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Low Energy Lounge

@lowenergylounge.bsky.social

Coping with confidence, together. Let's change the way chronic illness is seen and understood. Rooted in ME Awareness.

122 Followers  |  111 Following  |  58 Posts  |  Joined: 20.01.2025  |  2.2228

Latest posts by lowenergylounge.bsky.social on Bluesky

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(Last two slides)

11.09.2025 22:35 — 👍 0    🔁 0    💬 0    📌 0
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TIPS for Social Pacing

#Spoonie #SpoonieSky #Pacing

11.09.2025 22:33 — 👍 0    🔁 0    💬 1    📌 0
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simple and effective

08.07.2025 16:25 — 👍 1    🔁 0    💬 0    📌 0
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Can’t forget pacing

23.06.2025 15:04 — 👍 0    🔁 0    💬 0    📌 0
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Tips on tips

23.06.2025 15:03 — 👍 1    🔁 0    💬 0    📌 0
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What’s your go-to trick for staying cool in this heatwave? 🫠☀️

23.06.2025 15:00 — 👍 0    🔁 0    💬 2    📌 0

So true 🙌

18.06.2025 22:29 — 👍 0    🔁 0    💬 0    📌 0

What if we stopped calling it “doing nothing” when it’s actually…

✨ Choosing to rest
✨ Prioritizing your health
✨ Listening to your body
✨ Looking after yourself
✨ Practicing stillness
✨ Pacing intentionally
✨ Resisting the pressure to overdo it
✨ Unlearning that productivity defines your worth

18.06.2025 21:24 — 👍 4    🔁 0    💬 1    📌 0
One of the pieces of art with a woman lying in her bed plus the following text A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS A Quiet Storm is founded and run by volunteers with ME/CFS, many with severe forms. This site is a testament that although we may be too ill to accomplish things individually, together as a community, we can achieve great things.

One of the pieces of art with a woman lying in her bed plus the following text A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS A Quiet Storm is founded and run by volunteers with ME/CFS, many with severe forms. This site is a testament that although we may be too ill to accomplish things individually, together as a community, we can achieve great things.

A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS

www.aquietstorm.me/about

Image is from the AMMES June 2025 e-newsletter

#SevereME #MEcfs #SevereMECFS #CFS #PwME

09.06.2025 01:11 — 👍 22    🔁 8    💬 1    📌 0

Thank you for joining us❣️

02.06.2025 17:21 — 👍 1    🔁 0    💬 0    📌 0
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Huge thank you to everyone who participated in the #MECFSis campaign, shared, or simply witnessed. You made this what it is. 🙏

Awareness Month may be over, but we’re not done. The need for visibility, funding, and change continues all year long.

🔗 See more voices on the @openmedf.bsky.social site

02.06.2025 17:12 — 👍 7    🔁 5    💬 0    📌 1

💙💙💙

02.06.2025 17:04 — 👍 0    🔁 0    💬 0    📌 0
Mixed media photograph and digital painting of headshot of women with long dark hair, eyes closed and strap top. There’s a green vine wrapped around her eyes and neck/hair. In the background is abstract dark green bush. Caption: M.E. is being trapped in your body. Everything you do can make you sicker.

Mixed media photograph and digital painting of headshot of women with long dark hair, eyes closed and strap top. There’s a green vine wrapped around her eyes and neck/hair. In the background is abstract dark green bush. Caption: M.E. is being trapped in your body. Everything you do can make you sicker.

Photo in black & white of a woman sitting in bed with doona over her bent knees. She has long hair, and is looking at the camera with a serious expression on her face. Most of the room is dark, with her face & part of the wall to her left lit up by leaf speckled light filtering into her room through the window behind the camera. Beside the bed is a shadowed bedside table with lamp and drink bottle on top. A door is partially visible. Caption: M.E. is being bedbound or housebound for the 25%. Some have not seen the sun in decades.

Photo in black & white of a woman sitting in bed with doona over her bent knees. She has long hair, and is looking at the camera with a serious expression on her face. Most of the room is dark, with her face & part of the wall to her left lit up by leaf speckled light filtering into her room through the window behind the camera. Beside the bed is a shadowed bedside table with lamp and drink bottle on top. A door is partially visible. Caption: M.E. is being bedbound or housebound for the 25%. Some have not seen the sun in decades.

Blurred double vision image of woman standing in front of a large gum tree. The angle is looking slightly upward with just the shoulders and head visible as well as the top of the tree behind the sky is blue and cloudy. Caption: M.E. is underfunded. Under researched. Under diagnosed. Under treated. Under supported. Misunderstood. Neglected. Dismissed. Harmed.

