Thanks
20.11.2024 21:49 β π 1 π 0 π¬ 0 π 0
Not really Stephen. I get better relief from anticoagulants and R -ala.
Due to auto immune stuff showing on bloods there is talks of trialing Hydroxychloroquine.
WHEN! that happens is another story.
20.11.2024 14:35 β π 1 π 0 π¬ 0 π 0
Don't get #LongCovid
You will be swallowing these and more monthly to try and relieve a small percentage of your symptoms.
There is no Cure!
There is no meaningful funding into research that may help suffering people.
March 2020 changed my life
20.11.2024 10:27 β π 7 π 3 π¬ 1 π 0
Neuropsychiatric Lupus: SLE and the Brain | HSS Rheumatology
Lupus can affect multipe organs. When it affects the brain, spinal cord or nerves, it is called neuropsychiatric lupus and can cause a tangled web of symptoms.
Interesting read and ties in perfectly with some of us with #LongCovid that have sleep disturbance and other neurological symptoms.
I have been testing positive for Autoimmune for 4 years with all the hallmarks.
www.hss.edu/conditions_n...
20.11.2024 09:00 β π 11 π 4 π¬ 1 π 0
Thanks for this! Already following a good few.
18.11.2024 12:21 β π 1 π 0 π¬ 0 π 0
Omg that's awful Mary, I'm so sorry! I hope no one was hurt? I was making small gains with nicotine not the good type π but got a terrible chest infection in Oct which has knocked me for 6. BNP is all over the place. Feels like I'm starting again, each time not knowing if I'll reach the same place.
17.11.2024 20:55 β π 1 π 0 π¬ 1 π 0
Hey Mary! Great to talk again, twitter became too much unfortunately. family are well, I'm still on the LC rollercoaster. How have you been?
17.11.2024 19:55 β π 1 π 0 π¬ 2 π 0
Animal lover πΏπββ¬ππ¦
Wears a mask. Not interested in antimaskers, antivaxers or Covid minimisers. Woke as f***
UK
#WearAMask FFP2 /FFP3.
#MasksinHealthcare
#CovidIsAirborne
Disabled.
Fed up with the abuse and block lists on here. Not coming back.
πME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ectβ¦ Posts English and German.
Bavaria ,Germany
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Long Covid, ME/CFS, POTSβ¦. For now
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Scientific Director, #MEAction
Stanford Med
UniversitΓ© de MontrΓ©al
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 β οΈ Occasionally blocks energy drains.
πSeattle, WA
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
27 I ME/CFS seit 2021 I WING UniversitΓ€t Augsburg I DE II EN
https://www.mecfs.de/was-ist-me-cfs/
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli
@ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
Compte officiel #ApresJ20 Association Covid Long France visant Γ favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
Founder - Renegade Research
#MECFS #LongCovid
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon