TrixyB

Oh wow how lovely 🌞

left tetley right yorkshire
I'm having a cup of tetley bedtime now its lovely it has nutmeg in it ☺️

In a previous life I would of loved the mini heatwave, sunbathing beer gardens, bbqs
Now I'm in a darkened room with a fan for company #pwme #MyalgicEncephalomyelitis
#chronicillness #mecfs
#notreatment #nobodycares

My legs feel hot and my feet are tingling , my head is full of thoughts of things I can no longer do, just simple things like doing the weekly shop that where once so mundane, I miss so much of every day life #pwme #chronicillness #MyalgicEncephalomyelitis

I feel like I'm melting into the sofa with concrete running through my veins #pwme #MyalgicEncephalomyelitis

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

💙🤗

This illness is so frustrating 😡 #pwme
#MyalgicEncephalomyelitis #mecfs #disability

YouTube video by Broken Battery ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

Please keep watching & sharing this 27min important film on
"The Greatest Medical Scandal" by @abrokenbattery.bsky.social
We need everyone to be watching this
#ME #MEcfs #pwME #LongCovid #MedSky
youtu.be/RiwX9Y0NbiQ?...

A cartoon yellow bird sat on a white rocking chair, slumped down with an exhausted expression and drooping eyes with a steaming cup of coffee on the floor beside the chair the floor is a wooden floor painted white

Me every morning
#pwme #myalgicencephalomyelitis #mecfs

Sign the Petition Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Living with ME is difficult enough without having incorrect and dangerous guidelines still out there. Please help by signing this petition to get rid of the Cochrane review known to be harmful to patients and re start a new review and assessment.

chng.it/BxJ4Wsttgk

Thank you for this 💙

ME peeps...
If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?

Yes most probably but that said I'm in my 50s so if I where say in my younger years perhaps not .

#pwme #chronicillness
#MyalgicEncephalomyelitis #ME #mecfs

Such a great thread 👏 thank you 💙

Grateful to @gwynnemp.bsky.social for a really productive discussion today. It’s filled me with hope that there are people at the top genuinely fighting for change in the care of #LongCovid and #ME.

Hoping to be part of that change, will keep you all posted 🙏🏽

💙

@erinmg.bsky.social I had plans for tomorrow to go out (in my wheelchair husband pushing) to a little garden centre for a festival afternoon tea, unfortunately it's not looking very hopeful now #pwme #MyalgicEncephalomyelitis #mecfs #PEM

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Definitely and I completely agree with everything and I'm exactly the same humour wise, if I didn't laugh I would cry and I'm done with crying ,I much prefer to laugh 😁💙x

Thank you 🥰

Oh my goodness 😳

💙

Fabulous 🎄 I got quite carried away crocheting snowflakes a couple of years ago❄️ it's very addictive 😂💙

This is so heartbreakingly true, I am so lucky to have my husband who is such a brilliant support, but I don't have anyone else the sheer thought of me ending up alone fills me with such fear ,my heart goes out to people who are out there alone and desperately ill 😥💙

Happy 1st of December
It's tree going up day 🎄
I shall be supervisor extraordinaire #pwme

Sounds perfect, and thank you 😊

Humor is my secret weapon, nice to meet you hope you have a relaxing comfortable evening 😊

We definitely have to humor in our lives, you are welcome 😁