I donated to Workwell Foundation - won't you please join me in supporting this important organization?
Join me in supporting Workwell Foundation with a donation to their HOPE Campaign.
As we approach the end of 2024, @workwellfoundation.bsky.social invites you to consider making a tax-deductible gift to support our #science. Our work has never been more critical as we better understand the similarities between #LongCOVID & #MECFS. #PEM #PESE Read more: www.givesignup.org/g/bam466
27.12.2024 17:26 β π 8 π 5 π¬ 0 π 0
Happy Holidays from all of us @workwellfoundation.bsky.social
#HappyHolidays #MECFS #LongCOVID #MillionsMissing #HOPE #pwME #pwLC #PEM #PESE #POTS #Lyme #Fibro #CPET #HRM #StopRestPace #StopGET #Education #Disabilty #DoNoHarm #nonprofit #science @lasnow.bsky.social @sunsopeningband.bsky.social
24.12.2024 16:15 β π 18 π 3 π¬ 0 π 0
https://wwhealth.co/
@workwellfoundation.bsky.social Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3ZdaYac #MECFS #LongCOVID #PESE @sunsopeningband.bsky.social
12.12.2024 18:55 β π 8 π 3 π¬ 0 π 0
https://wwhealth.co/
Workwell Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3ZdaYac #MECFS #LongCOVID #PEM #PESE @workwellfoundation.bsky.social @sunsopeningband.bsky.social
11.12.2024 18:05 β π 14 π 5 π¬ 0 π 0
No fancy fundraising, but this #GivingTuesday, please consider my friends at the Workwell Foundation. Weβre trying pull back the veil on mysterious conditions to uncover helpful and accessible strategies that works for people with ME/CFS, Long Covid, and related conditions.
Thanks for considering.
03.12.2024 21:58 β π 23 π 9 π¬ 0 π 0
In honor of International Day of Person with Disability. Workwell continues to provide resources and #hope to people with #MECFS and #LongCOVID and other #fatigue related illnesses.
Read More: www.givesignup.org/g/bam466
#GivingTuesday #IDPwD24 #Disability #nonprofit @workwellfoundation.bsky.social
03.12.2024 16:28 β π 24 π 10 π¬ 0 π 1
Hey, cool! The predictive basis for the model for biometric pacing weβve been working on for almost the past 20 years at @workwellfoundation.bsky.social and that we shared early on with the kind folks at Visible seems to hold up well within a large dataset. Replication needed but good to see.
02.12.2024 22:43 β π 94 π 31 π¬ 8 π 3
@sunsopeningband.bsky.social and @workwellfoundation.bsky.social are amazing!
I canβt speak to visible but it seems they are too
02.12.2024 22:46 β π 8 π 1 π¬ 1 π 0
Workwell hopes to grow the ranks of clinicians who understand #MECFS and #LongCOVID and who can help meet the challenging needs of these underserved patient populations.
Read more: conta.cc/3AHuToq
#CyberMonday #MillionsMissing #pwME #pwLC #PEM #Education #MedBridge @workwellfoundation.bsky.social
02.12.2024 16:00 β π 19 π 10 π¬ 0 π 0
#WorkwellFoundation appreciates you. It is our patients, physicians, attorneys and colleagues, who enable us to provide #disability services which drives #research and continued #education. We are blessed to have your support. #MECFS #LongCOVID #HOPE #LASnow #nonprofit #Science #HappyThanksgiving
27.11.2024 22:12 β π 11 π 2 π¬ 0 π 0
Quoting to amplify. Thanks for your work on this and for taking the time to speak with me about it, @spichaksimon.bsky.social. Needless to say, these evidence-based guidelinesβ¦are neither evidence based nor soundly worded guidance. @longcovidphysio.bsky.social @workwellfoundation.bsky.social
26.11.2024 02:34 β π 87 π 42 π¬ 7 π 1
π Exciting News! π
We have some exciting updates to share! We've launched a brand-new Facebook page to bring you even more amazing content and updates!
πClick this link to visit our new and improved Facebook page! www.facebook.com/workwellfoundationorg
We'd love for you to follow us.
Thank you!
21.11.2024 20:08 β π 2 π 0 π¬ 0 π 0
wwhealth.co
#WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3TP6enm
#MECFS #LongCOVID #DoNoHarm #WorkwellFoundation
21.11.2024 18:30 β π 14 π 4 π¬ 0 π 0
Small Group Mentoring for Rehab Clinicians
Now recruiting at Workwell Health NOW INTRODUCING Small Group Mentoring for Rehab Clinicians Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise (PEM) is a life-altering con
@4WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3SQeJj8#MECF...
08.12.2023 20:59 β π 7 π 2 π¬ 0 π 0
#WorkwellFoundation hopes to grow the ranks of clinicians who understand #MECFS and #LongCOVID and who can help meet the challenging needs of these underserved patient populations.
Read more: conta.cc/4eDBxcZ
#BlackFriday #Education #Sale #MillionsMissing #pwME #pwLC #PEM #PESE #PENE #Medbridge
18.11.2024 16:36 β π 11 π 4 π¬ 0 π 0
Tagging orgs here π¦. Add any I've missed! And others you'd like @hankgreen.bsky.social @johngreensbluesky.bsky.social to know! @meactnet.bsky.social @openmedf.bsky.social @polybiorf.bsky.social @patientled.bsky.social @renegaderesearch.bsky.social @rthm.bsky.social @workwellfoundation.bsky.social
18.11.2024 06:10 β π 12 π 5 π¬ 0 π 0
This weekend in these cruel waves my spirit is holding on to the lifebuoy studies & genuinely caring work of @workwellfoundation.bsky.social @sunsopeningband.bsky.social @physiosforme.bsky.social @longcovidphysio.bsky.social , actual experts on exercise/exertion & #ME #PEM #PENE
18.11.2024 00:37 β π 20 π 1 π¬ 2 π 0
"Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and #longCOVID" by @workwellfoundation.bsky.social
From the AMMES November 2024 Newsletter
workwellfoundation.org/pacing-with-...
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME @sunsopeningband.bsky.social
16.11.2024 14:43 β π 32 π 8 π¬ 7 π 1
Small Group Mentoring for Rehab Clinicians
Now recruiting at Workwell Health NOW INTRODUCING Small Group Mentoring for Rehab Clinicians Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise (PEM) is a life-altering con
@4WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3SQeJj8#MECF...
08.12.2023 20:59 β π 7 π 2 π¬ 0 π 0
Workwell Teams up with STAT Health | Workwell Foundation
Workwell Foundation recently teamed up with Daniel Lee, the co-founder and CEO of STAT Health, to test an exciting new in-ear wearable device that measures blood flow to the head.
Workwell teams up with STAT Health
Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM.Β
Check out our new blog on this exciting collaboration!
15.11.2023 21:59 β π 23 π 5 π¬ 0 π 0
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de MΓ©xico. #ME #MECFS #POTS #LongCovid
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/ME/Longcovid/EDI/all views my own
she/her
Physical Therapist β’ Athletic Trainer β’ Tap Dancer β’ Long COVID since March 2020 β’ π πππ
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. Itβll be ok in the end. If itβs not ok then it ainβt the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
American Designer without limits: graphic, jewelry, homes, clothing & etc... from concept to reality!
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Scientific Director, #MEAction
Stanford Med
UniversitΓ© de MontrΓ©al
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid β’ Renegade-Research.org β’ RemissionBiome.org π Donate now βΆοΈ tinyurl.com/44azdsxm
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 30 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon