Buffie

played for 30 min and my hands gave up great
#hEDS

i'm gonna buy Hades II and either play it in 2 days or 2 years

I assume you've been to other locations already but I always like stopping by Kinokuniya (bookstore) since there's none where i live :)

Digital illustration fanart of the band BTS. Photos spread across the table, highlighting warm and comforting moments where the members laugh and enjoy themselves. In the middle is all 7 of them in pajamas, giggling and piling on each other, written words "what a relief that we are seven".

Bangtan is back MY SHAYLAAA (Ｔ＿Ｔ)

throwback to my Life Goes On fanart

MY SHAYLAAA T___T

just read Joon's Weverse post and sorta understand how people can go to war for 1 person

#BTS #RM #Namjoon #BTSFesta2025

I also got to meet a fellow Vietnamese person who was the head of the Hanoi Association of People with Disabilities and we had a lovely chat. I didn't know much about the disability movement in Vietnam and was filled with hope to learn more.

A professional photo of Buffie hunched over a music stand, drawing on her iPad, pursing her mouth in focus. Buffie is a Southeast Asian woman with black shoulder length hair, wearing a powder pink blouse and bright blue pants, sitting on an electric wheelchair.

Also look at this professional person doing professional things +

An information-packed, colorful digital illustration capturing the main ideas of the panel “Leading The Way: Featuring the Most Impactful Commitments for Disability Inclusion in Development Cooperation”. The title sits clearly in the middle, illustrated by three people with disabilities looking up and forward to the future. Fanning out from the title, a circle contains the commitments by the three co-hosts of the Global Disability Summit 2025: Germany, Jordan, and the International Disability Alliance. Surrounding the circle are 9 distinct sections featuring the commitments of 9 organizations, each illustrated with straightforward symbols and keywords. The sections are outlined with four alternating colors: yellow, green, orange, and blue. A light blue frame ties everything together as well as holds the event logos and the artist’s signature at the bottom. All the illustrations and texts are hand drawn and hand written, giving the artwork an organic look.

I realized I have not posted the full image on here. I'm very thankful for the opportunity to do #graphicrecording for the Commitment panel at the #GlobalDisabilitySummit 2025! It was a great learning opportunity to stroll around and see all the work being done around the globe!
#GDS2025 #GDS
+

the flavor is so rich!

omg i stumbled across a fellow Berlin graphic recorder :D

would you like to chat a bit to share experience? (no pressure of course)

however i also want to say that some parts of my life did change more positively after my disabilities got worse such as my research skills, my understanding of disability justice, etc. but i wish there were other ways to acquire those growth lol

absolutely, i saw a tiktok that compared having a chronic illness with someone having a child for the first time - your whole world is upended and you have so many things to consider now every time you want to do anything +

and i think if people actually meant to say "find joy despite it all" people can say that instead, because this phrase better acknowledge the impact of disability while still encourage joy :)

my disagreement was with the phrase "don't make your disability your personality" because it indicates a lack of understanding of how all-consuming my disabilities are and also the tone tend to be patronizing +

A sketchbook laid tilted, displaying a bright, colorful gouache portrait of a young Southeast Asian woman with shoulder length hair, cheekily glancing up. A brush and paint palette is included in the photo, as to suggest the process of how the portrait was painted. The vibrant red wrapping paper of Tony's chocolate is glued on the page to serve as the base for the portrait.

A zoom in of the person's face and hair, showing obvious thick brush strokes, especially the highlights in her eyes and glasses. Decorative stars drawn with colored pencil litter across her hair and face.

another sketchbook self portrait 🎨
i can never get my nose right 🥲 and yes that is Tony's chocolate as the background it's my favorite.

#gouache #painting #selfportrait #gouacheportrait #acrylicgouache #portraitpainting #dopamineart #tonyschocolonely

I understand the instinct to want to separate "disability" from "living your life" from "personality". But may I remind you of that Annie Dillard quote "How we spend our days is, of course, how we spend our lives"

I don't "let" my disability become my whole personality. It is already who I am.

