I canโt believe this is happening
19.02.2026 10:13 โ ๐ 53 ๐ 5 ๐ฌ 5 ๐ 0@parttimecorvid.bsky.social
In a long-distance relationship with the ocean. Educator, autistic peer researcher, amateur naturalist & chronic poster of nonsense. ๐ต๐ธ๐ฎ๐ช Saoirse don Phalaistรญn ๐ฎ๐ช๐ต๐ธ They/them no e/esan sa Gร idhlig ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐ด๐ณ๏ธโโง๏ธโฟ๏ธ
I canโt believe this is happening
19.02.2026 10:13 โ ๐ 53 ๐ 5 ๐ฌ 5 ๐ 0I do wonder if there's a link with autonomic dysfunction though โ could explain the hypermobility aspect you mentioned? Since most of us bendy folk struggle with dysautonomia to some extent. Hmm...
I'd volunteer myself as a test subject at this point ๐
Mostly I sleep too much โ it's better now I'm on ADHD meds, but without them I could easily sleep 16 hours a day.
But then randomly... I have episodes of insomnia where I'm awake 48+ hours? Or I only sleep 3-4 hours a night for a week straight.
Then throw in a likely circadian rhythm disorder and ๐คท๐คท
Honestly, my sleep is just... Messed up. I've thought about saving up and going private since it seems like the only way I'll ever be seen.
My mum has been taking me to the GP since I was a toddler because my sleep is messed up, they just don't seem to want to listen. It's FRUSTRATING
And when I was on mirtazapine, I just could not wake up ๐ I now know me + any sedating meds are absolutely not friends, but what a learning curve.
I take magnesium to help with chronic migraine, which supposedly helps RLS. I think I had it on and off in the past, but not since starting magnesium (๐ค)
Interesting! I've heard a few people with ADHD experience it too, though not to the same extent. It's been an issue for me for a long time, about 10 years or so, so I don't know if it's connected to ADs in my case... But I know many of them caused fatigue, which worsened it!
19.02.2026 10:13 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Because they use the Epworth Sleepiness Scale, which measures how often/likely you are to fall asleep in certain situations and... Nothing else.
I scored borderline, but it doesn't account for "I'm so sleepy I literally cannot think or do anything because I just want my bed"
Yeah, of course you can!!! Tbh the more insight the better haha
18.02.2026 21:48 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0For some reason, I've found having a snack or drink by my bedside table somewhat helpful? I remember when I was in school, my go to was to set an alarm half an hour early, chug as much water as I could while still half asleep, then by the time my alarm went I'd be desperate to pee ๐ it kinda worked
18.02.2026 10:32 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I literally answered just as they hung up. And I thought "ah, no big deal, they'll surely call again or leave a voicemail with a number to call them back on"
They did not.
I "missed" a call from my UC work coach because I was in the bathroom, washing my hands. And they didn't call back. Who on earth doesn't call back even once if someone doesn't pick up? Even my GP calls back! I WAS PISSING.
18.02.2026 10:29 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0And ofc the problem with a long acting stimulant is that if I sleep in, it means I can't take it since if I take it past about 10am if means no sleep for me that night haha
18.02.2026 10:28 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Ohhh it'd be super helpful!
I'm on ADHD meds, which are used off label to help people with stuff like narcolepsy and idiopathic hypersomnia. I find them really helpful, but it takes ~2 hours for em to kick in and I can still fall back asleep in that time ๐
Yeah, I've long thought I have a circadian rhythm disorder as well and have been going to the GP regularly since I was a literal child for my sleeping difficulties... They just don't seem to care
13.02.2026 11:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0I love the winter Olympics, but some of these sports I wonder how people even get into.
"Mum, dad, I want to do the luge"
"The what"
Sleep inertia is the main thing I struggle with, it's so bad!!! I managed to fall back asleep and miss a job interview that I was really feeling good about ๐ฅฒ
13.02.2026 11:23 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Do I know anyone with either narcolepsy or IH who would be up for talking a bit about it?
My blood tests were fine, so next step is to try to bug the GP for a sleep clinic referral but I don't meet their criteria apparently, lol and indeed lmao
Media coverage of Gaza has plummeted. So today on @thenation.com, we're doing something pretty special: we're only running pieces by people in and from Gaza.
We're calling it "A Day for Gaza." You can find links to all of the incredible pieces here. Please read! www.thenation.com/article/worl...
Ceiling cat looking down from the sky over Chesil Beach.
Fifteen years ago on this very day, I made this low quality photoshop of a photo I took in 2002, and somehow it became a meme. Youโre welcome.
04.02.2026 10:53 โ ๐ 1136 ๐ 321 ๐ฌ 17 ๐ 6"Hey, how do we reach out to women?"
"Makeup! Women is when wear makeup and spend lots of money on lipstick!!!!"
A screenshot from the BACP website, text reads "Discoveer why so many women over 50 struggle with their mental wellbeing and how therapy can help. Explore real stories, lipstick shades, and ways to access support today"
Times like this I miss twitter, because I want to see all my mutuals talking about the godawful BACP campaign. I mean, sorry, what is this. Explore real stories, lipstick shades, and ways to access support today!
03.02.2026 18:57 โ ๐ 9 ๐ 0 ๐ฌ 2 ๐ 0I owe money to SAAS (because I dropped out) and to my housing association (because of some fuckery when I switched to UC and my rent wasn't getting paid) and boy I really miss having money. Not even *good* money, just like "not feeling guilty when I buy something Not In The Budget"
03.02.2026 10:57 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Payday on Monday tho ๐
03.02.2026 10:47 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Applied for jobs because I have No Fuckin Money. Had to buy interview clothes. No Fuckin Moneyยฒ
03.02.2026 10:47 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0Yesss I've heard Rumours!!! God I hope so, healthcare admin is a pain
03.02.2026 10:46 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0There isn't an NHS app in Scotland, which has been a source of annoyance for me for years!
31.01.2026 12:42 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Nah, there's nothing like that in NHS Scotland
31.01.2026 12:41 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0"eat steak and eggs" ok Mr. Dodgy Tummy
29.01.2026 13:40 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Since they made me do an SAR just to see my blood test results, I decided to just ask for all my records from the last 3 years instead. Lol and, indeed, lmao.
29.01.2026 13:13 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0