Mica

A stacked bar chart (oriented horizontally) labeled: Living with ME (myalgic encephalomyelitis / chronic fatigue syndrome) Each horizontal bar is a disease status: Pre-ME, Mild ME, Moderate ME, Severe ME, Very Severe ME. The width of each bar represents how much energy is available in each status (100, 50, 25, 12.5, and 6.25 respectively). Each bar is divided into sections for how one might allocate their energy: hygiene & nutrition (gray); caregiving, cleaning errands (red); work (orange); exercise (yellow); friends (green); hobbies (blue); fun (purple). With worsening ME, the hygiene & nutrition takes up a larger proportion of total available energy and the amount of energy available for all other parts of life shrinks. Mild ME has most things cut in half, with exercise cut smaller. Moderate ME removes exercise altogether, and everything else shrinks. Severe ME has only tiny slivers of red, orange, green, blue and purple. Very Severe ME has only a tiny sliver of green.

I've been thinking about how to explain the challenge of living with ME/CFS and created this cartoon visualization.

Imagine the life of someone without ME is a rainbow of activities that each take a certain amount of energy.

ME limits your energy, and thereby the vibrancy of your life.

23.02.2025 19:35 — 👍 252    🔁 115    💬 22    📌 23

Why is it necessary to treat children, adolescents and young adults with long covid (and ME/CFS)? Dear all,

CORRECT LINK

WHY IT IS NECESSARY TO TREAT CHILDREN AND YOUNG PPL WITH LONG COVID (and ME/CFS) with trials or off labels, NOW AND NOT IN TEN YEARS?

here is the answer

open.substack.com/pub/danilobu...

02.02.2025 16:27 — 👍 25    🔁 4    💬 1    📌 0

Black text on yellow background. Even if your initial Covid infection is mild and you're vaccinated you can still go onto develop SEVERE long Covid.

If you have a 'mild' COVID infection you will still have: • x2.2 the risk of dying 1-3 months after infection • an increased risk of heart, liver, kidney, brain and many more disorders • increased risk of having a pulmonary embolism for 6 months after infection. x5 risk [1-3m], x2 risk [3-6m] Sources: https://go.nature.com/46Z9Nf6 https://go.nature.com/3H4obIH

If you have a 'mild' COVID infection you will still have:
• x2.2 the risk of dying 1-3 months after infection
• an increased risk of heart, liver, kidney, brain & many more disorders
• increased risk of having a P.E. for 6 months after infection.
Sources:
go.nature.com/46Z9Nf6
go.nature.com/3H4obIH

19.01.2025 21:32 — 👍 20    🔁 8    💬 3    📌 0

A screenshot of the change or petition showing 4000 signatures

Please consider supporting Line with her legal costs to avoid her being detained in a psych ward when she has M.E. (she’s found a supportive and nice lawyer to help) you can PayPal her here: www.paypal.com/paypalme/neb...

31.01.2025 16:09 — 👍 12    🔁 9    💬 1    📌 0

Covid-19 deaths in aged care are now double what they were at the peak of pandemic - Hellocare With nearly 5,000 Covid-19 deaths in aged care since mid-2022, critics argue that poor vaccination rates and systemic failures are leaving aged care residents dangerously exposed.

COVID-19 deaths in aged care are now double what they were at the peak of pandemic.

🔹During the height of the pandemic, 18 Feb 2020 to 19 May 2022 - 2,415 COVID deaths

🔹Between 27 May 2022 to 16 Jan 2025, that number surged to 4,778 deaths

hellocare.com.au/covid-19-dea...

03.02.2025 00:31 — 👍 247    🔁 105    💬 1    📌 13

I imagine it's because that's what the majority of doctors will tell you to do when you present with long COVID. When you've actually got a serious problem that cannot be solved by changing your thinking or some me vitamin D.

29.11.2024 23:56 — 👍 3    🔁 0    💬 1    📌 0

😂😭

29.11.2024 23:54 — 👍 0    🔁 0    💬 0    📌 0