@still.support.bsky.social
Process-oriented chronic illness management. No optimization, just observation. Evidence-based β’ Disability justice β’ Works at 20% capacity π Weekly on Substack: https://stillsupport.substack.com π§ Free trackers: still.support #ProcessNotGoals
Sometimes Physical Pain Isn't The Worst Part About Chronic Illness
"One cannot deal with chronic physical pain when they're already defeated mentally. At that point, you're too tired to even care anymore.": buff.ly/QGwUFjd
#ChronicPain #MondayBlogs #ChronicIllness #MentalHealth #InvisibleIllness
Sunday hit and my brain stopped working. I'd been tracking the data. I just wasn't reading it.
New Layer 2 post on reading cognitive-emotional patterns without turning your brain into a performance review.
stillsupport.substack.com/p/layer-2-ap...
#ProcessOverGoals #ChronicIllness
Sometimes the most powerful act is allowing yourself to be honest about how you feel. This quote pushes back against toxic positivity and makes space for real emotions.
#ItsOkayNotToBeOkay #MentalHealthMatters #EmotionalHonesty #BeKindToYourself #MensMentalHealth
"Now, I am in my late 40s & well into the joy that is #menopause, so I have long ago realised that rigid rules & #resolutions never work. We all have stories of being in mid-January & already having failed at the new ideas.": buff.ly/HN13hoT
by @beverleybutterfly.bsky.social
#disability #spoonie
I had the data. Entries going back weeks. Sleep quality. Energy levels. The whole baseline.
I just wasn't reading it.
Then the spiral started.
New post on the practice of retrospective workβreading patterns without optimizing them away.
open.substack.com/pub/stillsup...
#ProcessNotGoals
So right Christophe! Pattern Recognition driven by "patients" is the foundation.
28.01.2026 23:28 β π 1 π 0 π¬ 0 π 0
Throughput medicine rewards: π·short visits π·clear diagnoses π·protocol compliance π·symptom control Chronic illness requires: π·time π·iteration π·pattern recognition π·systems thinking These are structurally incompatible.
From π
"Throughput medicine rewards:
π·short visits
π·clear diagnoses
π·protocol compliance
π·symptom control
Chronic illness requires:
π·time
π·iteration
π·pattern recognition
π·systems thinking
These are structurally incompatible."
The US government lost more than 10,000 STEM PhDs last year, according to an analysis by Science of newly released OPM data, with 11 departures for every hire. And many OPM calls "voluntary" separations were probably pushed. www.science.org/content/arti...
27.01.2026 01:28 β π 357 π 260 π¬ 16 π 32New collaborative study on the risk and interpretation of 'breakthrough infections' amidst declines in vaccination rates and a sustained, national measles outbreak.
27.01.2026 14:55 β π 3 π 3 π¬ 0 π 0
WHO graphic titled βMeasles can be fatal β Know the symptoms.β A childβs face and body are shown with red spots. Labels point to symptoms: rash starting on the face and spreading over the body, fever, red and watery eyes, runny nose, small white spots inside the cheeks, and cough.
Measles can be fatal.
Do you know its symptoms?
π΄ Rash that starts on the face and spreads over the body
π΄ Fever
π΄ Cough
π΄ Red and watery eyes
π΄ Small white spots inside the cheeks
Seek health care if you suspect you or your child has measles. πbit.ly/4iq4nkD
The problem is that nutrition and ingredient safety arenβt binary. Forcing them into green/red categories can mislead more than it helps. So letβs break down how these apps work and why their approach can be problematic. Letβs discussβ¦
26.01.2026 13:55 β π 12 π 3 π¬ 0 π 0
(CNN) - The fast-growing measles outbreak in South Carolina is now the largest in the United States since the disease was declared eliminated in this country more than two decades ago.
@cnn.com
www.cnn.com/2026/01/27/h...
The chronic illness community knows this story.
We're always the collateral damage when "personal freedom" meets public health.
Immunocompromised people can't opt out of consequences.
How did we lose trust in science? How do we rebuild it?