Blurred double vision image of woman standing in front of a large gum tree. The angle is looking slightly upward with just the shoulders and head visible as well as the top of the tree behind the sky is blue and cloudy. Caption: M.E. is underfunded. Under researched. Under diagnosed. Under treated. Under supported. Misunderstood. Neglected. Dismissed. Harmed.

Digital drawing of a hand holding a phone, with a simple drawing of the earth on the screen. The background is black. Caption: M.E. is experiencing the world through a screen. For many, their only portal to community, connection, knowledge & advocacy.

Digital drawing of a hand holding a phone, with a simple drawing of the earth on the screen. The background is black. Caption: M.E. is experiencing the world through a screen. For many, their only portal to community, connection, knowledge & advocacy.

Today is #MEAwarenessDay.

Here’s a tiny glimpse into life with this debilitating disease.

#MECFS #MissingMillions #MECFSis #MEAwarenessMonth

12.05.2025 09:27 — 👍 11    🔁 7    💬 1    📌 0

Beautiful imagery & powerful words. Thank you for bringing your creativity into raising awareness! ❤️

02.06.2025 17:04 — 👍 1    🔁 0    💬 1    📌 0

What a stunning (and heart-breaking and galvanizing) gallery of #pwME #MECFSis by @openmedf.bsky.social and @lowenergylounge.bsky.social . Thank you for the worldwide invitation, and my love to everyone who shared their words and images, and to every person with #MyalgicEncephalomyelitis 💙

12.05.2025 16:37 — 👍 18    🔁 10    💬 1    📌 0

It means the world to see people showing up and responding to this! 💙

12.05.2025 17:00 — 👍 2    🔁 0    💬 0    📌 0
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It’s ME/CFS Awareness Day.

Over 150 people living with ME/CFS have already shared how they’d finish this sentence:

“ME/CFS is…”

Their words expose the truth—a complex reality of living with this disease.

See more at: www.omf.ngo/community-vo...

@openmedf.bsky.social
#MECFSis #MECFSAwareness

12.05.2025 16:58 — 👍 1    🔁 1    💬 0    📌 0
Color photo of Suzanne, a fat older white woman, lying down holding a sign. The sign reads: ME/CFS is waking up every day feeling hungover and in heroin withdrawal - when you've been sober and off drugs since 1989.

Color photo of Suzanne, a fat older white woman, lying down holding a sign. The sign reads: ME/CFS is waking up every day feeling hungover and in heroin withdrawal - when you've been sober and off drugs since 1989.

May is #mecfsawarenessmonth. @openmedf.bsky.social is a nonprofit leading the effort to find treatments and a cure for ME/CFS & Long COVID. Their #mecfsis awareness campaign with @lowenergylounge.bsky.social is showing some faces of ME - some of us who can safely afford to disclose our disability.

03.05.2025 22:40 — 👍 9    🔁 3    💬 0    📌 0
Carrie is wearing her millions missing t-shirt from 2021 from MEAction Network. She's holding a sign that says MECFS is my cage. She's wearing noise canceling earphones and she is lying in bed with her head on a silk pillowcase with birds on it. "Hope is the thing with feathers"

Carrie is wearing her millions missing t-shirt from 2021 from MEAction Network. She's holding a sign that says MECFS is my cage. She's wearing noise canceling earphones and she is lying in bed with her head on a silk pillowcase with birds on it. "Hope is the thing with feathers"

#MECFSis my cage.

All it took was a virus for #ME to take me prisoner & become my cage.

@openmedf.bsky.social

"Every photo helps raise visibility, reduce stigma & reach others. Let’s make ME/CFS visible.

#MillionsMissing #MyalgicE #MySeveralWorlds #pwME
#MECFSAwareness #MEAwarenessMonth

29.04.2025 16:43 — 👍 6    🔁 4    💬 1    📌 1
Samatha is holding a sign that reads: "ME/CFS is watching life happen to other people while you slowly fade away.

Samatha is holding a sign that reads: "ME/CFS is watching life happen to other people while you slowly fade away.

Samantha’s words speak to the devastating reality of #MECFS —a disease that isolates and steals.

“ME/CFS is watching life happen to other people while you slowly fade away.”

Support ME/CFS research: www.omf.ngo?form=donatenow

02.05.2025 13:56 — 👍 50    🔁 14    💬 0    📌 2
A photo of a white woman with faded red, messy, short hair. She is smiling but fatigued, wearing green pyjamas, is under a green and white leaf print blanket and is propped up against a pile of cushions while lying with legs up on a sofa. Black text on a white rectangle with the texture of paper is superimposed on the photo. It reads: ME/CFS is stronger than pain relief, positive thinking or willpower. ME/CFS is suffering for the exertion of smiling and being semi-upright. ME/CFS is 40 years (and counting) of my life.

A photo of a white woman with faded red, messy, short hair. She is smiling but fatigued, wearing green pyjamas, is under a green and white leaf print blanket and is propped up against a pile of cushions while lying with legs up on a sofa. Black text on a white rectangle with the texture of paper is superimposed on the photo. It reads: ME/CFS is stronger than pain relief, positive thinking or willpower. ME/CFS is suffering for the exertion of smiling and being semi-upright. ME/CFS is 40 years (and counting) of my life.

Black typed text in a white background reads: This ME awareness month, Open Medicine Foundation has initiated the #MECFSis photo campaign to raise awareness and vital funds for their research. To take part with your own picture: 1. Take a photo of yourself with a sign that finishes the sentence: ME/CFS is 2. Post (by May 7th to be part of their ME/CFS May 12th Awareness Day feature) tagging Open Medicine Foundation and using the hashtag #MECFSis To support: Like, share and, if possible, donate. Thank you!

Black typed text in a white background reads: This ME awareness month, Open Medicine Foundation has initiated the #MECFSis photo campaign to raise awareness and vital funds for their research. To take part with your own picture: 1. Take a photo of yourself with a sign that finishes the sentence: ME/CFS is 2. Post (by May 7th to be part of their ME/CFS May 12th Awareness Day feature) tagging Open Medicine Foundation and using the hashtag #MECFSis To support: Like, share and, if possible, donate. Thank you!

ME/CFS is in desperate need of medical research. How can you help?

By taking part in Open Medicine Foundation’s #MECFSis photo campaign by May 7th.

Every photo helps raise visibility, reduce stigma, and reach others.

#MillionsMissing #mecfs #chronicillness #chronicpain #Chronicfatigue #me/cfs

03.05.2025 10:51 — 👍 13    🔁 6    💬 0    📌 0
A black and white top down photo of Niko, a man with a dark beard and a dark sweatshirt, he is laying on his bed, having a white sign on his chest, which says ‘ME/CFS is… the absence of life’ written in dark letters.

A black and white top down photo of Niko, a man with a dark beard and a dark sweatshirt, he is laying on his bed, having a white sign on his chest, which says ‘ME/CFS is… the absence of life’ written in dark letters.

It’s ME/CFS Awareness Month, and I wonder — what is life?
According to Wikipedia, life consists of these seven traits ⬇️

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@openmedf.bsky.social @lowenergylounge.bsky.social
#Photography
#SelfDocumentary
#MECFS
#MECFSis
#pwME

02.05.2025 18:55 — 👍 24    🔁 8    💬 2    📌 1
A spiral-bound notebook rests on a soft, textured blanket. On the open page, handwritten text reads: “ME/CFS is... the world missing out on millions of brilliant & beautiful people.” A red awareness ribbon is drawn in the bottom right corner. A red ribbon bookmark peeks out from the notebook.

A spiral-bound notebook rests on a soft, textured blanket. On the open page, handwritten text reads: “ME/CFS is... the world missing out on millions of brilliant & beautiful people.” A red awareness ribbon is drawn in the bottom right corner. A red ribbon bookmark peeks out from the notebook.

#MECFSis submission from Angela:

"ME/CFS is the world missing out on millions of brilliant & beautiful people."

#mecfsis #mecfs #millionsmissing #pwme @lowenergylounge.bsky.social

02.05.2025 16:54 — 👍 46    🔁 16    💬 2    📌 1
A smiling frog

A smiling frog

ME/CFS is...
... a disabled body&brain.
The person is still fabulous though!

#mecfsis
#MECFSAwarenessMonth
@openmedf.bsky.social

19.04.2025 06:45 — 👍 4    🔁 1    💬 0    📌 0

When you know a crash is coming

26.04.2025 14:36 — 👍 0    🔁 0    💬 0    📌 0

Wbu? Let us know in the comments, because sometimes the smallest joys are the ones that carry us through.

25.04.2025 16:27 — 👍 0    🔁 0    💬 0    📌 0
Login • Instagram Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.

What's one small thing that brings you joy, even on hard days?

We asked people living with chronic illness to share the small moments that make a difference. Here’s what they had to say 🥰

www.instagram.com/p/DIrP6bfsod...

25.04.2025 16:27 — 👍 0    🔁 0    💬 1    📌 0

Launching a photo campaign in collaboration with @openmedf.bsky.social for ME/CFS Awareness month and we’d love to see YOU in it!

Repost to help spread the word. 🩵 Together, we’re stronger—and louder!

14.04.2025 16:32 — 👍 5    🔁 7    💬 0    📌 0

You don’t have to “earn” rest. You don’t have to justify your needs. You are allowed to listen to your body without guilt.

#SpoonieSky

20.03.2025 17:14 — 👍 2    🔁 0    💬 0    📌 0

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