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burgermind

@burgermind.bsky.social

ME since 2021 #PwME #mecfs #longcovid #fibro #pots #severeME I live on a lovely little island ( #OrcasIsland #PNW ) pfp: my black cat sleeping with forelegs stretched out

262 Followers  |  166 Following  |  124 Posts  |  Joined: 07.09.2024  |  2.0039

Latest posts by burgermind.bsky.social on Bluesky

I miss exploring nature very much. I still live in the forest, so it's very close. I can hear the winter stream outside, and smell the surrounding coastal fir, as well as the mixed flocks of birds passing through in the morning. Just now there was a barred owl in the distance.

26.02.2025 05:52 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Reminds me of when I used to hike in the Pacific Northwest

25.02.2025 16:23 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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MSNBC made it perfectly clear that when Trump said they were a threat to democracy they immediately obeyed and fired six people of color.

25.02.2025 15:06 β€” πŸ‘ 436    πŸ” 164    πŸ’¬ 65    πŸ“Œ 28
Journal of Proteome Research
Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition β€” Wenrui Ji et al.
"we found in PCC patients with VD ≀ 30 ng/mL, the expression of heavy chains (IGHV4βˆ’28, GHV4βˆ’34, and IGHM) and light chains (IGLV 2βˆ’11) significantly increased, indicating an abnormally increased transcription of the framework region 1 (FR1) of the immunoglobulin heavy and light chains, as well as the hypervariable region 1 (HVR1) of the heavy chain."

Journal of Proteome Research Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition β€” Wenrui Ji et al. "we found in PCC patients with VD ≀ 30 ng/mL, the expression of heavy chains (IGHV4βˆ’28, GHV4βˆ’34, and IGHM) and light chains (IGLV 2βˆ’11) significantly increased, indicating an abnormally increased transcription of the framework region 1 (FR1) of the immunoglobulin heavy and light chains, as well as the hypervariable region 1 (HVR1) of the heavy chain."

New from China:

Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition

pubs.acs.org/doi/abs/10.1...

Image is from latest Science for ME weekly update

#LongCovid #PASC

25.02.2025 03:35 β€” πŸ‘ 15    πŸ” 5    πŸ’¬ 2    πŸ“Œ 0
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Trump's Medicaid cuts would leave millions without health care The human cost will be brutalβ€”unless a few Republicans develop spines.

For @motherjones.com, I reported on how looming Medicaid cuts could deprive millions of disabled people of health insurance. www.motherjones.com/politics/202...

24.02.2025 18:17 β€” πŸ‘ 545    πŸ” 278    πŸ’¬ 8    πŸ“Œ 18

Studies show that funding from the National Institutes of Health (NIH) contributed to 354 of 356 drugs (99.4%) approved by the FDA from 2010 to 2019. Recklessly slashing NIH funding will mean that patients will be waiting much longer for life-saving treatments.

24.02.2025 19:21 β€” πŸ‘ 1618    πŸ” 604    πŸ’¬ 35    πŸ“Œ 25
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PLEASE: Watch what happened in Coeur d'Alene Idaho today. This is fascism. Unmarked cops. 1A violations. RESIST.

24.02.2025 03:26 β€” πŸ‘ 37258    πŸ” 16607    πŸ’¬ 5023    πŸ“Œ 2665

Yay or neigh

24.02.2025 06:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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How a promising triathlete was left bedridden by cruel disease James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME

The Times: β€œHow a promising triathlete was left bedridden by cruel disease”

James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME

www.thetimes.com/world/irelan...

23.02.2025 14:46 β€” πŸ‘ 69    πŸ” 24    πŸ’¬ 2    πŸ“Œ 1

not hearing this in anything but phil elverum voice

29.01.2025 07:13 β€” πŸ‘ 17    πŸ” 6    πŸ’¬ 1    πŸ“Œ 1
ME in Athletes Survey | Physiosforme

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)

Please share widely - all info on our website here

www.physiosforme.com/athletessurvey

23.02.2025 18:02 β€” πŸ‘ 28    πŸ” 25    πŸ’¬ 0    πŸ“Œ 6
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Petition asking PM to revoke Elon Musk's Canadian citizenship garners support Thousands of people have electronically signed a parliamentary petition calling for revocation of Elon Musk’s Canadian citizenship over his role in the Trump administration, which is pointedly threate...

Petition asking PM to revoke Elon Musk's Canadian citizenship garners support #GoCanadaGo #LetsDoThis #Canada #cdnpoli

Link here: sign the parliamentary petition www.ourcommons.ca/petitions/en...

www.ctvnews.ca/canada/artic...

23.02.2025 14:03 β€” πŸ‘ 576    πŸ” 215    πŸ’¬ 53    πŸ“Œ 30
An upside-down American flag hangs from El Capitan near Yosemite National Park’s Horsetail Fall on Saturday to protest the thousands of federal job cuts made by President Donald Trump’s administration. 
Tracy Barbutes/Special to the Chronicle

An upside-down American flag hangs from El Capitan near Yosemite National Park’s Horsetail Fall on Saturday to protest the thousands of federal job cuts made by President Donald Trump’s administration. Tracy Barbutes/Special to the Chronicle

Brilliant protest. Yosemite National Park workers hung an upside-down American flag β€” traditionally a symbol of distress or a national threat β€” thousands of feet off the ground on the side of El Capitan.

23.02.2025 05:57 β€” πŸ‘ 15920    πŸ” 4218    πŸ’¬ 101    πŸ“Œ 197

a handy list for those telling me to exercise.

23.02.2025 00:00 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS
symptoms

#MECFS

1/

22.02.2025 23:38 β€” πŸ‘ 56    πŸ” 13    πŸ’¬ 6    πŸ“Œ 2
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Major Long-COVID Muscle Study Affirms ME/CFS Findings ... and Sparks Dissent - Health Rising A long COVID exercise study finds dramatic muscle abnormalities and sparks some dissent.

Major Long-COVID Muscle Study Affirms ME/CFS Findings … and Sparks Dissent #longCOVID #MECFS www.healthrising.org/blog/2025/02...

22.02.2025 17:06 β€” πŸ‘ 32    πŸ” 8    πŸ’¬ 3    πŸ“Œ 0

If people were really just dying from chronic diseases then how come they weren’t dying from their chronic diseases until after March, 2020?

22.02.2025 18:33 β€” πŸ‘ 2049    πŸ” 610    πŸ’¬ 90    πŸ“Œ 18

It may not be cool or hip in some circles, but we legitimately do need a massive amount of people to run for office.

Flood the school boards, councils, county seats, state legislatures, Congress, etc.

Big changes at the top happen when the ground shifts at the bottom. And that can start now.

22.02.2025 20:07 β€” πŸ‘ 108464    πŸ” 23329    πŸ’¬ 2126    πŸ“Œ 1403
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Congress: Save Medicaid Now Politicians are attempting to pass devastating cuts to Medicaid right now and we must act fast. Send a message telling your member of Congress to fight back now.

The House could vote next week on drastic cuts to Medicaid that would gut critical programs that protect the civil rights and dignity of millions of Americans β€” including people with disabilities.

Contact your member of Congress: No cuts to Medicaid.

22.02.2025 19:41 β€” πŸ‘ 5498    πŸ” 2927    πŸ’¬ 142    πŸ“Œ 203

According to the U.S. Census Bureau's Housing Vacancies and Homeownership report, there were 16 million vacant housing units in the U.S. as of late 2024.

22.02.2025 19:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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COVID Killed So Many Americans That Social Security Shot Up $205 Billion COVID killed so many Americans that the Social Security fund increased since there aren’t as many people around to receive it.

VICE: 'COVID Killed So Many Americans That Social Security Shot Up $205 Billion'

'The study also bleakly hints that people dealing with long COVID are likely going to have to drop out of the workforce eventually...'

www.vice.com/en/article/c...

22.02.2025 16:20 β€” πŸ‘ 114    πŸ” 54    πŸ’¬ 6    πŸ“Œ 1

But have you tried yoga..

