PZ-Recherche: Wo bleiben die Medikamente gegen Long Covid?
Für Patienten mit Post Covid gibt es kaum Therapiemöglichkeiten. Experten forderten jetzt im Gesundheitsausschuss des Bundestags mehr Forschung u...
Für Patienten mit #LongCovid gibt es kaum Therapiemöglichkeiten.
Experten forderten im Gesundheitsausschuss des Bundestags mehr Forschung und Aufklärung zur Ausprägung #ME/CFS. Die Liste der Medikamente, die off Label erstattungsfähig werden sollen, lässt weiter auf sich warten.
#TeamVorsicht
18.10.2025 05:08 — 👍 4 🔁 3 💬 0 📌 0
Interesting. Nicotine patches help people with long covid. Good.
18.10.2025 06:02 — 👍 0 🔁 1 💬 0 📌 0
This post has had quite a bit of attention on other platforms, so I just want to highlight and thank @investinmeresearch.bsky.social They’ve been running the #IIMEC conference every year since 2006, entirely organised by volunteers. A huge effort supporting #MECFS research and pushing for change.
18.10.2025 06:09 — 👍 23 🔁 11 💬 0 📌 0
Tweet by Dr. Maíréad De Búrca PhD responding to another user about COVID immunity. She writes: “If we had immunity to COVID, we wouldn't get infected repeatedly. We wouldn't have COVID ‘waves’ again & again. We wouldn't keep getting sick. Think.”
Below it is a quoted tweet by Esther (@ELHopkins) saying she’s tired of the lack of logic, noting that many people she knows currently have COVID even though UKHSA claims “high levels of population immunity.”
Posted Oct 16, 2025.
There’s no number of COVID infections that will make you immune to COVID.
The more times you catch it, the higher your risk of Long COVID — and other serious health problems.
17.10.2025 01:45 — 👍 146 🔁 46 💬 1 📌 0
Sunbeam dirty air filter. Black smudges.
Clean the air in daycare and schools.
#SaferAir
#KidsHealth
#longCOVIDkids
17.10.2025 05:30 — 👍 114 🔁 38 💬 3 📌 0
Beyond all reason
Long COVID patients are constantly harangued about our requests for COVID safety. Yet what we're asking for is far less than what we're called on to do to survive.
www.thegauntlet.news/p/beyond-all...
“Long COVID can happen to anyone. We keep saying it. Nobody listens. For convenience I continue to separate “those with Long COVID” who must avoid another infection from those without- who can afford some mystery number of infections. But it’s possible your…”
👇💯
17.10.2025 06:01 — 👍 3 🔁 2 💬 0 📌 0
“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.”
Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference.
Thanks to @mecfsskeptic.bsky.social for finding the clip.
16.10.2025 18:36 — 👍 54 🔁 23 💬 1 📌 2
Long Covid Is Real -- And It's Changing an Entire Generation
Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.
It's always good to see mainstream publications like @rollingstone.com cover Long COVID, and this focus on children (and particularly school accommodations) is much needed. But I was disappointed to see a huge factual error in the piece... (1/4) www.rollingstone.com/culture/cult...
16.10.2025 18:57 — 👍 59 🔁 23 💬 1 📌 0
But since the earliest days of the second Trump administration, the dollars that could help those suffering from the illness have quietly faded away. In March, cuts to the National Institutes of Health (NIH) disappeared the nearly $2 billion invested in the RECOVER (Researching Covid to Enhance Recovery) initiative, hamstringing research that might have yielded diagnostic tests or better treatments. The same week, the administration shuttered the Department of Health and Human Services’ Office of Long Covid Research and Practice.
Toward the top, the story claims that Trump administration cuts to the NIH "disappeared" the RECOVER program. Which is completely false? RECOVER has continued operating, the observational arms are coming up on five years, and TLC is launching new clinical trials. (2/4)
16.10.2025 18:57 — 👍 24 🔁 7 💬 4 📌 2
The Long Battle with Long COVID
Mount Sinai: "The Long Battle with Long COVID"
'Two leading experts, Zijan Chen, MD and David Putrino, PhD, talk about where things stand with long COVID research and treatment'
www.mountsinai.org/about/newsro...
16.10.2025 19:30 — 👍 18 🔁 5 💬 1 📌 0
Aerobic exercise is contraindicated in long covid with PEM
Interventions for the management of long covid (post-covid condition): living systematic review
Rapid Response: Aerobic exercise is contraindicated in long covid with PEM
www.bmj.com/content/387/...
Another cracking letter from Dr Selina Shaw
16.10.2025 19:43 — 👍 6 🔁 1 💬 0 📌 0
www.mein-kind-kann-nicht-mehr.de/files/mein-k...
Bericht Erstattung von sat 1 zur großen #mecfs - Demo vorm BMFTR am 15.10.25
16.10.2025 18:38 — 👍 3 🔁 4 💬 0 📌 0
www.mein-kind-kann-nicht-mehr.de/files/mein-k...
