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Cort Johnson

@cortjohnson.bsky.social

Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012

2,779 Followers  |  85 Following  |  121 Posts  |  Joined: 03.10.2023  |  1.882

Latest posts by cortjohnson.bsky.social on Bluesky

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Tackling the World's Most Complex Diseases: Amatica's ME/CFS and Long COVID Project - Health Rising Amatica's huge gene expression database attempts to identify which subsets a person belongs in and which treatments that may work for them.

Tackling the Worldโ€™s Most Complex Diseases: Amaticaโ€™s ME/CFS and Long COVID Project #MECFS #LongCOVID www.healthrising.org/blog/2026/01...

19.01.2026 21:00 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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"Something in the Blood" Again! ME/CFS and Long COVID Serum Locks the Muscles Down - Health Rising Geoffโ€™s Narration The GIST Muscles on a Chip Whoa, another muscle study. We recently reported on a proteomic study suggesting that muscle repair problems contribute to post-exertional malaise in ME/CF...

โ€œSomething in the Bloodโ€ Again! ME/CFS and Long COVID Serum Locks the Muscles Down www.healthrising.org/blog/2025/12... #MECFS #longCOVID

11.01.2026 22:21 โ€” ๐Ÿ‘ 17    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3 - Health Rising A Dutch ME/CFS autopsy report findings multiple severe problems in the HPA axis of ME/CFS patients.

ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3 www.healthrising.org/blog/2025/12... #MECFS

13.12.2025 21:21 โ€” ๐Ÿ‘ 19    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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A Fibromyalgia Autoimmune Subset Rears Its Head - Health Rising More evidence is presented that the most severely ill fibromyalgia patients have an autoimmune disease.

Fibromyalgia Autoimmune Subset Rears Its Head www.healthrising.org/blog/2025/11... #FM

13.12.2025 21:02 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2
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A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next) - Health Rising Solve ME Catalyst Award winner Dr. Iwasaki explains a subset of long COVID patients may have an autoimmune disease. Now she moves onto ME/CFS.

A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next) #longcovid #MECFS www.healthrising.org/blog/2025/11...

10.12.2025 21:51 โ€” ๐Ÿ‘ 11    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway - Health Rising Complex, chronic illness experts discuss what GLP-1 agonists can and can't do in diseases like ME/CFS, long COVID, and POTS. Plus new long COVID trials.

The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway #MECFS #FM #longCOVID www.healthrising.org/blog/2025/11...

04.11.2025 21:07 โ€” ๐Ÿ‘ 11    ๐Ÿ” 2    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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The Brain Disease: Huge Fibromyalgia Genetic Study Highlights the Brain and Offers New Treatment Possibilities - Health Rising Geoffโ€™s Narration The GIST ย  Just months after the publication of the first large ME/CFS GWAS study comes an enormous FM GWAS study. Notice how these two diseases seem to be marching hand in hand. Bot...

@bsky.app The Brain Disease: Huge Fibromyalgia Genetic Study Highlights the Brain and Offers New Treatment Possibilities #FM

www.healthrising.org/blog/2025/10...

21.10.2025 19:22 โ€” ๐Ÿ‘ 7    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New Epigenetic Diagnostic Test For ME/CFS Wows ... But Can It Hold? - Health Rising Geoffโ€™s Translation The GIST ย  โ€œWith this breakthrough, we are proud to enable a first-in-class test that can address an unmet need for a quick and reliable diagnostic for a complex, challenging-to-id...

New Epigenetic Diagnostic Test For ME/CFS Wows โ€ฆ But Can It Hold? #MECFS www.healthrising.org/blog/2025/10...

18.10.2025 18:22 โ€” ๐Ÿ‘ 10    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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RECOVER's 2nd Round of Long COVID Clinical Trials Shows Progress... and Limitations - Health Rising The RECOVER Initiative announces four more clinical trials for long COVID including low dose naltrexone, bariticinib, GLP-1 agonists, and stellate ganglion blockade.

RECOVERโ€™s 2nd Round of Long COVID Clinical Trials Shows Progressโ€ฆ and Limitations healthrising.org/blog/2025/10... #longCOVID

11.10.2025 21:38 โ€” ๐Ÿ‘ 6    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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In Good Health: How Chronic Illness Redefined My Relationship with Food - Health Rising In Good Health cookbook by Rachel Riggs

In Good Health: How Chronic Illness Redefined My Relationship with Food - Rachel Riggs #MECFS and Complex Chronic Illness Cookbook has arrived! www.healthrising.org/blog/2025/10...