#PublicHealth #DisabilityJustice #ChronicIllness
What "personal choice" actually cost:
- 3 weeks family quarantine
- Our business: catastrophic losses
- My other daughter's pregnant friend: exposed
- A 15,000-person concert: potential exposure
- Relationships: permanently damaged
The invisible infrastructure collapsed.
The source: a family who didn't believe in vaccines, picked up their daughter from an LDS mission in Poland, brought measles home.
They owned a large plant nursery. Never disclosed they were the source. Kept operating.
The outbreak spread. 7 confirmed cases.
![On April 5, 2011, a health-care provider notified the Salt Lake Valley Health Department (SLVHD) of an unvaccinated Salt Lake County resident aged 16 years with generalized rash
(onset April 4) and a 3-day history of sore throat and fever (101.7Β°F [38.7Β°C]) (Table). When investigated by public health officials on April 6, the patient had a morbilliform rash, cough, coryza, conjunctivitis, and Koplik spots, and reported no recent travel or contact with ill persons. Serum collected on April 5 was positive for measles immunoglobulin M (IgM). On April 7, SIVHD announced that a measles case had been confirmed. On April 8, a health-care provider notified SLVHD that an unvaccinated Salt Lake County patient aged 15 years had sought care in late March with generalized rash (onset March 21), fever (103.7Β°F [39.8Β°C]), cough, coryza, and conjunctivitis. The patient had traveled in Europe during March 3-17. No measles testing was performed during the acute illness. Serum collected on April 8 was measles IgM-positive. This patient had attended a school class on March 21 with the patient reported previously. Five additional Salt Lake County residents were
confirmed to have measles, with the last rash onset on April 17, 2011 (Figure).](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:kbspl6pkzjfvrxmtnbjavnnp/bafkreidgwim7rsu6caeyp6hf7lasbzbbfwzllkemovww2ntvj2mekieyqy@jpeg)
On April 5, 2011, a health-care provider notified the Salt Lake Valley Health Department (SLVHD) of an unvaccinated Salt Lake County resident aged 16 years with generalized rash (onset April 4) and a 3-day history of sore throat and fever (101.7Β°F [38.7Β°C]) (Table). When investigated by public health officials on April 6, the patient had a morbilliform rash, cough, coryza, conjunctivitis, and Koplik spots, and reported no recent travel or contact with ill persons. Serum collected on April 5 was positive for measles immunoglobulin M (IgM). On April 7, SIVHD announced that a measles case had been confirmed. On April 8, a health-care provider notified SLVHD that an unvaccinated Salt Lake County patient aged 15 years had sought care in late March with generalized rash (onset March 21), fever (103.7Β°F [39.8Β°C]), cough, coryza, and conjunctivitis. The patient had traveled in Europe during March 3-17. No measles testing was performed during the acute illness. Serum collected on April 8 was measles IgM-positive. This patient had attended a school class on March 21 with the patient reported previously. Five additional Salt Lake County residents were confirmed to have measles, with the last rash onset on April 17, 2011 (Figure).
In 2011, my fully vaccinated 16-year-old daughter contracted measles from an unvaccinated classmate.
She's Patient 2 in this CDC outbreak report.
Now in 2026, we're repeating history. Once again, the chronically ill and immunocompromised will pay the price. π§΅
pmc.ncbi.nlm.nih.gov/articles/PMC...
Thank You! Not just a "nice to have", it's a W3C Standard www.w3.org/WAI/tutorial...
27.01.2026 02:36 β π 2 π 0 π¬ 0 π 0
π I'm Drew, building Still - process-oriented chronic illness management.
Not about being better. About seeing what's real.
6 layers: daily stability to legacy. Free, privacy-first, evidence-based.
Latest: Layer 6 launched. bit.ly/4qDmHdn
#ProcessNotGoals #ChronicIllness #DisabilityJustice
Still is live. Writing about the gap between clinical approaches and lived reality with chronic conditions.
stillsupport.substack.com/p/the-night-...
