Carl

Bannon, Epstein, Trump, Farage, Putin all seem to have remarkably similar aims. Sure it’s just a coincidence and nothing to be concerned about.

Comments disabled obviously.

This guy gets it.

The Chronic Constellation- the Double Trifecta of Co-morbid Conditions The Chronic Constellation- a look at the collection of co-morbid conditions that we see common in the hypermobile and autistic community.

The RCCX hypothesis *may* explain why #hEDS and the #HSD come with so many comorbidities:

ohtwist.com/the-chronic-...

#EDS #CFS #meded #EhlersDanlos #hypermobility #CAH #ME #Spoonie #POTS #MCAS #MyalgicE #MedTwitter #NEISvoid

I don’t think that position would win a referendum. Not even close. But there does need to be more debate about closer relations with the EU. It remains a monumentally stupid decision to leave, more so when you consider the deal we had.

Should definitely be more discussion about it. 💯

The problem is that rejoining on our previous terms is very likely off the table as far as the EU is concerned. And it’s very unlikely that UK would vote to rejoin without those same terms being applied. Joining single market or free trade agreement are probably best hope.

Same with other post “viral” illnesses - ME, POTS, Dysautonomia etc. can be triggered by any immune stimulus including vaccines, stress and overtraining. At least one type of ME appears to be autoimmune. This nasal vaccine could be amazing, but also cause issues for some people. Just like vaccines

Precision Medicine Required For ME/CFS? A Deep Genome Dive Uncovers Many Possible Causes - Health Rising A deep dive into the genome of ME/CFS patients points to many genetic causes of ME/CFS most of which impact energy production, the metabolism, and blood flows.

www.healthrising.org/blog/2026/02...

Image of a DNA double helix against a soft blue background with light particles. The Action for ME logo appears in the top right corner. Text on the image reads: “Research News – SequenceME and Long Covid study launches. The world’s largest long-read, whole-genome study of any disease.”

Quote from Action for ME CEO Sonya Chowdhury.

Quote from Complex Disorders Alliance CEO Amy Rochlin.

Quote from Schmidt Iniative for Long Covid CEO Dr John Redd

Today we’re delighted to launch Sequence ME & Long Covid - the world’s largest long-read, whole-genome study of any disease 🔬
🧬 This £20 million ground breaking initiative will explore the root causes of ME and Long Covid, with the aim of accelerating progress towards diagnostics and treatments.

The Sunday Times Tax List dropped & we’ve got a couple questions…

Why did only 100 people pay more than £11m in tax when the UK has 156 billionaires?

Why are some worth £10bn+ still paying less than £11m?

& why does Ed Sheeran always make the list?

Lets find out...🧵1/10

It could be the immune stimulation protects against other pathogens. It could be the “healthy vaccinee affect” where only those of good health actually get the vaccine in the first place. Asking this question is frowned upon here.

Interesting study including rates of neurological side effects. Sadly doesn’t include POTS, ME/CFS etc.

Makes the point repeatedly that research like this can make vaccination safer by analysing who is at risk and changing schedule to reduce that risk. Exactly!

Great study. Shame that POTS, Dysautonomia, SFN, ME/CFS weren’t included.

Even accepting that these can be triggered by vaccines (as well as viruses, stress, overtraining etc) would be a good start. At the moment patients are dismissed then take to social media for help. Which isn’t great for anyone.

Well agree with you 100% about your current administration, first prior in the US is getting rid of them.

Having a pathway where those affected by chronic inflammatory conditions ME, POTS, Dysautonomia etc, generally dismissed by doctors for decades, would be a good start.

Maybe choose them more carefully. “Flooded with questionable reports” Suggests “anti vax” were flooding the system with reports - no evidence of that exists according to your own linked article. It’s a common tactic to dismiss those of us harmed by our vaccines.

Too much stress on the body. It’s like an autoimmune reaction to stress. Like the body sees any stress response as a pathogen.

OK, but that’s different to saying the system was flooded with false reports which is what you claimed above.

From your linked article;

“Anyone who receives a vaccine authorized in the United States can report an adverse event to VAERS”

So anti vax would have to get vaccinated to report?

"We don't have evidence that there is widespread fraud or gaming of the system,"

We hear this a lot with actually very little evidence to support it. Even if it were true, all the more reason to have a proper pathway within the NHS to evaluate the evidence and make a judgement about causality etc. Not dismiss patients as is the current situation.

https://doi.org/10.2165/00007256-200232030-00003

https://ylmsportscience.com/category/overtraining/

thank you for all your excellent digging around

will have to dig myself through seven years of folders
of saving studies for more details/examples

but as lifelong endurance athlete
first thing I personally realized is
#PEM feels EXACTLY like overtraining-syndrome
ie. waking up run over by a truck

I didn’t say it should be automatic. But being ill enough to be forced to stop working, yet not then be entitled to any other support shows how broken the system is. Many with the same illness as me also fail to get support, and they aren’t as fortunate to have a pension. Agree it needs fixing.

Patient advocates often get mislabelled as anti vax to dismiss their efforts to improve this area. I’ll shut up and never post about what happened to me again if the right processes are put in place to support those affected.

Getting vaccinated benefits everyone, but society must meet its obligations to support and research those rare cases where it goes wrong. In that respect it is currently failing massively. Hopefully UK covid inquiry will make recommendations to improve, but that shouldn’t be required.

People absolutely should get vaccinated. Both my children are up to date. But, the safety net for the rare cases where it does go wrong is not up to scratch. There is no pathway for suspected AE in the NHS, MHRA does not track chronic reactions, and VDPS doesn’t recognise multiple conditions.

Haven’t antivirals been trialed for long covid and ME previously?

Presume this combo will be trialled on long covid patients soon? And an ME cohort as well hopefully.

Ill health retirement and not entitled to any other support. PIP is most suitable, but as my condition fluctuates it was rejected. Been advised to appeal, but shouldn’t be required. VDPS needs overhaul as not fit for purpose either.

bsky.app/profile/carl...

Cutting the rates of PIP for new claimants would be a cut to PIP, the only difference being when you developed your disability.

The poor communication and last minute changes have created a lot of confusion and distress for people affected. I think Labour would do well to acknowledge that.