@pillowwriters.bsky.social
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Welcome to Pillow Writers! A virtual ME/CFS and Long Covid writing community.
Check out the link pinned on our page for more information! #me/cfs#longcovid#writing#myalgicencephalomyelitis#chronicillness
ID: A flier for the event reads, "The Sick Times: Free Webinar, The Long COVID Op-Ed. Help Break the Stigma. February 19th, 7-8:15pm ET. Learn how to pitch and share your story with tips from expert guests. Hosted by Miles Griffis and Betsy Ladyzhets. Below are the headshots of three guests, Torie Bosch, First Opinion Editor, STAT. Madeline Miller, Best-selling author. Funmi Okunola, MD, Co-founder Long COVID the Answers. A button at the bottom reads, "Comment "RSVP" for a registration link!"
Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...
09.02.2026 21:14 — 👍 82 🔁 51 💬 5 📌 5
CrunchME is a patient-led organisation using data-informed advocacy to help accelerate progress on ME/CFS, Long COVID, and other infection-associated chronic illnesses (IACIs).
crunchme.org/visuals
hoodie that says 'works, but makes sad noises' etsy.com/shop/ChronicIllnessTees redbubble.com/people/ChronicillnessT
Find on www.etsy.com/shop/Chronic... or www.redbubble.com/people/Chron... as shirts, etc
04.02.2026 18:04 — 👍 65 🔁 13 💬 0 📌 0Free online meetings for the ME/CFS community.
Sunday 8th February WIMEL Explaining to the world what having ME is like 11:00am PST.
Tuesday 10th February Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.
Friday 6th February Pillow Crafters meeting has sadly been cancelled due to poor health.
We wish our host a speedy recovery.
However well intentioned this is extraordinarily hurtful.
03.02.2026 17:02 — 👍 0 🔁 0 💬 0 📌 0Words fail us and we’re known for words.
03.02.2026 17:01 — 👍 1 🔁 0 💬 0 📌 0CANCELLED.
Tonight’s Annex meeting has been cancelled.
Apologies.
I thought this was a surprisingly good article about the realities of ME/CFS.
www.bbc.co.uk/news/article...
A cozy spot with a blanket, mug, and open book. Text overlaid: Reminder. Join us or our Keep the Light Community event: TODAY - Sunday, February 1st at 3 pm ET
Join us today at 12 pm PT/ 2 pm CT/ 3 pm ET 8 pm GMT for our virtual Keep The Light Community Event! Come as you are and we can all be encouraged by gentle time together!
Register: https://www.meaction.net/event-details/keep-the-light-community-gathering
#pwME #PwLC #MECFS #Spoonie
Monday 2nd February The Annex for long form writers 11:00am PST.
Thursday 5th February Early Pillows Optional Prompt: Airport. 2:00pm GMT.
Thursday 5th February Standard Pillows for all forms of writing 11:00am PST.
Write us a poem Norm
29.01.2026 21:49 — 👍 1 🔁 0 💬 0 📌 0Early Pillows, prompts for next month:
5th February. Airport
12th February. A suggestion of everyday magic
19th February. I wrote a note for you
26 February. Feeling/Meaning.
Prompts are always optional but priority is given to those who have written to that week’s prompt.
Tuesday 27th January Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.
Thursday 29th January Early Pillows Optional Prompt: The Fundamental Interconnectedness Of All Things. 2:00pm GMT.
Thursday 29th January Standard Pillows for all forms of writing 11:00am PST.
We hear you. 🩵
26.01.2026 15:41 — 👍 1 🔁 0 💬 0 📌 0“To hear your poetry is to hear the beauty in mine,
to see you propped up on pillows like a reflection,
a mirror of myself,
to know that we do not have
to sit to be heard
nor always to read,
to be writers”
By September
We thank September for this beautiful eulogy to Pillow Writers.🩵
Thursday 22nd January Early Pillows at. Optional Prompt: To Live at all is Miracle Enough. 2:00pm GMT
Thursday 22nd January Standard Pillows for all forms of writing 11:00am PST.
More information here:
pillowwriters.wordpress.com
All meeting are free.
Thursday 22nd January Early Pillows. Optional Prompt: To Live at all is Miracle Enough. 2:00 pm GMT
Thursday 22nd Standard Pillows all forms of writing 11:00am PST.
Tuesday 27th January Pillow Writers en Español los encuentros son completamente en Español. 11:00 am PST.
Tuesday 13th January ¡Bienvenidos de Regreso! Pillow Writers En Español los encuentros son completamente en Español. 11:00 am PST.
Thursday 15th January Early Pillows. Optional Prompt: A Sentimental Journey. 2:00pm GMT.
Thursday 15th January Standard Pillows for all forms of writing 11:00am PST
Hi Laila. 🩵
07.01.2026 21:18 — 👍 0 🔁 0 💬 0 📌 0Thursday 8th January Early Pillows at 2:00pm GMT. Optional Prompt: A Curious Relationship With Time.
Thursday 8th JanStandard Pillows for all forms of writing 11:00am PST
Friday 9th January. Pillows Write Now. A place to write live. 60 minutes only. All forms of writing 11:00am PST
Laila Solaris shares the beginning of her essay "The Color Orange" with us.
The full essay can be found in Near-Life Experiences The Pillow Writers Anthology Issue 2. Learn more about the truly amazing @pillowwriters.bsky.social & how to get your copy here: ow.ly/6Grc50XT8VK
#pwME #spoonie
Come and join the Pillow Writers at the Pillowmas Christmas Special.
11:00 am PST
7:00 pm GMT
Hosted by Una.
Open to anyone with ME/CFS or Long Covid.
More information info and Zoom Link here
pillowwriters.wordpress.com
Martin Keogh of Pillow Writers shares "It's Like Amnesia" - a piece included in Near- Life Experiences: The Pillow Writers Anthology, Issue 2.
Pillow Writers has two anthologies available! Proceeds benefit #MEAction! https://ow.ly/A4kL50XLBO5
#pwME #book #Spoonie #MECFS
Hi Martin.
19.12.2025 18:14 — 👍 1 🔁 0 💬 0 📌 0
Two meetings are held every Thursday in different time zones.
Early Pillows at 2:00pm GMT
Standard Pillows at 11:00 am PST
The Zoom link for both can be found on our website.
pillowwriters.wordpress.com
