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Adam R Jones

@adamrobertjones.bsky.social

Academic. Interested in Physiology, Haemophilia & Related Bleeding Disorders, Patient Advocacy, Gene Therapy, Clinical Trials, Pharmacovigilance

46 Followers  |  23 Following  |  6 Posts  |  Joined: 30.11.2024  |  1.7187

Latest posts by adamrobertjones.bsky.social on Bluesky

Whatโ€™s the worst thing about living with a #BleedingDisorder? I donโ€™t think there is one thing above all else, but:

1. #SurvivorGuilt
2. #Depression
3. The long, debilitating march of #Arthritis and #PainManagement

Are all right up thereโ€ฆ

25.02.2025 13:17 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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@sawherry.bsky.social is presenting findings on the intergenerational impact of the contaminated blood scandal at the #EAHAD2025 AHP Day Nurses Slam session, 15.30 local time. Read her article in The Journal of Haemophilia Practice: doi.org/10.2478/jhp-...
#HemeSky #MedSky #BloodSky

04.02.2025 12:46 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

If you live with a #BleedingDisorder like #Haemophilia, #VWD, etc., then trying to have a โ€œnormalโ€ job, education, relationship, or life in general is an up hill struggle every day of your life.

03.02.2025 12:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Will you be at #EAHAD2025 Allied Health Professionals Day tomorrow? @katekhair.bsky.social will present results from our GT360 and VWD360 studies.

#EAHADCongress #GlanzmannThrombasthenia #vonWillebrandDisease
#HemeSky #MedSky #BloodSky

03.02.2025 08:53 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The world of #UK #HigherEducation at the moment is dancing on a precipice of disaster. Whole departments closing, subjects wiped from existence, staff lay offs everywhere you look. Hold tight everyone, itโ€™s going to be a bumpy ride!

03.02.2025 12:10 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Gotta love #BlueSkyThinking!

02.12.2024 10:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽจ In case anyone needโ€ฆ

The NIH BioArt Source is an awesome library of *free* professionally drawn illustrations for scientific presentations or figures. Downloadable in HD. Thank you NIH for this invaluable tool ๐Ÿ™!

Check it out ๐Ÿ‘‡
bioart.niaid.nih.gov

23.11.2024 15:49 โ€” ๐Ÿ‘ 1207    ๐Ÿ” 494    ๐Ÿ’ฌ 44    ๐Ÿ“Œ 28

Hi @profsimonwad.bsky.social thanks. I finally decided to make the move. Hope all is well with you my friend?

02.12.2024 07:54 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Solidarity, support, advocacy

#WorldAIDSDay2024

01.12.2024 12:51 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you, @abookclubof1.bsky.social . Iโ€™m looking forward to finding my feet in here

01.12.2024 10:18 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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