Tom Parsons

Ex GB News editorial director John McAndrew now the BBC Director of News Programmes
Robbie Gibb was an editorial advisor for GB News prior to its launch in 2021 & is now on the BBC board & a member of the BBC's editorial guidelines and standard committee
So Farage is their guy!
#BBC #Reform

Necessary but not sufficient.

He knew. And still appointed him.

Starmer needs to go.

Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital

A new go fund me for Savannah has been set up to cover medical costs and ME-literate nursing support. I have just donated.

www.gofundme.com/f/severemerg...

The right is always happy to weaponise mental health and disability. It just depends on the day whether they’re arguing you’re incapable because of it or you’re faking having it.

The Norwegian ME Association's fundraiser ME-fondet has donated 4 million NOK (296 161 GBP - 397 504 USD) to the Daratumumab study. That's 8 million NOK in total from the fundraiser to the study thanks to the effort from many! In a news update from the ME Association today, it's estimated that 3 500 000 NOK (259 141 GBP - 347 816 USD) is still lacking, and the ME-fondet will work to get the study fully funded within the year. Half of the participants have been recruited and half of the recruited have received their first infusion with Daratumumab or placebo. The research team is also running a pilot study on severe ME-pasients and have expanded it with five more participants.

Good news from Norway 😀

More money has been now raised for a placebo-controlled trial of a promising drug for ME/CFS and the trial is continuing to recruit.
www.s4me.info/threads/norw...

Info in English on the trial & how to donate here
www.me-foreningen.no/om-oss/stott...

#MEcfs #PwME #CFS

Ignoring the most severe cases of Long COVID not only hinders our understanding of the disease's underlying biology but also distorts public perception of its seriousness. It risks diminishing the urgency of funding future Long COVID research, even though the condition already constitutes a major public health crisis. Several research groups have already shown that severe patients can be included. With proper organization, modest logistical support, and home-based blood collection or bedside testing, participation can be made accessible to those too ill to travel. As RECOVER-TLC moves into its next phase of trials, it must ensure that patients with the most severe disease are included, and other studies should follow that lead.

On the dangers of ‘mildwashing’ #LongCovid

thesicktimes.org/2026/01/13/s...

11/

“(Contd) The inability to participate in daily activities leads to a profound loss of identity. Clinicians must recognize that they are treating a patient whose entire life structure has been destabilized.”

#MEcfs #CFS #PwME

10/

“The ripple effect touches every facet of life. Relationships strain under the weight of the illness. Financial stability often collapses (contd).”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #pwme

2/
“You might think you know what tired feels like. But this is different. Research suggests [ME/CFS] creates a wall. A brick wall. Even simple mental exertion or physical or mental activity hits you hard. It is called post exertional malaise. It feels like your battery is not just empty but broken”

Remember when every leader wanted their picture taken with Greta? She is still that truth teller, they just can't face the truth of their crimes.

I've never seen it 😱

March 31, 2020:

Schools have become cesspools for cold and flu, but they don't have to be: Ontario School Safety The volunteer organization Ontario School Safety is calling on the provincial government to improve air quality in schools as flu spreads.

"People do not have to get repeatedly sick just because their kids attend daycare or school or take a school bus.”

👏🏼 👏🏼 👏🏼

ottawa.citynews.ca/2025/12/21/s...

Screenshot of my 3-column letter

Just doing a clear out and found this letter of mine in the ME Association magazine in response to the psychiatrist, Peter White.

In my humble opinion, since 2000 he has done more harm to #MECFS patients than anyone else in the world.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME

“We were treated as the enemy."
“I felt very written off by society.”

We are still treated as the enemy, or at best as pests to control.

We are definitely written off by society, but more than anything by the medical profession itself, which somehow has zero obligations to do anything here.

"Our societal bias...is playing out right now in how we understand and discuss #LongCovid, and as we have done in relation to #ME for decades. I think one of the main reasons for why we are no further in finding a cure for those conditions is that so many don’t believe that exercise can ever harm."

Aberdeen woman reveals chronic fatigue nightmare after struggle to prove she wasn’t just ‘tired’ Amanda Stephen says she was never believed by doctors who thought she was just depressed - but hopes a corner is now being turned. Amanda Stephen suffers from ME. Image: Kath Flannery/DC Thomson Amanda Stephen suffers from ME. Image: Kath Flannery/DC Thomson

Sympathetic article in a Scottish local newspaper

www.pressandjournal.co.uk/fp/politics/...

“There’s plenty of cases where folk have done the graded exercise, and now they’re in wheelchairs,”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

And please also, AGAIN, never forget that they are inherently unethical to use because no one gave permission for their research or writing to be used in it. It is all stolen, and if you're using the plagiarism machine, please keep that in mind.

I am pretty sure I will never get this! I keep scrolling past it today and puzzling over it.

I bet it's really obvious, isn't it?

This is WILD.

Power goes out in San Francisco and the robot cars, needing the lights to "self" drive, all stop at once, blocking streets and emergency vehicles - which are needed more than ever in a black out!

We knew AI causes power outages. Turns out it also makes them worse by being stupid.

Screenshot of page 1 of 2 of the response from the (UK) ME/CFS charities alliance to the infamous Royal Colleges report on CFS in 1996

(I'm just doing a clear out)
This is the response from the (UK) ME/CFS charities Alliance to the infamous Royal Colleges report on CFS in 1996.

Up to then things had seemed to be gradually improving before this heralded a period when CFS & GET sadly took over

#MEcfs #CFS #PwME

1/

Great to be referred to as a 'blocker' to the taxpayer getting a home - although as that epiphet is regularly applied to wildlife, at least I'm in good company!

The language being used by this government is deliberately divisive. Solidarity with bats, newts, swifts & disabled people everywhere!

Of all the sins of AI, this is an unexpected and deeply annoying one

I’m pissed that we’re all going to have a shitty 10-15 years economically because a dozen techboys believed that it was possible to write code to the point that the program could write better code and eventually either kill us all or make us immortal, and so they spent $1.5tn for $41bn in revenue

Worlds richest families have never been richer - Walton's lead with net worth of $513bn

This is obscene. Why can't other politicians say that?

The 25 richest families are collectively $358.7 billion richer than a year ago, with a combined fortune totaling $2.9 trillion.

Job links for those posts with our team:
www.imperial.ac.uk/jobs/search-...

Come and join us at Imperial College to work a project looking at mechanisms in Long Covid and ME/CFS
We're looking for:
A keen, experienced Research Nurse
A gifted molecular immunologist with a strong bioinformatics background
www.imperial.ac.uk/.../descript....
www.imperial.ac.uk/.../descript....

1) Prof. Scheibenbogen announced that the biopharma company Sanofi is willing to support a drug trial on ME/CFS led by the Charité.

Sanofi also expressed an interest in gaining a better understanding of the disease and its mechanisms.

Welcome to the UK. Where you go to prison for 18 months for anti-immigration tweets. This is insane

Welcome to the UK where a right wing academic seeks to defend a man who wrote:

'Head for the hotels housing them and burn them to the ground.'

By describing that incitement as "anti immigration"

1) This factsheet for medical professionals received a lot of response and discussion.

Some people felt it was dismissive of several findings in the ME/CFS field, so I want to give some more background and context.