Notes from a sickbed by tessa brunton is a good graphic novel about having mecfs, might be more accessible for effort/energy. i'd always rec disability visibility to someone new to being sick/disabled. invisible kingdom is good and relatable if denser (and ends in partial remission)
17.07.2025 17:43 — 👍 7 🔁 0 💬 0 📌 0
we're all just one bad interaction with the state away from living our worst nightmare
22.05.2025 16:14 — 👍 1 🔁 0 💬 0 📌 0
Woo! Well deserved, congrats
06.04.2025 20:21 — 👍 1 🔁 0 💬 1 📌 0
"I want to find a way to write that allows us to take the sharp edges the world has left us with, and turn those broken pieces outwards. I want us to be able to use them to cut the world as we move through it in order to rip it apart so we can make a new world"
A H Reaume
20.03.2025 00:38 — 👍 1 🔁 0 💬 1 📌 0
i knew it'd be this bad, anyone who was paying attention could have told you it'd be this bad. i just didn't realize how hard it would be to endure it.
and it's only feb
02.02.2025 01:01 — 👍 1 🔁 0 💬 0 📌 0
Queer disabled nerd trapped in Texas
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
Passionate about: ME/CFS, moths, native plants, early music
#visibleapp
trapped in bed with gregor samsa
Bedbound ME/CFS/Long Covid
Probably thinking about Wonho & Monsta X.
Writer & Narrative Designer | Previously: Castle Rock, Channel Zero, Billions, Animal Logic | Aspiring Necromancer | https://kristenbatko.com/ |
Extremely online internet gremlin & plague banisher 🥄💜 @roxiqt on TikTok 🦝 shop.roxiqt.com ✨ she/they 🌻 Toronto, ON 👻 @frightaboutnow.com
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No petitions.
https://rfh1955.blogspot.com/
Writer and poet | Editor of The Yale Review | Professor of Creative Writing at Yale | playing with a Substack about writing
Most recent book: THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, which was a finalist for the nonfiction National Book Award.
The young person's guide to conquering (and saving) the world.✨
Sign up for our politics newsletter: http://tnvge.co/PZWnEym
Disabled with Long Covid, slowly picking my life back up. 🏳️⚧️
Opinions = mine
Shouting into the void about chronic illness, philosophy of medicine and design.
If I want advice, I'll ask for it.
If I want to hear about the merits of a biopsychosocial framework, my account has been hacked.
Journalist on pause w/ #LongCovid #ME/CFS ☿
Journalistin @dossier.at
https://eja-kapeller.info/
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
📚The Collected Schizophrenias, The Border of Paradise
🏆 Best of Young American Novelists, Whiting Award, NYT Bestseller
🎓 Writing classes @ unexpectedshapeacademy.com
🇹🇼🌈♿️ she/her
🌱My interesting website @ esmewang.com
Lifelong student and cat parent.
She/they
I acknowledge that I am living on the traditional land of the Wadawurrung people, and pay my respects to their Elders, past, present, and emerging.
I don't respond to small talk, but light up for deep questions
Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.