Cyan (Sian)

A Call for the Universal Use of Respirators in Healthcare - Add Your Name In an effort to advance global public health through turbulent times, a group of experts from around the globe in medicine, public health, law, industrial hygiene, and other disciplines, met at the Un...

Doctors & scientists urge WHO: N95s—not surgical masks—must be the standard in healthcare.
Add your name before Oct 31 👇

tinyurl.com/RespiratorsN...

#RespiratorsNotSurgicals #ProtectHCWs

a lot of things are happening, & a lot of folks are looking for something actionable to do—if you cannot do anything else, let wearing a respirator in your daily life be the tide-shifting behavior you seek. normalizing using this mitigation tool matters. seriously, watch👇🏻
www.tiktok.com/t/ZTjso3yCs/

Community Voices - “ME/CFS Is..” - Open Medicine Foundation For ME/CFS Awareness Day, individuals shared powerful messages about the reality of living with ME/CFS. Explore the gallery of voices and help raise awareness.

How do you fight for visibility when you’re too sick to leave your bed?

This May, individuals around the world used their limited energy to share powerful messages, completing the sentence “ME/CFS is…”

Explore community voices on our website: www.omf.ngo/community-vo...

If you’re in the UK, please sign this petition to force the government to respond to requests for increased protection against airborne viruses.

This is incredible. This computer science professor makes his students play a game that simulates the risks and repercussions of getting Long COVID, and then he's like, hey anybody want a mask? And: "approximately 95 to 100% of students who’ve played the game now wear masks in his classroom."

Director David Lynch Gives Health Update, Can No Longer Leave House The 'Blue Velvet' director says he's now housebound with emphysema, but will "never retire."

David Lynch passes away at 78 after a battle with emphysema.

He had stated in 2024 that he could no longer leave his home due to the high risk of Covid.

If more people would mask up, we wouldn’t have to isolate. “You do you” policies leave people like Lynch with no choice but to “just stay home”

Like with Brianna Ghey the fact these horrific attacks are done by young people is so scary, a whole generation is growing up having learned to hate and destroy us

There Is No Safe Word How the best-selling fantasy author Neil Gaiman hid the darkest parts of himself for decades.

An incredibly well-researched piece on the horrors of Neil Gaiman. It is extremely upsetting and explicit. Please be careful reading it.

www.vulture.com/article/neil...

"I want to see the ME Association flourish. I want to see it lead with innovation and compassion and make a real difference to people with ME. That's hard when the person in charge is mocking patients and ignoring concerns"

A screenshot of the change or org petition showing there are 837 signatures calling for the chairman of the ME association to step down

I want to see the ME
Association flourish. I want to see it lead with innovation and
compassion and make a real difference to people with ME.
That's hard when the person in charge is mocking patients and ignoring concerns.

www.change.org/p/me-associa...

Sign the Petition ME Association Chair Neil Riley must step down

In PEM from advocacy last few weeks but just coming on to share this follow up letter and petition to ME Association calling for accountability and action.

www.change.org/p/me-associa...

Tried to distract myself from the assisted suicide bill news today by watching a comfort show... This episode contains sexual harassment and assault.

I guess I'll continue crying instead.

In societies that demonise long term chronically sick people, fail to cure them and instead demand they get back to work, euthanasia should not exist

If you are new to Bluesky you might not know about Jamal- but he’s been here a long long time and once the entire site did a fundraiser to help him and his 13 family members. He still needs help in order to hopefully evacuate and survive the winter www.gofundme.com/f/sspqf-10k-...

I've already prepared my mum that this is what will be pushed on me. It's only a matter of time.

October is typically a bad month for me, but this November feels very Octobery...

Having a body that can't handle stress with everything that's going on in the world right now and a lot of personally triggering stuff is very unhelpful.

I've lost so much functioning this year, this body is basically decorative now.

Assisted dying bill’s ‘strict’ safeguards to include long jail terms for coercion Labour MP’s proposed legislation for England and Wales also includes powers for judges to cross-examine patients

I would feel easier with assisted dying if proponents admitted “safeguards” are rarely going to be foolproof. Many disabled people are highly aware of the dangers that come with relying on the authorities for your wellbeing. No bill can undo prejudice. www.theguardian.com/society/2024...

Thank you for this! I'm not well enough to be on social media much so I miss a lot. Grateful to be able to follow more like minded people

Other creatives who still care about, y’know, not killing each other, let’s build this little community!

this is your yearly reminder that activated charcoal, probably the most popular thing to use to make food black, interferes with your absorption of medication, including birth control. Enjoy the season safely.

Sign the Petition Dear Warden, Senior Management, and Members of Council, We, as students of Goldsmith’s MA Black British History (past and present), are writing to express our outrage and deep concern regarding the pr...

Save Black British History at Goldsmiths

www.change.org/p/save-black...

I spend most of my time in bed, in silence so being able to do little projects like this (even if it takes me weeks) feels good.

#Pride #DisabilityPride #SewingProject #StillShielding #PwME

A rectangular shaped cushion with the Progress Pride flag on it. There are horizontal stripes in red, orange, yellow, green, blue and purple with an additional herringbone pattern along the right side featuring black, brown, light blue, pink and white stripes. It's leaning against three heart shaped cushions in purple, pink and blue, all on an olive green sofa with a cream sheepskin rug.

The other side of the rectangular shaped cushion on the same sofa, this side has the Disability Pride flag on it. It has a charcoal grey background with a diagonal band from the top left to bottom right corner, made up of five parallel stripes in softer tones of green, blue, white, yellow and red.

Wanted to try out a new sewing technique so made myself a cushion cover with the Progress Pride flag on one side and the Disability Pride flag on the other, finished it off with black edging and an invisible zip.

It’s #MEAwarenessDay 💙 I got sick with a virus the summer of 2015 and had to quit everything. I’m grateful I was able to find ways to make art again, but I’m still very limited in what I can manage. Here’s some ways you can enjoy my art & help the #MECFS community

Thanks for that info!
Looks like it's not available in the UK, only for nebulisers. Not sure why that is, will add it to the list of things to research when my brain allows.

It's so annoying!
I react to everything so I'm lucky my Dr will look for alternatives, the powder is technically meant for kids (6 months to 5 years) but the lower dose is actually better for me too.

I hope you find something that helps.

So much awfulness going on everywhere. Feeling pretty useless as I'm still not really functioning... But I have kept myself alive this past week.
Might not seem like much but I'm proud of myself.

I've not noticed it make any difference for me. I have inhalers for breathing issues we think are caused MCAS and they help (slightly) with wheezing but I also take Montelukast powder (tablets have lactose that I react to) which helps me a bit with the air hunger.

Yes! Who do I need to pester?! Could finally get the accessible bungalow of my dreams and get to go outside!

My brain isn't up to maths right now but 5 years should add up to a decent amount!