As for hEDS (and its friends): I can no longer do a lot of activities that align with my identity that often/that well anymore. Whether it's drawing, painting, crochet, activism, hang with friends, or simply "have a think". I am more irritable, often not as sharp or funny as I want, (3/4)

I think for my neurodevelopment stuff or depression it's a bit easier to explain: this is how my brain has always worked. And I know "personality" is a complicated psychological concept, but for me my "self" reside in the brain, which is neurodivergent. (2/4)

I understand the intention behind this sentiment (that you should find joy despite it all), but it does reinforce this idea that "disability" and "the self" can be neatly separated.

Here's how my #EDS #autism and #ADHD influence "my whole personality" (1/4)
#chronicillness
bsky.app/profile/buff...

"Don't make your disability your personality"

Well if my disability is influencing how and even IF i can do things i that aligns with my identity/personality, it's a bit hard to not let it influence me.

#disabled #disability #chronicillness #spoonie

Happy Hanko de Mayo!!

I know I say this every week but the line up is crazzyyyy

i am *too* aware of EDS this EDS awareness month 🥲

I'm sorry to hear that even basic self care is hard right now :(
we're in this together

It's always nice to have internet camaraderie with fellow EDS-er 🥲

i'm spending #EDS awareness month appropriately: in a massive flare up, in bed, crying 🙃

i fucking hate chronic pain it makes me feel like i'm losing myself

It's no longer cold

hi Catherine, it's no problem at all! i appreciate you sharing my work 💕
I hope you had a great GDS :)

Colourful illustration, signed by @buffienguyen. It is a graphic recording. The centre is a blue circle with the heading LEADING THE WAY. Underneath is a gold banner that reads, featuring the most impactful commitments for disability inclusion in development cooperation. Above the heading are 3 people, from left to right 1 wears a blue headscarf, smiles and carries a stick, 2 has large round glasses, smiles and carries a pink book, 3 wears a blue suit, smiles, waves a small pink flag, and uses a wheelchair. A larger circle behind the 3 people includes words and drawings: Germany, BMZ, drawing of The Federal Government logo; inclusive and resilient cities and a drawing of tall buildings; drawing of the solar system above the word, 'INCLUSIVITY'. To the right of the 3 people are the following words with illustrations: IDA; STRENGTHEN organisations; pathways for YOUNG LEADERS; INCLUSIVE. Left of the 3 people are drawings, and these words: Jordan HCD; access; education; INCLUSIVE; political participation. Beyond the inner circles, there are 9 segments. Starting from the top left, heading right and around, numbered for ALT text, there are illustrated words as follows: 1. listening to the VOICES of OPD partners; POWER (an arrow points to) PARTNERS & COMMUNITIES; FUNDING VOLUME (with arrows pointing outwards); cbm. 2. EDUCATION CANNOT WAIT; monitoring; strengthening DATA & EVIDENCE; HOLISTIC understanding of disability. 3. Algeria MSNFCF; LEGISLATION; COLLABORATION; EDUCATION. 4. International COLLABORATION; United Kingdom FCDO; support for FAMILIES; assistive technology. 5. IDB; INVESTMENT in disability inclusion - skills - social protection - universal design. 6. Zero Project; 2025-2028; Zero Project Conference. 7. Valuable 500; leverage, Influence of 500 partners; REPORTING, LEADERSHIP, REPRESENTATION. 8. UNICEF; supporting GOVERNMENTS; increase INVESTMENT; DATA. 9. Australia DFAT; increase support for OPD; international disability rights DIALOGUE. PERFORMANCE target.

Global Disability Summit today in Berlin. The following graphic recording by buffie nguyen @buffienguyen.bsky.social is brilliant. Here is my attempt to describe this great illustration in ALT text. Please comment on how it works for you.
Thank you. Here it is: