Up to one in five kids experience #LongCOVID after infection, affecting memory, focus, and processing speed. Without support, students fall further behind. Schools must recognize post-viral cognitive impairment and provide accommodations to help kids succeed. Ignoring this issue fails our children.
04.03.2025 14:25 โ ๐ 15 ๐ 5 ๐ฌ 0 ๐ 2
COVID has been barely discussed by this current govt. Scrapping free tests, making welfare harder to access/making time off work less tenable, and avoiding COVID as a policy issue, all increase our collective risk of #longCOVID.
Nobody likes this reality - we have to deal with it anyway. #nzpol
04.03.2025 07:13 โ ๐ 19 ๐ 12 ๐ฌ 0 ๐ 0
Don't stop talking about #LongCovid
04.03.2025 14:26 โ ๐ 9 ๐ 5 ๐ฌ 0 ๐ 0
YouTube video by VJNeurology
Pathophysiology of acute and post-viral neurologic complications of COVID-19
4/19/21, VJNeurology: "Pathophysiology of acute and post-viral neurologic complications of COVID-19"
Nath: "Millions & millions of anticipated individuals with these long-haul symptoms, understanding..the pathophysiology of that is absolutely critical.'
www.youtube.com/watch?v=LC30...
04.03.2025 14:39 โ ๐ 14 ๐ 4 ๐ฌ 3 ๐ 0
The US just voted alongside Russia, Belarus and North Korea against a UN resolution to support Ukraine.
This is a wake-up call for all those cheerleading Trump in our country.
24.02.2025 17:49 โ ๐ 2434 ๐ 787 ๐ฌ 94 ๐ 50
Youโve been clear in saying that Covid has not gone away. You ask people to wear masks at your events. But that attitude is not necessarily where the rest of the world is. How do you think about continuing to take precautions and advising others to do so when it feels as if society has moved on? I do it for a bunch of reasons. Firstly, I have learned that I enjoy not being sick. I know that the cost of long Covid is real and substantial, and I donโt want to run that risk lightly. I also know that I have many friends and people Iโm close to who are immunocompromised. So for the sake of the people around me, I also donโt want to get sick. When I do events, I wear a mask for those reasons, and because I know that every time I do a talk, while the vast majority of people in the audience have probably moved on, there are going to be other people who havenโt. I think it makes a huge difference to them to have the person at the front of the stage wear a mask. It tells them, Itโs not weird. So I do it for that reason, too. In terms of holding this line at a point when a large swath of society has moved on, I have written a lot about the panic-neglect cycle.
I appreciate this response from Ed Yong on why he requests that people mask at his events. www.nytimes.com/2025/02/22/m...
23.02.2025 02:52 โ ๐ 3646 ๐ 1138 ๐ฌ 35 ๐ 90
RTHM's Take:
"This study adds even more compelling evidence that we should be urgently developing and trialing multiple therapies (and combinations of therapies) that could help clear persistent SARS-CoV2 proteins in Long COVID patients to see if doing so can improve symptoms and reduce any elevated markers of neurodegeneration."
โ Jennifer Curtin, MD, RTHM Co-Founder
06.02.2025 19:35 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0
New Study:
SARS-CoV-2 spike protein can persist in the brain
Recent research reveals that the SARS-CoV-2 spike protein can persist in the brain.
This discovery suggests a potential link to chronic inflammation & an increased risk of neurodegenerative diseases following acute COVID.
Could this explain some of the long-term neurological effects of COVID-19?
06.02.2025 19:31 โ ๐ 8 ๐ 3 ๐ฌ 2 ๐ 0
Chronic Pain Afflicts Billions of People. Itโs Time for a Revolution.
As many as two billion people suffer from it โ including me. Can science finally bring us relief?
#ChronicPain Is a Hidden Epidemic. Itโs Time for a Revolution. As many as two billion people suffer from it โ including me. Can science finally bring us relief? by Jennifer Kahn www.nytimes.com/2025/01/12/m... via @nytimes.com
12.01.2025 20:44 โ ๐ 42 ๐ 15 ๐ฌ 2 ๐ 1
I really wish #PEM was just worsened fatigue.
It is so, so much more than that.
#MECFS
12.01.2025 22:02 โ ๐ 43 ๐ 15 ๐ฌ 3 ๐ 0
"Lockdown" sounds so dramatic. What I remember most is ordering pizza, working from home, curbside grocery pickup, public masking indoors, patio lunches, and long walks. The retelling sounds like forced confinement in a Syrian prison. Somehow, I survived. /s
23.12.2024 20:50 โ ๐ 394 ๐ 61 ๐ฌ 13 ๐ 2
FOI Shows COVID Is Still Striking Albertaโs Acute Care Centres | The Tyee
More than 300 new outbreaks and 3,000 individual infections raise questions about prevention.
Legislation states that we must protect all staff from preventable illness. But for COVID, it really seems like that is no longer applicable. And b/c a substantial % of infections, even in young, healthy people, go on to cause long term illness, why has it been allowed to infect people at work.โ
24.12.2024 20:08 โ ๐ 208 ๐ 76 ๐ฌ 6 ๐ 1
'Festive flu' warning: 'Tidal wave' of infections leads to 70% jump in hospital cases
The boss of NHS England is urging people to get vaccinated before Christmas to protect against serious illness and "festive flu".
Many of those admitted for influenza will then get Covid-19 in hospital through nosocomial infection. Co-infection with both flu and Covid leads to increased morbidity and mortality, and increased duration of hospital stay. Yet little to no airborne infection control.
news.sky.com/story/festiv...
12.12.2024 12:38 โ ๐ 282 ๐ 113 ๐ฌ 11 ๐ 4
Our Trustee @margaretohara.bsky.social has worked with researchers at Toronto University & fellow #LongCovid advocates in the UK, Ireland, USA & Canada to uncover the experiences of activity pacing in #LongCovid. Thanks to Margaret & everyone else involved! ๐
13.12.2024 13:03 โ ๐ 19 ๐ 9 ๐ฌ 1 ๐ 0
Tucked into the Cass Report, deep in the appendices, you'll find that they reviewed thousands of patient records and found no one who'd been harmed by puberty blockers and fewer than 10 detransitions.
11.12.2024 11:33 โ ๐ 5612 ๐ 1998 ๐ฌ 32 ๐ 28
The real lesson from Zeraatkar et alโs review work is not that GET and CBT are probably effective for Long COVID, but that five years into the crisis, a mere 24 clinical trials have published results for a condition which affects 400 million people worldwide (8), of which only 4 studied drug interventions. Long COVID research should learn from the mistakes of ME research, and swerve away from an inexplicable focus on rehabilitative approaches to the production of well-designed and ambitious trials (9) into therapeutics that target the immune dysfunction, persistent pathogens, vascular abnormalities, and mitochondrial dysfunction that have been shown to underlie Long COVID symptomatology (10,11).
Here is the conclusion of our rapid response: we need serious, well-designed and ambitious clinical trials that target the mechanisms which have already been shown to dysfunction in people with Long COVID
04.12.2024 12:54 โ ๐ 116 ๐ 35 ๐ฌ 5 ๐ 5
The economic impact of failing to prevent airborne transmission of COVID is enormous. @laylamoran.bsky.social @gwynnemp.bsky.social
11.12.2024 12:04 โ ๐ 49 ๐ 18 ๐ฌ 4 ๐ 3
If the Public had been given this figure instead of the 7 million figure then the perception of risk on COVID would be very different.
11.12.2024 12:29 โ ๐ 35 ๐ 13 ๐ฌ 2 ๐ 0
Please share
11.12.2024 08:46 โ ๐ 39 ๐ 62 ๐ฌ 2 ๐ 0
Declare SARS2 a public health emergency. It was a mistake to remove the emergency state, Sent the wrong message and that's when all countries felt permission to "return to normal"
11.12.2024 12:51 โ ๐ 65 ๐ 4 ๐ฌ 2 ๐ 0
โHospital acquired covid has a 10% fatality rate and yet many facilities are doing absolutely nothing to protect the most vulnerable among us.โ
I too have been closely following the UK Covid Inquiry. Abysmal, shocking and intentional.
Weโll see no accountability from those largely responsible.
25.11.2024 12:15 โ ๐ 155 ๐ 58 ๐ฌ 4 ๐ 3
A plea to maskless health-care workers from vulnerable patients - Healthy Debate
Health-care workers have a responsibility to protect their vulnerable patients. Our lives are in your hands.
"If youโre a health-care worker who sees a patient in a mask, put one on for them. Donโt make them ask. Donโt psychologize them. Donโt betray the trust theyโve shown you. Theyโve put their lives in your hands. Donโt take that for granted, itโs not an easy thing for many of us to do"
18.11.2024 04:35 โ ๐ 2013 ๐ 747 ๐ฌ 77 ๐ 50
That burning is pleasurable, that which enlightens the darkened path of others
Forsan et haec olim meminisse iuvabit
Credo nos in fluctu eodem esse
LFC
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
๐ https://crunchme.org/
Physician. Recovered, Long Covid 2022. continues
John@100apples.com
Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. โCOREโ circ, oxygen, rebuild energy
Tx Long Covid & MECFS
Chief Med Officer Renegade Research
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
Cough as a Digital Biomarker and First Digital Therapeutic (DTx) for chronic cough @ hyfe.com, coughpro.com | prev. founder of wandering prevention tech for dementia | interested in Digital Health | my opinions
Love everything Gut Brain Axis related.
Gastroenterologist
POTS, MCAS, hEDS, Long Covid, VCS
LongCovid & ME/CFS conference project. Weโre a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky
Team hope/good trouble/go high๐
https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
ME/CFS & postakute Infektionssyndrome (PAIS). Prรคvention & Primรคrversorgung.
- Univ.Prof. und รrztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar โ2020
#AMWA-PATH
#DoctorsForAmerica
#MomsDemandAction
#LongCOVID Doc
TIC gynecology
sexmedmenopause.nm.org
Posts my own & not employerโs
Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| โ MD |
Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
๐ท๐โฎ๏ธ๐๐๐ซ๐ฉผโฟ๏ธ๐ฃ๏ธ
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
LโAQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-รชtre des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc
#EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid