Free the cord custom tshirt with giraffe and green awareness ribbon. Me with a painful look. Filter over the phone of broken glass.
Hard to believe itโs been six years since my neurosurgery for a rare disease. I often think about how differently things could have turned out โ and Iโm endlessly grateful to still be able to walk, even when itโs difficult, and to work in DC doing what I love. #TetheredCord #RareDisease #ChronicPain
07.10.2025 13:19 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Medical gaslighting with chronic illness.
The conference starts tomorrow. Don't miss out!
Register here: www.awarenessforpotsies.org
#POTS #ChronicIllness #ChronicPain #MedicalGaslighting
05.06.2025 18:34 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 1
Medical gaslighting with chronic illness. A crowd of people sitting in an auditorium
Excited to join the Awareness for POTSies virtual conference this Saturday! Honored to be part of a powerful lineup raising awareness and advocating for those with chronic conditions.
Register here: www.awarenessforpotsies.org
#POTS #ChronicIllness #ChronicPain #MedicalGaslighting
02.06.2025 14:01 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
Looking forward to presenting at the A4P conference!
โ
๏ธ Head over to their website to register! www.awarenessforpotsies.org/conference
#MedicalGaslighting #ChronicPain #POTS #ChronicIllness
30.05.2025 02:17 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
Get ready! ๐ CoMorbidityCon 2025 is almost here โ and itโs completely FREE to attend!
๐ Open to anyone living with these conditionsโor those who support them. Please share widely with your community!
๐
Register now: chronicmigraineawareness.org/comorbidityc...
#CoMorbidityCon
26.05.2025 14:18 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Graphic with a stethoscope and a doctorโs arm, displaying the text 'CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.' The Bateman Horne Center and MERC logos are at the bottom, with a background of a deep blue gradient.
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely availableโdesigned to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
09.05.2025 19:56 โ ๐ 152 ๐ 91 ๐ฌ 15 ๐ 19
Cute smiling pug
Happy 3rd Birthday, Queen Cirilla of Puggington! ๐
#DogsOfBluesky #Pug
24.03.2025 19:04 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0
#DogsOfBlueSky #Pomeranian #Twins #Pug #Floof
18.03.2025 00:52 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Happy St. Patrick's Day! Three cute pups, four leaf clover, horse shoe, rainbow, pot
๐
18.03.2025 00:04 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0
Five years and counting for me. #LongCOVID
15.03.2025 16:06 โ ๐ 9 ๐ 4 ๐ฌ 1 ๐ 0
I felt it was fitting to share a part of my journey for #RareDiseaseDay so people new to this world know that they are not alone.
#ItsNotAnxiety #ChronicIllness #ChronicPain #MedicalGaslighting
2/2
28.02.2025 16:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by Dr. Melissa Geraghty
Rare Disease Day Video Feb 2023
I created this video in 2023. Since then, I have been diagnosed with numerous rare diseases and now have over 50 medical conditions.
youtu.be/8ppMtvhs8x8?...
1/2
28.02.2025 16:17 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
๐๐ผโโ๏ธ Nothing helps me with it (typical!) but I've heard of others benefiting from sleeping on an incline to take pressure off the area. Also heat or ice depending on preference.
26.01.2025 22:08 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
6. If someone is masked (me) and you are not and it's a big waiting room that's not crowded, don't f'n sit next to them! I will not hesitate to give you the look. ๐ท๐
To conclude, try to suck less people.
๐๐ปFeel free to add your own waiting room etiquette tips below.
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
5. Don't have private conversations about C. Diff and poop with graphic details loudly on the phone. Glad to know you were exposed to C. Diff and are now right here (This person is married to loud cell phone guy. See #4.).
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
4. Phone = silent. There are sick people & people who have sound sensitivities. We don't want to hear the game you are playing on the loudest setting possible or a race car event. There is already music/TV in waiting rooms so there are a bunch of competing sounds & frankly it's a nightmare for many.
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
3. Finish your cell convo before you enter the waiting room instead of going up to the reception desk with your ear piece in talking to both the receptionist and the person on your phone at the same time. It's rude, yo.
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
2. Use your inside voice. This one's for the men. No one wants to hear your very loud conversation about how busy and successful you are, sir.
