Mish πŸ›ŒπŸ’™'s Avatar

Mish πŸ›ŒπŸ’™

@shelmish.bsky.social

#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns πŸ³οΈβ€πŸŒˆπŸ³οΈβ€βš§οΈ Mainly here for pics of dahlias, dogs with underbites and macro bugs 😍 MA in Forensic LinguisticsπŸ§‘β€πŸŽ“ Love my garden and my elderly pupper

255 Followers  |  561 Following  |  10 Posts  |  Joined: 03.10.2023  |  2.2321

Latest posts by shelmish.bsky.social on Bluesky

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Might save a life.

08.03.2025 00:36 β€” πŸ‘ 30238    πŸ” 14985    πŸ’¬ 230    πŸ“Œ 476
https://meassociation.org.uk/kmzm

Neil Riley, Chairman of the M.E. Association has resigned
t.co/SfzBRiZVPJ

04.03.2025 14:46 β€” πŸ‘ 11    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

We are experiencing an assault on science unparalleled by anything I’ve seen in my life. It’s not one issue or another anymore, the entire institution is under attack by the most powerful individuals in the country.

This Friday, where will you be?

standupforscience2025.org

02.03.2025 16:27 β€” πŸ‘ 44503    πŸ” 12169    πŸ’¬ 648    πŸ“Œ 402

Turns out Zelenskyy is good at standing up against dictators.

28.02.2025 18:56 β€” πŸ‘ 22291    πŸ” 3422    πŸ’¬ 266    πŸ“Œ 108
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What Gutting USAID Means for My Young Patients in Burundi β€œTo my patients and their mothers, I offered apologies from the American people,” writes Dr. Jennifer Furin.

This is a gut-wrenching, beautifully written essay. A doctor must watch helplessly as children die because USAID's freeze on aid has limited access to nutritional supplements. time.com/7258248/us-f...

25.02.2025 12:56 β€” πŸ‘ 2150    πŸ” 748    πŸ’¬ 42    πŸ“Œ 46
Project For Awesome 2025

FYI: You might know me as any number of things, but one of the things I am is a YouTuber who has been running a yearly charity event since 2007. That’s going to become apparent on my bsky feed over the next four or five days.

You can learn more about it at projectforawesome.com.

13.02.2025 15:42 β€” πŸ‘ 7289    πŸ” 560    πŸ’¬ 47    πŸ“Œ 18
Post image 02.02.2025 19:02 β€” πŸ‘ 681    πŸ” 276    πŸ’¬ 24    πŸ“Œ 15
A diverse flight crew of a gay guy, a Black man, and a woman

A diverse flight crew of a gay guy, a Black man, and a woman

A gay guy, a Black man, and a woman walk into a flight deckβ€” that’s not the beginning of a joke, but just a regular day at work! There was so much DEI on this plane that we could hardly get in the air. Luckily my limp wrists were able to wrestle the heavy jet back to the ground πŸ’…πŸΌ

02.02.2025 01:19 β€” πŸ‘ 51878    πŸ” 6411    πŸ’¬ 890    πŸ“Œ 418
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Civil Service Strong: Resources for Civil Servants Effective. Impartial. Resilient. The civil service comprises dedicated, nonpartisan federal employees who work tirelessly across the country and around the world to ensure the effective delivery of go...

If you’re a government employee, thank you for your service & here’s a resource you may find helpful. Stay strong. www.civilservicestrong.org

01.02.2025 16:17 β€” πŸ‘ 24805    πŸ” 8768    πŸ’¬ 335    πŸ“Œ 207

The lack of gynecological care for homebound people with uteruses is abysmal. I haven't had a smear test for 5 years because they won't provide them during a home visit. On my record it says I have refused them.

30.01.2025 12:10 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Photo of Bishop Mariann Edgar Budde.

Photo of Bishop Mariann Edgar Budde.

This is the face of courage and compassion. Thank you Bishop Mariann Edgar Budde for speaking truth to power on behalf of the marginalized.

22.01.2025 15:11 β€” πŸ‘ 81008    πŸ” 12646    πŸ’¬ 1361    πŸ“Œ 618
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Disability benefits cuts will be 'devastating' and 'increase poverty', Labour told Labour has pledged to slash to cut the disability benefits bill, even after a High Court ruling found a consultation to be unlawful.

Disability benefits need at least doubling, not cutting, if Labour wants more people back in work any time soon - because NHS is not there for us and we're having to self fund and treat ourselves.

www.bigissue.com/news/social-...

#DWP #Benefits #UKLabour

21.01.2025 10:51 β€” πŸ‘ 89    πŸ” 20    πŸ’¬ 7    πŸ“Œ 0
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Sign the Petition Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

Petition: Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

”Doctors have told Line that if she does not get out of bed during the next 2 weeks, she will be forcibly committed to a psychiatric hospital.”

www.change.org/p/prevent-fo...

20.01.2025 13:52 β€” πŸ‘ 23    πŸ” 19    πŸ’¬ 0    πŸ“Œ 0

I am a former incarcerated firefighter. I served in a California fire camp from 2009 to 2012.

Misinformation is afire on the internet, so here are facts about the prison firefighter program, all in one place.

A thread.

15.01.2025 01:20 β€” πŸ‘ 14273    πŸ” 6480    πŸ’¬ 367    πŸ“Œ 1130
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Myalgic Encephalomyelitis.

Life altering and heavily stigmatised.

#Health #PwME

11.01.2025 11:20 β€” πŸ‘ 14    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

January is not the month for resolutions. We’re all sick, exhausted, cold, broke, depressed and back at work against our will. January *is* the month for outrageous Victorian self-care rituals, because who needs a new gym membership when you can just take a good turn about the room for your agonies.

03.01.2025 14:24 β€” πŸ‘ 1782    πŸ” 345    πŸ’¬ 53    πŸ“Œ 29
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DWP spent Β£50,000 trying to stop release of review into disabled man’s death Previous government spent almost Β£1m trying to prevent release of documents in 56 legal cases

Writing about Errol Graham - who starved to death in 2018 - always stayed with me. That the Tories spent Β£50,000 trying to stop the release of a review into his death is sickening. There’s money to hide the truth but none to help a disabled man eat.
www.theguardian.com/politics/202...

02.01.2025 11:19 β€” πŸ‘ 243    πŸ” 117    πŸ’¬ 7    πŸ“Œ 3

To everyone with #ME who has been unwell since long before the pandemic, knows they not getting any better, and feels as if they have been forgotten: I may not know you by name but I think of you every single day. 2025 is going to be different. Hopefully better.
With love and respect from me to you.

01.01.2025 14:50 β€” πŸ‘ 56    πŸ” 11    πŸ’¬ 9    πŸ“Œ 0
Alt text: Square yellow post with dark green text reading: β€œWhy do peeple post about their illness online? β€’ To connect with others who share the same experiences β€’ To find community β€’ To support others β€’ To help others feel seen β€’ To feel less lonely and isolated”
β€œTo raise awareness and showcase what it's like to live with chronic illness β€’ To educate healthy folks β€’ To document their journey β€’ To have an outlet β€’ To help their mental health β€’ It's cheaper than therapy” Credit to The Twenty Something Spoonie on Instagram.

Alt text: Square yellow post with dark green text reading: β€œWhy do peeple post about their illness online? β€’ To connect with others who share the same experiences β€’ To find community β€’ To support others β€’ To help others feel seen β€’ To feel less lonely and isolated” β€œTo raise awareness and showcase what it's like to live with chronic illness β€’ To educate healthy folks β€’ To document their journey β€’ To have an outlet β€’ To help their mental health β€’ It's cheaper than therapy” Credit to The Twenty Something Spoonie on Instagram.

19.12.2024 19:47 β€” πŸ‘ 71    πŸ” 22    πŸ’¬ 0    πŸ“Œ 0

Her: "<cough> I've dragged myself out of bed so as not to let you down. <cough> I've left all the rest of the <cough> family really ill at home, but don't <cough> worry, I've not touched anything. <cough>"

Folks... she's a *critical care nurse*

31.12.2024 09:26 β€” πŸ‘ 803    πŸ” 111    πŸ’¬ 33    πŸ“Œ 13
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If you ever share / repost anything, please let it be this

30.12.2024 16:26 β€” πŸ‘ 5587    πŸ” 5340    πŸ’¬ 52    πŸ“Œ 137

Absolutely!

30.12.2024 23:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

disgusting isn't it?!

30.12.2024 20:17 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

A lady I worked for in 2020, and had cerebral palsy, came home from a trip to our local NHS hospital, with a copy of a DNR for her GP. It was never discussed with her, myself as her carer, or her family. Was she at risk of dying? No, she went in with constipation!

30.12.2024 12:27 β€” πŸ‘ 25    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

Apparently HM Government appears to think autism & ADHD are β€œlight” SEN conditions. (FT interview).

I wonder if they have read the NHS long term plan, the suicide prevention plan, the suicide rate, the SEN exclusion rate, the prison population…

Asking for someone to explain!

28.12.2024 16:09 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Closure of northern Minnesota camp is β€˜the greatest story.’ Here’s why. Willow River, Minn., camp One Heartland is for sale after serving kids there for nearly three decades.

After nearly three decades, a Minnesota summer camp for kids with HIV/AIDS is closing and up for sale... because retroviral drugs are so effective that there aren't enough campers.

Science works, y'all.

www.startribune.com/closure-of-n...

27.12.2024 21:46 β€” πŸ‘ 26790    πŸ” 5329    πŸ’¬ 322    πŸ“Œ 509
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French village of Mazan torn apart by horror of mass rape trial Fifty-one men are on trial in France for raping a woman drugged by her husband in the village of Mazan.

The Mayor of Mazan (the French town where Gisele Pelicot was assaulted) said that it could have been worse and β€œat least no one was killed & she wasn’t conscious”

I don’t understand why men continue to downplay the horrors that happened

Do NOT tell the victim of mass rape it β€œcould be worse”

20.12.2024 02:58 β€” πŸ‘ 202    πŸ” 42    πŸ’¬ 13    πŸ“Œ 7

@shelmish is following 20 prominent accounts