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Isabelle

@invisibleisabelle.bsky.social

Posting about my live with #LongCovid in order to find new ways of engaging with it and making an invisible illness visible

55 Followers  |  171 Following  |  8 Posts  |  Joined: 12.04.2025  |  1.7819

Latest posts by invisibleisabelle.bsky.social on Bluesky

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The importance of understanding rest How my experience of rest as an athlete clashed with my experience of rest as a patient

www.thereforme.uk/p/the-import...

10.06.2025 09:08 — 👍 17    🔁 6    💬 1    📌 1
Preview
Petition unterschreiben 👉 “Hände weg von der Eingliederungshilfe – Teilhabe darf nicht gekürzt werden!”

Hände weg von der #Eingliederungshilfe - Teilhabe darf nicht geküzt werden!

Bitte unterstützen 👇

chng.it/NPgMWm9fWh

#Disability #LongCovid #Behinderung #Teilhabe

11.06.2025 09:20 — 👍 3    🔁 0    💬 0    📌 0

The small things that make me happy:

The rare seagulls calls over the terrace giving me momentary flash back to the sea and a flush of happiness 🌊🌅

As I can’t go to the sea it can at least come to me in this way for a short moment out on the terrace. ☺️

#longcovid

30.04.2025 20:55 — 👍 0    🔁 0    💬 0    📌 0

Love the idea! Are you aware of a similar initiative in Europe?

23.04.2025 08:59 — 👍 1    🔁 0    💬 1    📌 0
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Change of perspective

Getting a mobility aid was the best decision I took lately. It allows me to go out more regularly (still with help but I take it), stay out a bit longer, go a bit further & most importantly I can enjoy it!

These are the small things that now make me very happy!
#LongCovid

13.04.2025 09:54 — 👍 4    🔁 0    💬 0    📌 0

Thanks @berlin-buyers-club.bsky.social for the great sign 🙏

12.04.2025 16:31 — 👍 0    🔁 0    💬 0    📌 0
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Feeling like a rockstar after having been able to wash my hair for the first time in ages 😅
#LongCovid

12.04.2025 14:00 — 👍 13    🔁 0    💬 0    📌 0

Thanks, this is super useful 🙏

12.04.2025 13:36 — 👍 1    🔁 0    💬 0    📌 0
Sign saying: I‘ve been sick for 1081 days. How much longer!

Sign saying: I‘ve been sick for 1081 days. How much longer!

Nearly 3y ago I got diagnosed with #LongCovid.
I am here to share about this experience that challenges me in ways I never imagined, made me smaller and let me grow at the same time and forced me to redefine what happiness is.

12.04.2025 13:18 — 👍 15    🔁 1    💬 1    📌 0

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