Might save a life.
08.03.2025 00:36 β π 30238 π 14985 π¬ 230 π 476@shelmish.bsky.social
#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns π³οΈβππ³οΈββ§οΈ Mainly here for pics of dahlias, dogs with underbites and macro bugs π MA in Forensic Linguisticsπ§βπ Love my garden and my elderly pupper
Might save a life.
08.03.2025 00:36 β π 30238 π 14985 π¬ 230 π 476Neil Riley, Chairman of the M.E. Association has resigned
t.co/SfzBRiZVPJ
We are experiencing an assault on science unparalleled by anything Iβve seen in my life. Itβs not one issue or another anymore, the entire institution is under attack by the most powerful individuals in the country.
This Friday, where will you be?
standupforscience2025.org
Turns out Zelenskyy is good at standing up against dictators.
28.02.2025 18:56 β π 22291 π 3422 π¬ 266 π 108This is a gut-wrenching, beautifully written essay. A doctor must watch helplessly as children die because USAID's freeze on aid has limited access to nutritional supplements. time.com/7258248/us-f...
25.02.2025 12:56 β π 2150 π 748 π¬ 42 π 46FYI: You might know me as any number of things, but one of the things I am is a YouTuber who has been running a yearly charity event since 2007. Thatβs going to become apparent on my bsky feed over the next four or five days.
You can learn more about it at projectforawesome.com.
A diverse flight crew of a gay guy, a Black man, and a woman
A gay guy, a Black man, and a woman walk into a flight deckβ thatβs not the beginning of a joke, but just a regular day at work! There was so much DEI on this plane that we could hardly get in the air. Luckily my limp wrists were able to wrestle the heavy jet back to the ground π πΌ
02.02.2025 01:19 β π 51878 π 6411 π¬ 890 π 418If youβre a government employee, thank you for your service & hereβs a resource you may find helpful. Stay strong. www.civilservicestrong.org
01.02.2025 16:17 β π 24805 π 8768 π¬ 335 π 207The lack of gynecological care for homebound people with uteruses is abysmal. I haven't had a smear test for 5 years because they won't provide them during a home visit. On my record it says I have refused them.
30.01.2025 12:10 β π 4 π 0 π¬ 1 π 0Photo of Bishop Mariann Edgar Budde.
This is the face of courage and compassion. Thank you Bishop Mariann Edgar Budde for speaking truth to power on behalf of the marginalized.
22.01.2025 15:11 β π 81008 π 12646 π¬ 1361 π 618Disability benefits need at least doubling, not cutting, if Labour wants more people back in work any time soon - because NHS is not there for us and we're having to self fund and treat ourselves.
www.bigissue.com/news/social-...
#DWP #Benefits #UKLabour
Petition: Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
βDoctors have told Line that if she does not get out of bed during the next 2 weeks, she will be forcibly committed to a psychiatric hospital.β
www.change.org/p/prevent-fo...
I am a former incarcerated firefighter. I served in a California fire camp from 2009 to 2012.
Misinformation is afire on the internet, so here are facts about the prison firefighter program, all in one place.
A thread.
Myalgic Encephalomyelitis.
Life altering and heavily stigmatised.
#Health #PwME
January is not the month for resolutions. Weβre all sick, exhausted, cold, broke, depressed and back at work against our will. January *is* the month for outrageous Victorian self-care rituals, because who needs a new gym membership when you can just take a good turn about the room for your agonies.
03.01.2025 14:24 β π 1782 π 345 π¬ 53 π 29Writing about Errol Graham - who starved to death in 2018 - always stayed with me. That the Tories spent Β£50,000 trying to stop the release of a review into his death is sickening. Thereβs money to hide the truth but none to help a disabled man eat.
www.theguardian.com/politics/202...
To everyone with #ME who has been unwell since long before the pandemic, knows they not getting any better, and feels as if they have been forgotten: I may not know you by name but I think of you every single day. 2025 is going to be different. Hopefully better.
With love and respect from me to you.
Alt text: Square yellow post with dark green text reading: βWhy do peeple post about their illness online? β’ To connect with others who share the same experiences β’ To find community β’ To support others β’ To help others feel seen β’ To feel less lonely and isolatedβ βTo raise awareness and showcase what it's like to live with chronic illness β’ To educate healthy folks β’ To document their journey β’ To have an outlet β’ To help their mental health β’ It's cheaper than therapyβ Credit to The Twenty Something Spoonie on Instagram.
19.12.2024 19:47 β π 71 π 22 π¬ 0 π 0Her: "<cough> I've dragged myself out of bed so as not to let you down. <cough> I've left all the rest of the <cough> family really ill at home, but don't <cough> worry, I've not touched anything. <cough>"
Folks... she's a *critical care nurse*
If you ever share / repost anything, please let it be this
30.12.2024 16:26 β π 5587 π 5340 π¬ 52 π 137Absolutely!
30.12.2024 23:16 β π 0 π 0 π¬ 0 π 0disgusting isn't it?!
30.12.2024 20:17 β π 3 π 0 π¬ 1 π 0A lady I worked for in 2020, and had cerebral palsy, came home from a trip to our local NHS hospital, with a copy of a DNR for her GP. It was never discussed with her, myself as her carer, or her family. Was she at risk of dying? No, she went in with constipation!
30.12.2024 12:27 β π 25 π 4 π¬ 2 π 0Apparently HM Government appears to think autism & ADHD are βlightβ SEN conditions. (FT interview).
I wonder if they have read the NHS long term plan, the suicide prevention plan, the suicide rate, the SEN exclusion rate, the prison populationβ¦
Asking for someone to explain!
After nearly three decades, a Minnesota summer camp for kids with HIV/AIDS is closing and up for sale... because retroviral drugs are so effective that there aren't enough campers.
Science works, y'all.
www.startribune.com/closure-of-n...
The Mayor of Mazan (the French town where Gisele Pelicot was assaulted) said that it could have been worse and βat least no one was killed & she wasnβt consciousβ
I donβt understand why men continue to downplay the horrors that happened
Do NOT tell the victim of mass rape it βcould be worseβ