22.02.2025 19:15 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œWas it because of his skin color? Or his skill? We’ll never know, but always doubt β€” which on its face seems unfair to CQ. But since he has made the race card one of his biggest calling cards, it doesn’t really much matter,” Hegseth wrote.

22.02.2025 19:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Simple graphic with a bullhorn and speech bubble. Text: A call to action. Take action to protect Medicaid! A toolkit organized by exertion levels for our community to use and share.

Simple graphic with a bullhorn and speech bubble. Text: A call to action. Take action to protect Medicaid! A toolkit organized by exertion levels for our community to use and share.

Medicaid is the main source of funding for aging and disability care, including home and community-based care. Medicaid is critical to the well-being of many in our community. Check out this Protecting Medicaid Toolkit organized by energy levels. docs.google.com/document/d/1...
#pwME #Medicaid

21.02.2025 17:26 β€” πŸ‘ 45    πŸ” 21    πŸ’¬ 2    πŸ“Œ 4

Medicaid coverage for virtual visits ends April 1st.

As someone who cares for children that live up to 8 hours away, this is DEVASTATING.

Children, adults, elderly will all suffer.

CALL YOUR REPRESENTATIVES

The 5 calls app makes it easy!

21.02.2025 14:42 β€” πŸ‘ 1661    πŸ” 715    πŸ’¬ 68    πŸ“Œ 57
(f) Within 14 days of the date of this order, the following heads of executive departments and agencies (agencies) shall take the following actions with respect to the following Federal Advisory Committees within their respective agencies:

(i) the Administrator of the United States Agency for International Development shall terminate the Advisory Committee on Voluntary Foreign Aid;

(ii) the Director of the Bureau of Consumer Financial Protection shall terminate the Academic Research Council and the Credit Union Advisory Council;

(iii) the Board of Directors of the Federal Deposit Insurance Corporation shall terminate the Community Bank Advisory Council;

(iv) the Secretary of Health and Human Services shall terminate the Secretary's Advisory Committee on Long COVID; and

(v) the Administrator of the Centers Tor Medicare and Medicaid Services shall terminate the Health Equity Advisory Committee.

(f) Within 14 days of the date of this order, the following heads of executive departments and agencies (agencies) shall take the following actions with respect to the following Federal Advisory Committees within their respective agencies: (i) the Administrator of the United States Agency for International Development shall terminate the Advisory Committee on Voluntary Foreign Aid; (ii) the Director of the Bureau of Consumer Financial Protection shall terminate the Academic Research Council and the Credit Union Advisory Council; (iii) the Board of Directors of the Federal Deposit Insurance Corporation shall terminate the Community Bank Advisory Council; (iv) the Secretary of Health and Human Services shall terminate the Secretary's Advisory Committee on Long COVID; and (v) the Administrator of the Centers Tor Medicare and Medicaid Services shall terminate the Health Equity Advisory Committee.

🚨Executive order terminating the Advisory Committee on #longcovid

πŸ‘‰Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings

πŸ‘‰Yarvin's neoreaction RAGE - 'retire all government employees' continues

www.whitehouse.gov/presidential...

20.02.2025 09:32 β€” πŸ‘ 50    πŸ” 28    πŸ’¬ 3    πŸ“Œ 2
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Revealed: NIH research grants still frozen despite lawsuits challenging Trump order The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.

Nature: 'Revealed: NIH research grants still frozen despite lawsuits challenging Trump order'

'The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.'

'The NIH did not respond to Nature’s queries..'

www.nature.com/articles/d41...

20.02.2025 20:23 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Commencing the Reduction of the Federal Bureaucracy By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered:Β  Β  Β Section 1.

In his senate hearings, RFK Jr said he was committed to the issue of Long Covid

Yet here we are…”Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”

What is he committed to doing? Wellness farms. β€œReparenting”. Its open season on chronic illness

20.02.2025 20:33 β€” πŸ‘ 211    πŸ” 77    πŸ’¬ 8    πŸ“Œ 4

@burgermind is following 19 prominent accounts