Whatโs the worst thing about living with a #BleedingDisorder? I donโt think there is one thing above all else, but:
1. #SurvivorGuilt
2. #Depression
3. The long, debilitating march of #Arthritis and #PainManagement
Are all right up thereโฆ
25.02.2025 13:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
@sawherry.bsky.social is presenting findings on the intergenerational impact of the contaminated blood scandal at the #EAHAD2025 AHP Day Nurses Slam session, 15.30 local time. Read her article in The Journal of Haemophilia Practice: doi.org/10.2478/jhp-...
#HemeSky #MedSky #BloodSky
04.02.2025 12:46 โ ๐ 4 ๐ 3 ๐ฌ 0 ๐ 1
If you live with a #BleedingDisorder like #Haemophilia, #VWD, etc., then trying to have a โnormalโ job, education, relationship, or life in general is an up hill struggle every day of your life.
03.02.2025 12:26 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Will you be at #EAHAD2025 Allied Health Professionals Day tomorrow? @katekhair.bsky.social will present results from our GT360 and VWD360 studies.
#EAHADCongress #GlanzmannThrombasthenia #vonWillebrandDisease
#HemeSky #MedSky #BloodSky
03.02.2025 08:53 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
The world of #UK #HigherEducation at the moment is dancing on a precipice of disaster. Whole departments closing, subjects wiped from existence, staff lay offs everywhere you look. Hold tight everyone, itโs going to be a bumpy ride!
03.02.2025 12:10 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Gotta love #BlueSkyThinking!
02.12.2024 10:46 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Hi @profsimonwad.bsky.social thanks. I finally decided to make the move. Hope all is well with you my friend?
02.12.2024 07:54 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Solidarity, support, advocacy
#WorldAIDSDay2024
01.12.2024 12:51 โ ๐ 1 ๐ 2 ๐ฌ 0 ๐ 0
Thank you, @abookclubof1.bsky.social . Iโm looking forward to finding my feet in here
01.12.2024 10:18 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Acting Head of Physiotherapy, Royal Hospital for Children, Glasgow, and PhD Student at Glasgow Caledonian University
A multi-disciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders.
๐ www.eahad.org
๐ https://academy.eahad.org/eahad
Advanced Practice Academic, PhD student studying the intergenerational impact of the contaminated blood scandal in haemophiliac familes
Orcid ID: 0000-0002-2496-1178
Alt text for profile picture: grey haired woman smiling with glasses and a grey scarf
NATA - the network for the advancement of PBM, Haemostasis and Thrombosis. The leading global multidisciplinary medical society that promotes best practices in our field.
Monthly webinars. Annual congress. Bi-weekly literature review.
NATA26๐ช๐ธ30/04-2/05
PhD | AHP/HCS Clinical Academic Lead & Clinical Research Physiotherapist UHDB | Honorary Assistant Professor University of Nottingham
Turning viruses into cancer medicines. Head of Solid Cancers & Professor of Translational Virotherapies @cardiffuni. FLSW. Awesome group: @virustinkerer. Dad to 2 cricket ๐nuts. #LFC #ProEU. #Athiest. #Humanist.
The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Haematology Consultant (Haemostasis and Thrombosis), Oxford. Views my own.
Clinician Scientist interested in haemophilia and gene therapy. University College London
Paediatric nurseโขthrombosis and haemostasisโขChair EAHAD nurses committeeโขClinical trial coordinator๐ฉ๐ฐ
Postdoctoral Consultant Physiotherapist - Haemophilia/ Bleeding Disorders | Royal Free Hospital London | Research Dept Haematology UCL
Science News from Academic Journals etc.
PI of Pulmonary Gene Therapy Group, CGEM, IGC, University of Edinburgh. UK CF Gene Therapy Consortium. Personal opinions. https://www.research.ed.ac.uk/en/persons/christopher-boyd
Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
๐๐ณ๐ฐ๐ง๐ฆ๐ด๐ด๐ฐ๐ณ ๐ฐ๐ง ๐๐ฆ๐ฏ๐ฆ ๐๐ฉ๐ฆ๐ณ๐ข๐ฑ๐บ, ๐๐๐
๐๐ฆ๐ฏ๐ฆ๐ต๐ช๐ค ๐ต๐ฉ๐ฆ๐ณ๐ข๐ฑ๐ช๐ฆ๐ด ๐ง๐ฐ๐ณ ๐ค๐ฉ๐ช๐ญ๐ฅ๐ฉ๐ฐ๐ฐ๐ฅ ๐จ๐ฆ๐ฏ๐ฆ๐ต๐ช๐ค ๐ฅ๐ช๐ด๐ฆ๐ข๐ด๐ฆ๐ด
๐๐๐, ๐ญ๐ฆ๐ฏ๐ต๐ช, ๐ข๐ฅ๐ฆ๐ฏ๐ฐ, ๐ฎ๐๐๐
๐งฌ๐ฒ
Director of Research at Haemnet. Once a nurse always a nurse. Elephant ๐๐๐ lover