US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! πSF
#EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD
Mental health advocate, indigenous #LGBTQIA+π
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Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Associate editor, life sciences reporter @cenmag.bsky.social. Texan Bostonian. she/her. r_walrath@acs.org. For sensitive tips, I'm on Signal @rowanwalrath.01 or email rowan.walrath@proton.me
Scientist, science communicator, public health and climate justice advocate.
WHO Fides member, Grist 50 Fixer, Creative Change alum.
New Yorker/Aussie.
Opinions my own & do not reflect employer.
http://linktr.ee/luckytran
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/ME/Longcovid/EDI/all views my own
she/her
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if youβre in a trial or otherwise have information to share.
https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
My life runs by the Murphyβs Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
Managing editor/local at ProPublica, past prez of AHCJ, Detroit Lions fan. Email: charles.ornstein@propublica.org. Posts are my own.
Co-founder #ThereForME | Calling for an NHS thatβs there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Raising awareness for Long Covid and ME/CFS.
Website - www.notrecovereduk.org
Twitter - https://x.com/lcmebillboards?s=21
https://www.thegodpodcast.com
Creator of the Universe.
Retired πͺ· Grandmother β’ 3 chronic illnesses since early 2020 π₯ #longCOVID #ESKD #IgGdeficiency π Volunteer at @renegaderes π₯© animal-based keto βΏοΈ amputee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
βΏοΈ#LongCovid β³οΈ#CleanAir ππ»ββοΈCampaigner
π§ π§‘π«#LongCovidKids
π#ColdWater π§π»ββοΈ#Swimming
π§π»#Pilates coach - #Pacing since 2020 π¦ π·
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πΌ#CoronationChampion π₯#Volunteer
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum
π· Long covid is common π·
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com