Experiences of Medical Care for ME/CFS around 2012
This form is for people who had contact with the medical profession in or around 2012 regarding ME/CFS - particularly where Graded Exercise Therapy (GET) or Cognitive Behavioural Therapy (CBT) wereโฆ
๐We are looking for people with ME's experience of the medical system in the UK c.2012 - especially GET/CBT.
Any first hand testimony would be greatly appreciated. It's research for a book & a chance to have your experience inform it's narrative.
๐๏ธ๐
forms.gle/2qxLgWouTNJQ...
20.11.2025 14:32 โ ๐ 9 ๐ 17 ๐ฌ 1 ๐ 0
I often get this when I wake up. I thought it was sleep paralysis (but without the scary hallucinations).
10.11.2025 22:28 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Why donโt they just drop the knitting part of the name, change it to yarn crafters or artists, then allow people to choose their own technique for each round?
10.11.2025 19:20 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
I used to eat them but started to get slight allergy symptoms each time so I stopped, just in case. Kind of the opposite of desensitising therapy.
Who needs peanut butter anyway when you can buy Biscoff spread?
09.11.2025 22:16 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
It would be life-changing for me to follow the article as I have a nut allergy, though not allergic to pine nuts.
09.11.2025 21:12 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
And pine nuts are seeds.
09.11.2025 21:04 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
Definitely life-changing if you are allergic to them! (Like me).
09.11.2025 20:50 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Square World Ventil8 Day poster on a blueโtealโmagenta gradient. Left: open window with sweeping arrows; below, a COโ monitor shows โ800 ppm.โ Right: stylized family silhouettes, an adult wearing a mask, next to a HEPA filter sending a bright clean-air arrow across the scene. Headline text reads โWORLD VENTIL8 DAY โ 8 NOVEMBERโ and โCLEAN AIR IS A RIGHT. PROTECT CLINICALLY VULNERABLE FAMILIES.โ
CLINICALLY VULNERABLE FAMILIES logo and World Ventilation Day logo
On #WorldVentil8Day we are reminding everyone:
๐จ Clean indoor air saves lives! ๐จ
Flu risks are high this year and ventilation, filtration, high-grade masks, and COโ levels still matter.
We are proud to be a founding supporter of
#WorldVentil8Day
08.11.2025 15:30 โ ๐ 35 ๐ 23 ๐ฌ 0 ๐ 1
Itโs like having a karate competition but round 4 is kung fu.
08.11.2025 21:32 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Iโm waiting for the crochet vs knitting debate to kick off. Slight mutterings so far about references to โhookโ and images of crochet in the titles. For the record CROCHET IS NOT A KNITTING TECHNIQUE. It is a separate yarns with its own terminology and techniques.
08.11.2025 00:36 โ ๐ 6 ๐ 0 ๐ฌ 1 ๐ 0
Was the opening scene in S10 Ep 1 of Shetland a sly nod to โNo Activityโ? Two cops on stakeout at a docks discussing dating with an informant in back. Tip turns out a dud.
08.11.2025 00:28 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
*knitting ๐คฆโโ๏ธ
03.11.2025 00:10 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Not quite the kind of marathon I was expecting/would take part in. I thought it was watching the whole thing, not running!
02.11.2025 21:42 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I guess there arenโt many people who can do both.
02.11.2025 20:31 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
If you take your hook out and pull, it does. Iโve had to frog a piece and start again a good few times. I use a safety pin if Iโm transporting a WIP. A good knot stops it once complete.
02.11.2025 20:23 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Two needles seemed complicated to me! I tried when I was younger but didnโt get on with it. Wonder if being left handed has anything to do with finding knitting more difficult?
02.11.2025 20:14 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Watching #GameofWool whilst wearing a crochet cardigan and sat under a crochet blanket. Surely crochet vs knotting is the ultimate contest! ๐งถ
02.11.2025 20:12 โ ๐ 4 ๐ 0 ๐ฌ 1 ๐ 0
I just missed the beginning. I was wondering whether crochet (my craft of choice) would get a look in.
02.11.2025 20:10 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Iโm confused. I thought #DownCemeteryRoad was set in Oxford? So far, identified at least 3 locations in Bristol, and Iโm only 30mins in. Things like this take you out of a show.
30.10.2025 00:12 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I donโt watch the non-celebrity version. I think itโs too exploitative. The stakes are lower in celebrity version plus I think they are more resilient than the general public, so the psychological fallout would be less. Also, some of them are so funny!
23.10.2025 22:45 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
If you are an #author of a book (about any topic) who has #MECFS #LongCovid #POTS #fibromyalgia #EDS or a related illness & would like your book to be included on Chronic Marketโs new book webpage for people to purchase or know of, fill out your bookโs details here:
docs.google.com/forms/d/e/1F...
18.10.2025 17:59 โ ๐ 25 ๐ 12 ๐ฌ 3 ๐ 0
Weโre just too busy or knackered to do anything about it!
14.10.2025 20:26 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Loving Riot Women. If I had the energy Iโd be bouncing โround the lounge like it was 1996. Damn you, concussion.
12.10.2025 23:09 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Plus punk is an attitude, not just a music genre. These women are busting out of their conformist roles, railing against establishment of marriage and caring responsibilities.
12.10.2025 23:06 โ ๐ 4 ๐ 0 ๐ฌ 1 ๐ 0
Iggy Pop not punk? Also, plenty of punk adjacent bands - Garbage, Hole, Skunk Anansieโฆ
12.10.2025 22:58 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0
Why? Because middle-aged women or because northern?
12.10.2025 22:01 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
England is now experiencing a significant Covid wave, after 10 months of relative quiet
The latest Covid situation in England and a look at where NHS services are as we head into winter
After a long pause, I've just done another England Covid & NHS update as we head into the autumn/winter season.
TLDR: we're in a significant Covid wave now, the NHS is stretched, get boosted if you're eligible.
christinapagel.substack.com/p/england-is...
10.10.2025 13:10 โ ๐ 878 ๐ 537 ๐ฌ 74 ๐ 69
I have a booster plus flu jab every year so it seems a bit crazy that I donโt get one this year.
11.10.2025 23:55 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Iโve written to my MP. Please consider writing to yours to extend the covid 19 booster to all who get the flu vaccine, as per previous years.
11.10.2025 21:24 โ ๐ 16 ๐ 15 ๐ฌ 1 ๐ 1
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