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
I wrote the below post while in waiting room in 2023 and wow does this still ring true!
Get ready for a giant post on waiting room etiquette! โฌ๏ธ
1. Leave your sh*t at the door. No one wants to hear you arguing as a couple. We are not an audience on The Jerry Springer Show.
19.01.2025 17:38 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Dr. Melissa Geraghty in 2024. Psychologist Expert Advocate. Transforming Healthcare through Empowered patient voices.
View the whole post here:
www.linkedin.com/posts/drmeli...
31.12.2024 19:24 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
When you start to feel like things should have been better this year remember the mountains and valleys that got you here. They are not accidents and those moments weren't in vain. You are not the same you have grown and you are growing you are breathing you are living. You are wrapped in endless boundless grace and things will get better. There is more to you than yesterday. - Morgan harper nichols
16.12.2024 23:54 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Thank you!
17.11.2024 12:03 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by TaylorSwiftVEVO
Taylor Swift - Lavender Haze (Official Lyric Video)
Day 1
youtu.be/mkR_Qwix4Ho?...
16.11.2024 21:18 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Cute closeup of a fawn pug
Cute closeup of a fox looking pomeranian who is on her side leaning against her pug sister, with one foot bent ready for pets.
A closeup of a cute wolf coloring pomeranian
My little hearts. #DogsOfBlueSky
16.11.2024 21:16 โ ๐ 8 ๐ 0 ๐ฌ 1 ๐ 0
Nice to see you over here!!!
12.11.2024 23:58 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Thank you! :)
11.11.2024 21:15 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Please add me! I have Long COVID, write/present about it, and support/advocate for others.
11.11.2024 20:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐
11.11.2024 20:08 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
SCIENTIFIC ILLUSTRATION & WILDLIFE ART
Drawing the Ocean X Supporting Shark Conservation ๐ฆ
๐ Scotland
๐ง Email for Enquiries
ยฉ๏ธ No unauthorised use
Toddler Mum. Founder of Birdy & Bright - creating art with a positive edge and mindful art exercises. Artist, Poet, Creative, Drinks Writer, Engagement Exec. Drink wine when I can, eat cheese when I can. Time is precious. Make art and be kind to others.
๐ฏ Amateur astro, travel and tech geek, content creator, Earth๐ฟ and space advocate, AI adopter, photo editor, equipment reviewer, encouraging visionary, no politics. Website: https://www.xipteras.com
Has mcas, migraine, and dysautonomia. Cat lover, especially seniors. She/her
Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
Internal Medicine Physician๐ฉ๐ปโโ๏ธ๐ฉบHumanitarian๐๐ซถ๐ผNerd๐ง ๐คChronic Illness Warriorโค๏ธโ๐ฉน๐ฆPianist๐นCrisis Counselor๐ฉ๐ปโ๐ปMusic/Movie Enthusiast๐ถ๐ฌAlabama,USA๐ก๐บ๐ธ
Our mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into advances for patients with migraine and other disabling diseases that cause severe head pain.
American Headache Societyยฎ professionals dedicated to the study & treatment of #migraine, #headache & facial pain. #AHSAM #AHSAZ
Launched in 2022, The MIF is a 501c3 nonprofit dedicated to enhancing accessibility for individuals with disabilities through open-source technology. https://linktr.ee/themif1
The nationโs largest grassroots mental health organization dedicated to those living with mental illness.
International, member-supported, non-profit association that brings together scientists, clinicians, healthcare providers, and policymakers to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide.
Official acct for the US Association for the Study of Pain - An association comprised of a diverse representation of researchers across the nation, each contributing invaluable expertise to our collective understanding of pain.
Follow/Like/RT โ endorse
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) ehlers-danlos.com
Amplifying the Voice of the Chronic Migraine Community - chronicmigraineawareness.org
At Johns Hopkins University Press, we envision a future where knowledge enriches the life of every person.
Home to @projectmuse.bsky.social
press.jhu.edu
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Author of the bestsellers 'Mindfulness: Finding Peace in a Frantic World' & 'Deeper Mindfulness: The New Way to Rediscover Calm in a Chaotic World.' www.franticworld.com @DrDannyPenman
We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more.
www.normalness.com
Curating best mindfulness resources for everyday life. Learn more at MindfulSpot.com