01.10.2025 23:58 โ€” ๐Ÿ‘ 6    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Is the Long COVID Field Missing a Major Opportunity? - Health Rising Geoffโ€™s Narration The GIST ย  From viral persistence to complex immune studies, to tissue sampling, to assessing heavy-duty immune treatment trials and large treatment trials, long-COVID researchers ar...

Is the Long COVID Field Missing a Major Opportunity? #longCOVID www.healthrising.org/blog/2025/09...

25.09.2025 20:28 โ€” ๐Ÿ‘ 6    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The Promise of Vagus Nerve Stimulation - and the No Brainer Long COVID Trial Underway - Health Rising Vagus nerve stimulation could reduce inflammation, pain and stress in ME/CFS, fibromyalgia and long COVID. A long COVID trial is underway.

The Promise of Vagus Nerve Stimulation โ€“ and the No Brainer Long COVID Trial Underway #MECFS #longCOVID #FM #POTS www.healthrising.org/blog/2025/09...

18.09.2025 17:40 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 3
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Gut Reactions: BioMapAI Points to Multiple Dysregulated Systems in ME/CFS - Health Rising BioMapAI study suggests the gut problems in ME/CFS are driving other system malfunctions and symptoms.

Gut Reactions: BioMapAI Points to Multiple Dysregulated Systems in ME/CFS #MECFS www.healthrising.org/blog/2025/09...

14.09.2025 16:41 โ€” ๐Ÿ‘ 15    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Surprise! The Senate Bill Includes "Some of the Strongest Support for ME/CFS in Years": Plus, Taking it to the House - Health Rising The Senate Appropriations bill provides strong support for ME/CFS and long COVID. Now it moves to the House.

Surprise! The Senate Bill Includes โ€œSome of the Strongest Support for ME/CFS in Yearsโ€: Plus, Taking it to the House #MECFS
www.healthrising.org/blog/2025/08...

13.09.2025 19:58 โ€” ๐Ÿ‘ 11    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? - Health Rising Could ME;/CFS and fibromyalgia be on the narcoleptic disease spectrum? After decades of work on these diseases, Dr. Perrino believes so...

Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? #MECFS #FM

www.healthrising.org/blog/2025/08...

26.08.2025 22:48 โ€” ๐Ÿ‘ 9    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks - Health Rising Tonmya is the first FDA approved drug for use in fibromyalgia in 15 years. Seth Lederman, CEO of Tonix Pharmaceuticals, talked about how the drug was developed, what it does, and when it will become a...

Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks #FM

www.healthrising.org/blog/2025/08...

22.08.2025 19:00 โ€” ๐Ÿ‘ 11    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Jarred Younger Finds a VERY Inflamed Brain in ME/CFS - Health Rising Geoffโ€™s Narration The GISTย  ย  โ€œWeโ€™re seeing things in the front of the brain, weโ€™re seeing issues in the back of the brain, weโ€™re seeing a lot of things in betweenโ€ฆthis is a brain-wide issueโ€. Itโ€™s sa...

Jarred Younger Finds a VERY Inflamed Brain in ME/CFS www.healthrising.org/blog/2025/08... #MECFS

10.08.2025 17:24 โ€” ๐Ÿ‘ 39    ๐Ÿ” 20    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1
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Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study - Health Rising A B-cell depleter called daratumumab does well in an early trial in ME/CFS. A larger trial is underway.

Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study www.healthrising.org/blog/2025/07... #MECFS

04.08.2025 14:24 โ€” ๐Ÿ‘ 23    ๐Ÿ” 7    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 1

โ€œExcited Every Dayโ€: Dr. Michael Peluso on LIINC, Long COVID and ME/CFS #longCOVID #MECFS

30.07.2025 17:39 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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TREATME: the Open Medicine Foundation's Mammoth ME/CFS and Long COVID Treatment Survey Results - Health Rising The massive TreatME survey assessed the effectiveness of 150 treatments in ME/CFS and long COVID.

TREATME: the Open Medicine Foundationโ€™s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID

www.healthrising.org/blog/2025/07...

13.07.2025 19:31 โ€” ๐Ÿ‘ 29    ๐Ÿ” 17    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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A Neuroinflammation Buster? Jarred Younger on tFUS Stimulation for ME/CFS, Fibromyalgia and long COVID - Health Rising Transcranial focused ultrasound (tFUS) may be able to reach deep enough in the brain to help people with fibromyalgia, ME/CFS and long COVID.

A Neuroinflammation Buster? Jarred Younger on tFUS Stimulation for ME/CFS, Fibromyalgia and long COVID #MECFS #longCOVID #fibromyalgia #FM www.healthrising.org/blog/2025/06...

23.06.2025 15:55 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Why the Carnivore Diet Could Backfire in ME/CFS and Long COVID: A Closer Look at the Risks - Health Rising Dr. Courtney Craig explains why carnivore diets may seem helpful in the short run for people with ME/CFS and long COVID they are not the answer.

Why the Carnivore Diet Could Backfire in ME/CFS and Long COVID: A Closer Look at the Risks #MECFS #longCOVID www.healthrising.org/blog/2025/06...

06.06.2025 22:52 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM and Long COVID? - Health Rising GLP-1 agonists like Ozempic could be surprisingly helpful in diseases like chronic fatigue syndrome, fibromyalgia and long COVID.

The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...

01.06.2025 18:03 โ€” ๐Ÿ‘ 21    ๐Ÿ” 6    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Sickening...

01.06.2025 18:02 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.

Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID #MECFS #longcovid www.healthrising.org/blog/2025/05...

17.05.2025 17:45 โ€” ๐Ÿ‘ 28    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
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Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia - Health Rising Geoffโ€™s Narrations The GIST The Blog ย  A trip to Seattle to see Dr. Ruhoy held up the blogs a bit but theyโ€™re back! Exercise physiologist Rob Wustโ€™s โ€œWearable heart rate variability monitoring identif...

Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia #MECFS #FM #LongCOVID

www.healthrising.org/blog/2025/04...

09.05.2025 17:32 โ€” ๐Ÿ‘ 15    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Stymied, Moving Forward or Both? The Long-COVID (and ME/CFS) Clinical Trials Dilemma - Health Rising Big pharma is largely staying clear of long COVID trials but the many small and some quite large clinical trials are underway provide hope.

Stymied, Moving Forward or Both? The Long-COVID (and ME/CFS) Clinical Trials Dilemma www.healthrising.org/blog/2025/04... #MECFS #longcovid

04.05.2025 14:50 โ€” ๐Ÿ‘ 3    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Crazy Times: Trump Administration Pulls Millions of Dollars From Long COVID Grants (and Then Restores Them?) Plus ME/CFS, Antiviral, Vaccine Funding Hit - Health Rising The Trump administration pulled the plug on $45 million of long COVID studies and then two days later reversed itself. What the heck is going on?

Crazy Times: Trump Administration Pulls Millions of Dollars From Long COVID Grants (and Then Restores Them?) Plus ME/CFS, Antiviral, Vaccine Funding Hit #longCOVID #MECFS
www.healthrising.org/blog/2025/03...

31.03.2025 20:00 โ€” ๐Ÿ‘ 11    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Post Coronavirus Vaccination Study Sparks Controversy - and Finds Immune Breakdowns - Health Rising Post coronavirus vaccination study finds immune breakdowns similar to those found in chronic fatigue syndrome and long COVID

Post Coronavirus Vaccination Study Sparks Controversy โ€“ and Finds Immune Breakdowns www.healthrising.org/blog/2025/03... #longCOVID #MECFS

02.03.2025 18:58 โ€” ๐Ÿ‘ 12    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2
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Long COVID, ME/CFS and the Trump Administration: Where We Stand Now - Health Rising Geoffโ€™s Narrations The Blog The GIST ย  The GIST is on the bottom right โ€œMay you live in interesting timesโ€ Apocryphal Chinese curse Weโ€™re living in interesting times, thatโ€™s for sure. This blog attemp...

Long COVID, ME/CFS and the Trump Administration: Where We Stand Now #longCOVID #MECFS

www.healthrising.org/blog/2025/02...

25.02.2025 17:08 โ€” ๐Ÿ‘ 14    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@cortjohnson is following 20 prominent accounts