‘

#LongCovid

24.09.2025 13:59 — 👍 20    🔁 13    💬 0    📌 0

Will @hsph.harvard.edu take action

given they hired Andrea Bacarrelli in 2024 AFTER he falsified links between Tylenol use in pregnancy & autism in federal court (& was paid $150,000)

and THEN published the same claims in a journal with a history of fake peer review & falsified data

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24.09.2025 01:48 — 👍 108    🔁 29    💬 3    📌 0
A black kitten sleeping snuggled up to a tabby kitten on a grey sofa.

A black kitten sleeping snuggled up to a tabby kitten on a grey sofa.

I know there’s a lot going on in the world but you all have to stop and look at my kittens. They were abandoned in our street 2 months ago. When we took them in not quite 4 wk ago, they were terrified and hid all the time. Now they’re on the sofa right next to me snoozing happily.

24.09.2025 19:55 — 👍 3    🔁 0    💬 1    📌 0

Why aren’t the company that makesTylenol suing him? Or has the fascism run too deep already and they’re too scared?

24.09.2025 06:27 — 👍 0    🔁 0    💬 0    📌 0
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jamanetwork.com/journals/jam...

A 2024 study published in JAMA involving 2.4 million children in Sweden, used sibling-control analysis. When comparing siblings—one exposed to #acetaminophen in utero & one not—the researchers found NO increased risk of #autism, ADHD, or intellectual disability.

23.09.2025 13:22 — 👍 891    🔁 327    💬 23    📌 11
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President Trump's Claims About Leucovorin & Autism BuDS' response to President Trump's claims about Leucovorin and autism

President Trump has claimed that Leucovorin is a “gamechanger” in autism treatment, and that “it could help make our kids healthy again”. This is entirely false.

BuDS has prepared a detailed briefing on this matter, which can be found at the link: buds.org.uk/president-tr...

23.09.2025 17:25 — 👍 8    🔁 5    💬 1    📌 0
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Microneurography Reveals Unmyelinated Small Nerve Fiber Dysfunction in Long COVID Objective To review the microneurography findings of long coronavirus disease 2019 (COVID) patients who presented to the clinic with multisystem involvement affecting neurological, cardiovascular, g.....

"described for the first time widespread abnormalities in the function of unmyelinated C fibers, both somatosensory and sympathetic, that could represent a common pathophysiological mechanism explaining the multiplicity of symptoms in #longCOVID"

#MECFS

onlinelibrary.wiley.com/doi/10.1002/...

23.09.2025 03:27 — 👍 27    🔁 8    💬 1    📌 3
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To be clear, there are no data that provide a link between short-term use of Tylenol during pregnancy and autism. In fact, one of the best prospective studies w/ sibling controls, if anything, pointed to a protective effect for use less than 7 days
acamh.onlinelibrary.wiley.com/doi/10.1002/...

23.09.2025 15:04 — 👍 846    🔁 331    💬 19    📌 16
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This ought to be engraved somewhere.

23.09.2025 02:56 — 👍 17428    🔁 6173    💬 321    📌 194
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Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS Introduction

Nasal Azelastine and COVID Prevention: What a New Study Tells Us — And Why It Might Matter for Long COVID / ME/CFS

danilobuonsenso.substack.com/p/nasal-azel...

21.09.2025 20:29 — 👍 25    🔁 12    💬 3    📌 0

@margaretohara is following 20 prominent accounts