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Kelsveil

@kelsveil.bsky.social

Prior MARAC research representative for Domestic Abuse. | My views are my own. Campaigning for biomedical research into LongCovid #Longcovid #FBLC

59 Followers  |  116 Following  |  7 Posts  |  Joined: 17.11.2024  |  1.5263

Latest posts by kelsveil.bsky.social on Bluesky

Thanks

20.11.2024 21:49 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Not really Stephen. I get better relief from anticoagulants and R -ala.

Due to auto immune stuff showing on bloods there is talks of trialing Hydroxychloroquine.

WHEN! that happens is another story.

20.11.2024 14:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Don't get #LongCovid

You will be swallowing these and more monthly to try and relieve a small percentage of your symptoms.

There is no Cure!

There is no meaningful funding into research that may help suffering people.

March 2020 changed my life

20.11.2024 10:27 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
Preview
Neuropsychiatric Lupus: SLE and the Brain | HSS Rheumatology Lupus can affect multipe organs. When it affects the brain, spinal cord or nerves, it is called neuropsychiatric lupus and can cause a tangled web of symptoms.

Interesting read and ties in perfectly with some of us with #LongCovid that have sleep disturbance and other neurological symptoms.

I have been testing positive for Autoimmune for 4 years with all the hallmarks.
www.hss.edu/conditions_n...

20.11.2024 09:00 β€” πŸ‘ 11    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

Thanks for this! Already following a good few.

18.11.2024 12:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Omg that's awful Mary, I'm so sorry! I hope no one was hurt? I was making small gains with nicotine not the good type πŸ˜” but got a terrible chest infection in Oct which has knocked me for 6. BNP is all over the place. Feels like I'm starting again, each time not knowing if I'll reach the same place.

17.11.2024 20:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Hey Mary! Great to talk again, twitter became too much unfortunately. family are well, I'm still on the LC rollercoaster. How have you been?

17.11.2024 19:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

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