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IfOnly_1971

@befree71.bsky.social

Life revolving around disability, MS, coffee, volunteering and home. All rather dull really.

51 Followers  |  67 Following  |  626 Posts  |  Joined: 26.12.2023  |  1.9128

Latest posts by befree71.bsky.social on Bluesky

Car went for it’s service this morning. Collection time was between 8am and noon. Got up and ready just in case. 7.53am ffs! Hope they weren’t expecting sociable too!

17.11.2025 10:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I hope all is safe now.

09.11.2025 06:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’ve lived in a few different walks of life, there’s no getting away from it.
My neighbour was red keyed a couple of years ago. The noise was horrendous and took them at least 5 minutes to gain access. Made it pointless. One quick flush, evidence gone.

08.11.2025 16:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Disposing of a vinyl MDF wrapped bath panel at the local centre. They charge for DIY waste. With a permit I can visit with one item a week for free. Went through the hassle online and at the entrance.
Asked where exactly to dump it. Told in general waste. What’s the point……

08.11.2025 12:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

When you realise it’s only Tuesday……..

04.11.2025 08:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Husband used to refer to his large record collection as his pension. No idea if they’re worth much. Hi-fi broke and not replaced. If I lived alone, I don’t think I’d bother with a Christmas tree.

19.10.2025 13:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Mine died a couple of days before our youngest 16th. He inherited all of his dad’s football shirts. The eldest has his many records. This was over a decade ago. I’m more than happy to have a minimalist approach, but during COVID and the boys having disposable income, they went online shopping.

19.10.2025 12:51 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’m mid 50’s too but have 2 adult sons at home, dead husband. I have mine and their random shit too. I frequently purge but they get upset lol

19.10.2025 08:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œLet these years ahead be your treasure years. You don’t need to be famous. You don’t need to be flawless. You only need to show up – fully – for the life that is still yours.”

03.10.2025 10:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

RIP Dame Patricia Routledge

An except taken from an interview published last month

β€œI am writing this to tell you something simple: Growing older is not the closing act. It can be the most exquisite chapter – if you let yourself bloom again.”

Cont…

03.10.2025 10:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

My family have no other MS history. Just most other conditions!

25.09.2025 10:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It appears my MS isn’t typical. I’ve not relapsed for many years but the first few caused permanent damage. I don’t meet the criteria for DMD’s. I just slowly decline.
All power to you for the next 40 years!

25.09.2025 08:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yes, he was. Still am with a stick. Obviously everything is harder but I manage.

25.09.2025 06:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I totally agree. 35 years ago, all I had was a booklet from the MS society to refer to. My consultant just said I’d still be walking in 10 years. No Dr Google back then, a blessing really.

24.09.2025 05:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’ve wondered if early or late onset is better. Early, you grow with it and the limitations. Later, had a life but resent the changes.

Admin have a lot to answer for. They’re not protecting the younger ones but leading them away from reality.

23.09.2025 10:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

What difference does it make. Some of these groups are akin to toddler groups, couldn’t stand those either.

23.09.2025 09:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image Post image

Keith, the spider evaded capture last night upstairs but ended up in the laundry trug in the kitchen. Rehomed outside! Adult son was no help and screamed, running up the stairs.

23.09.2025 09:36 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Stuck in Sainsbury’s click and collect, behind the worlds slowest packer!!!

19.09.2025 09:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sneezing fit whilst drinking tea. Tea sloshed down me. Yet more laundry!

17.09.2025 14:53 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’m not on any DMD’s, so not immunocompromised. See what happens on the day.

17.09.2025 14:51 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I’m in the UK. The criteria is concentrating on immunocompromised people or of a certain age. I’m neither. But on a deeper dive, I could be. I found another document listing MS. Just hope the pharmacist accepts this.

17.09.2025 05:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Discovered I’m no longer eligible for the Covid vaccine, even though I have MS and asthma. Going to be a fun winter…….

16.09.2025 19:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

3 in the household received the test emergency alert. One son received it twice. Told him they knew him well, he rarely listens the first time lol

08.09.2025 06:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

With hindsight, I could go back 5 years prior to diagnosis. As your one was incidental, it may not be that much of a stretch.

22.08.2025 13:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Neighbour is away without their car. Last night their car alarm was persistently going off. Hopefully the battery is flat!
No reason for it though externally.

13.08.2025 07:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hard physio session completed. Legs went to jelly! Laid on my stomach and the physio was lapping the leg I needed to move. Great idea but I can’t feel it!!

28.07.2025 12:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Just watching 911 with the background music of Ozzy Osbourne Crazy Train. News flash on my phone to say he’s passed way! Freaky. #RIPOzzyOsbourne

22.07.2025 18:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Saw neuro consultant today. I think the message got back to him that he was being a dick last year. MRI showed no changes.

21.07.2025 15:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Attended an MS exercise class then straight to physio this morning. Quick nap this afternoon but still knackered and in so much pain. They’re sadists!

14.07.2025 14:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Way too hot to function! So much to do!

11.07.2025 13:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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