CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Writing illustration comics poetry photography
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden pwME ♿
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
Person with ME since 2018. Autistic adult, socialist (v.hard left) Nerd, gamer, former avid reader, former active runner & explorer, mini painter, movie watcher, box set binger.
Now medically retired and get angry a lot at the shitty state of the world.
Long Covid, ME/CFS, POTS…. For now
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Patient-Led Research for #LongCovid! http://patientledresearch.com
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/ME/Longcovid/EDI/all views my own
she/her
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled.
E: frances.ryan.freelance@guardian.co.uk
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
#DisabilityJustice feed I created:
https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho
More about me
https://linktr.ee/disability_visibility
