Dx Revision Watch

"March meeting update "CDC's National Center for Health Statistics will not hold a Spring Coordination and Maintenance (C&M) Committee Meeting. Currently, we plan to hold a C&M meeting in fall 2025.​ "This change will not affect the ICD-10-CM code updates that were approved in 2024. Those updates will be implemented on October 1, 2025. Plans for the March 2025 ICD-10-CM Coordination and Maintenance Committee meeting are changing. "We will post additional information as it is available."

Update on status of March 18-19 ICD-10-CM Coordination and Maintenance Committee virtual public meeting.

This meeting has been cancelled!

cdc.gov/nchs/icd/icd...

#NCHS #CMS #CDC #ICD10 #WHO #diagnosiscoding #procedurecoding

A Covid Story
How my entire extended family got Covid even when Covid is "over." JESSICA WILDFIRE

www.okdoomer.io/a-covid-story/

I hope you can bring to light what is needed to avoid what happened in the CFS advisory committee.

I am not surprised HHS is dragging their feet!

Especially now that there is social media that can more quickly expose the kind of shenanigans they used with CFSAC to block myalgic encephalomyelitis.

Grief Stories #5: Colleen shares a long-term perspective on ME/CFS Listen to this episode from Post-Exertional Mayonnaise on Spotify. Colleen has been living with ME/CFS since 1989, as she says 'it's been a while'. Colleen oversees two facebook groups: ME-ICC & Othe...

I recently spoke to Colleen who has lived with MECFS for over 30 years for Post-Exertional Mayonnaise podcast. It was great to hear her perspective in this shorter episode.
open.spotify.com/episode/0unL...

Also available via our YouTube channel.

Here's why you really don't want to get #LongCovid

Opinion piece from New Zealand by science communicator & ME + Fibromyalgia sufferer Louise Thornley on the impact of Long #Covid. "This life-changing sickness stops us from doing what we want. The loss is profound”
www.thepost.co.nz/nz-news/3501...

Feeds that may interest the ♿️ community include:

#Disability Feed
bsky.app/profile/did:...

#ChronicIllness
bsky.app/profile/did:...

#MECFS
bsky.app/profile/did:...

LongCovid
bsky.app/profile/did:...

Covid Cautious
bsky.app/profile/did:...

Disability Justice
bsky.app/profile/did:...

Shout out to long time myalgic encephalomyelitis advocates

Anything you want to tell @thesicktimes.bsky.social about the CFS Advisory Committee?

Advocates worked hard only to experience

- recommendations ignored/blocked
- patients crash from giving testimony that was ignored
- members harassed..

Today @thesicktimes.bsky.social: I wrote about a potential change to how the U.S. Census tracks disability, which would lead to significant drops in estimates of how many Americans are disabled, including estimates of #LongCovid.

Battling long Covid with drugs The challenge of finding drugs for a poorly understood disease with many symptoms is clear. Clare Sansom looks at the work going on to help the people suffering in its shadow

There are an estimated 65 million people worldwide who have at one time received a diagnosis of ‘post-acute #Covid syndrome’, more commonly known as #longCovid. @ninanotman investigates the drugs in development to try to help them

www.chemistryworld.com/features/bat...

#PwLC #LC #PASC #postcovid

The doctors with long COVID who have been left behind Long COVID is putting health care workers out of work with serious consequences for everyone

"The doctors with #longCOVID who have been left behind"

Article talking about the pandemic's impact on health care workers. Many have Long #Covid and are either unable to work or have had to significantly reduce their hours.

www.salon.com/2023/10/25/t...

#PwLC

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Meghan O’Rourke on a medical system not built for chronic illness — and the ‘invisible kingdom... "We need, in chronic illness care ... a patient-centered approach in which the patient's desires and wishes are foremost," said writer Meghan O'Rourke at the #STATSummit.

Meghan O´Rourke on a medical system not built for #chronicillness - and the 'invisible kingdom' that could spur change

Interview with Megan O´Rourke, journalist and author of the book "The invisible kingdom".

www.statnews.com/2023/10/23/c...

#spoonie #longtermillness

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News in Brief - October 2023 This thread has a Science for ME 'News in Brief' post for each week in October 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to...

Science for ME weekly news about ME/CFS and Long Covid.
News, advocacy, articles
Coming events
Research news
Research on ME/CFS and Long Covid
You don't have to be a forum member to read the news, but all are welcome to join and participate in discussions.
www.s4me.info/threads/news...

The ME Association announces new post-mortem research partnership with Manchester Brain Bank - The M... The MEA Ramsay Research Fund will be funding detailed examinations of the brain, spinal cord and dorsal root ganglion.

The ME Association has formed a partnership with Manchester Brain Bank to allow ME/CFS patients to donate their brain and spinal cord to post-mortem medical research.

meassociation.org.uk/2023/10/the-...

MEA says: "The upper age limit of 50 is in place to try and ensure that any abnormalities that are found in the brain and spinal cord are not age-related and are more likely to be relevant to ME/CFS."

Let them eat old vaccines AND plague Hybrid cruelty

The British government gave more than 2.3 million vulnerable and older people a covid vaccine that isn’t matched to the currently dominant covid strains. And they did it to use up old stock and save money. Story here: donotpanic.substack.com/p/let-them-e...

How junk science set a country's health and welfare policy A story about a knight

For years little progress has been made treating diseases like myalgic encephalomyelitis/chronic fatigue syndrome. Why? Because establishment doctors collaborated with governments to label chronic illnesses as psychosomatic to restrict state benefit payments donotpanic.substack.com/p/how-junk-s...

Lecture slide with quotes claiming that migraines are caused by psychiatric issues

Lecture slide showing information on stomach ulcers and how they are not caused by stress

Lecture slide with quotes claiming that AIDS was caused by psychological factors, with original article in which these quotes appeared

Lecture slide with quotes claiming that multiple sclerosis is caused by early childhood trauma and lack of positive bonding experiences, with original source (from 2002)

It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).

Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"

Tropes now recycled for #MECFS & #LongCovid

You might have heard that Boris Johnson scrawled an expletive onto a document describing #LongCovid when managing the pandemic as UK prime minister.

He also scrawled "Gulf War Syndrome stuff", another dismissive slur aimed at post-viral illness sufferers

This is the picture (cf shorturl.at/npY28 )

Covid deaths are on the rise again, so what happens? Mask-wearing in hospitals is scrapped | George ... The only masking that’s going on is that of the government’s continued failure to get to grips with the virus, says Guardian columnist George Monbiot

"There’s plenty of masking, but not the kind that prevents infection. The government is masking its failure. It’s masking the ableism its rhetoric has encouraged. It’s masking the cruelty of a system that shuts down the lives of clinically vulnerable people." — @georgemonbiot.bsky.social

My column this week is about how even the most basic Covid precautions have been stood down, leaving clinically vulnerable people trapped in their homes and accelerating what threatens to become a major surge this autumn. TL;DR: they couldn't give a damn about us. www.theguardian.com/commentisfre...

All three of us have worn FFP3s in any indoor setting, taxis etc, except at home, since the beginning of the pandemic. Wear them at home if we have a tradesman working in the house.

Welcome @psvbluemts.bsky.social to Bluesky. Here is a quick guide to how Bluesky works.

bsky.app/profile/rori...

14) The short answer: Stop people getting COVID; no COVID, no Long COVID. 15) For Long COVID specifically - i) research into cause and treatment is the medium and long-term priority (NIHR and MRC are funding among others), ii) setting up specialist NHS clinics which can provide care for those who need it now, and also accumulate experience of how to manage it. Medicine improves by repeated clinical observation as well as formal scientific studies. 16) For those who [have] been vaccinated and then acquire Covid it is highly likely that the vaccine will reduce the probability of the long term problems associated with severe disease. We cannot yet be confident that the effect of vaccination will be on the prolonged symptoms in those who do not have severe disease. The interaction of the immune system with post-infective syndromes is complex (some are probably caused by prolonged immune activation), and it is therefore not a given that a more active immune response to infection...

Prof Chris Whitty's "Short note on Long Covid" - 31 May 2021.

"The short answer: Stop people getting COVID; no COVID, no Long COVID."

#UKCovidInquiry

covid19.public-inquiry.uk/documents/in...

Collusion to exclude Long Covid – the long history of energy-limiting disability denial by insurance firms In the era of Long Covid, vested interests continue to bolster the discredited theory that energy-limiting diseases such as ME (aka Chronic Fatigue Syndrome) are ‘all in your head’ - despite its patent absurdity in the face of overwhelming scientific evidence. Sir Simon Wessely, former president of the Royal College of Psychiatrists and current non-executive director on the board of NHS England, has made a career out of “psychologising” post-infectious energy-limiting conditions. He popularised the renaming of Myalgic Encephalomyelitis as the vaguer American term Chronic Fatigue Syndrome in the 1980s, and recast it as a mental health issue. Read more here>>

From July:
Collusion to exclude Long Covid – the long history of energy-limiting disability denial by insurance firms
www.dailymaverick.co.za/article/2023...

Screenshot from American ME and CFS Society newsletter
mailchi.mp/9b03d55518be...

#MEcfs #CFS #PwME #LongCovid #PwLC

Good to see both of you masking, Ed.

Hello, Brian. Good to see you here.

Minimal s/e following Wednesday's Pfizer Comirnaty XBB.1.5 vax: tender, achy arm (now resolved) and felt a bit sleepy, yesterday, but that's been it. Flu vax and possibly shingles tomorrow morning.

Nurse who did mine said she'd had negligible s/e with XBB compared to previous vaxs, so I'm hoping I won't feel too bad, tomorrow. (I've felt pretty rough on the day following all previous jabs and I've got the flu jab and possibly also shingles booked for this Saturday.)

To Poole ferry terminal for C-vax. As usual, we were the only ones in the waiting area wearing masks. First C-vax I've been eligible for for over 12mths. Both of us (one >75 group, one >65 group) received Pfizer XBB, so it was worth waiting until October for the newer vaccine.