Bericht Erstattung von RBB 24 zur großen #mecfs - Demo vorm BMFTR am 15.10.25
16.10.2025 18:40 — 👍 6 🔁 3 💬 0 📌 0
Part 1- Nevra got ME at 6, missing her childhood — and now her 20s are being stolen too. She’s still so ready to live but has declined further and can no longer make videos.
www.gofundme.com/f/save-nevra
#MutualAid #pwME #SevereME #DisabilityJustice
#DomesticViolence
#mecfs
16.10.2025 17:21 — 👍 7 🔁 4 💬 1 📌 0
Varicella-zoster virus reactivation and the risk of dementia - Nature Medicine
Large-scale longitudinal health records reveal consistent association of varicella-zoster virus reactivation with dementia.
" Here we present a large-scale longitudinal analysis of health records from more than 100 million individuals in the U.S that demonstrates a consistent relationship of VZV reactivation with dementia after controlling for nearly 400 measured characteristics."
#Neurovirology #Alzheimer
15.10.2025 17:58 — 👍 67 🔁 32 💬 1 📌 2
Long Covid Is Real -- And It's Changing an Entire Generation
Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.
Millions of kids have long COVID. Too sick for school, too often dismissed.
Funding's gone, support's fading, and they're told it's all in their heads.
The pandemic didn't end for them. It just got lonelier.
www.rollingstone.com/culture/cult...
archive.ph/xJgda
16.10.2025 13:38 — 👍 56 🔁 23 💬 2 📌 2
Hab jetzt per Kontakformuler geschrieben was ich davon halte und das sollten ganz ganz viele aufrichtige Demkraten ebenfalls tun
Guten Morgen Herr Merz,
als Bundeskanzler sind Sie dem Grundgesetz und dem Wohle des dt. Volkes verpflichtet.
Wie kann es da sein, dass Sie in einer Rede am 14.10.2025
16.10.2025 06:33 — 👍 24 🔁 8 💬 1 📌 2
A colorized electron micrograph of pink HPV particles contrast on a light blue background. The text reads, "The Sick Times. Long COVID Research Updates. A large study found SARS-CoV-2 infection is associated with elevated risks of Human Papillomavirus (HPV)-related cancer. A small study found a potential blood test for ME with a specificity of 98%. Researchers have developed a device that may be able to accurately measure microclots in children with Long COVID."
A large electronic health records study found SARS-CoV-2 infection is associated with elevated risks of Human Papillomavirus (HPV)-related cancer. The study included data from nearly 5 million participants, over 1.2 million of whom had a documented SARS-CoV-2 infection in 2020. Over a three-year follow-up period, researchers found that the participants who’d had COVID-19 were more likely to develop new HPV-related cancers, including cervical, vaginal, vulvar, anal, and oropharyngeal (a specific part of the throat) cancers. The study, published in Discover Oncology, adds to a growing body of research that suggests that SARS-CoV-2 may contribute to an increased risk of various cancers.
A small study in the Journal of Translation Medicine found a potential blood test for myalgic encephalomyelitis (ME). Researchers assessed the blood of 47 people with ME, compared to 61 controls. Using a specific test of gene expression changes (epigenetics) that the researchers had previously developed, called EpiSwitch, they were able to identify the disease with a sensitivity of 92% and a specificity of 98%. Still, some outside researchers said the results are “premature” and need to be validated in larger independent studies.
Researchers have developed a device that may be able to accurately measure fibrinaloid microclots in children. In the study, shared in a preprint, researchers used the device to test the blood of 45 children with Long COVID, comparing them to 14 healthy controls. “We estimated a 94% accuracy for the microclot count using the devices,” the authors wrote, stating that they also found the highest microclot counts in samples from patients who also had SARS-CoV-2 spike protein present in their blood samples. Researchers have long theorized that microclots may drive some Long COVID symptoms. The study’s authors stated their results will need to be validated in larger and more diverse populations, and that the test could be used as a biomarker.
🔬 Large study found SARS-CoV-2 infection associated with elevated risks of HPV-related cancer
🩸 Small study found a potential blood test for ME
🧸 Researchers have developed device that may be able to measure microclots in children with Long COVID
This week's #LongCOVID research: bit.ly/4hit16m
16.10.2025 14:37 — 👍 37 🔁 17 💬 0 📌 1
Beyond all reason
Long COVID patients are constantly harangued about our requests for COVID safety. Yet what we're asking for is far less than what we're called on to do to survive.
People continue to call COVID advocates’ pleas for masking “unreasonable”.
Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.
My latest:
substack.com/home/post/p-...
15.10.2025 17:10 — 👍 544 🔁 220 💬 20 📌 35
Wo ist denn Frau Ministerin Bär?
Entscheidend sind die Budgets zur Medikamentenforschung. Ca. 2 Mio betroffene Kinder und Erwachsene in Deutschland können nicht weitere 10-20 Jahre warten!
Und mit jeder weiteren Covid Infektion werden es mehr!!!
16.10.2025 15:49 — 👍 5 🔁 1 💬 1 📌 0
Wo ist denn Frau Ministerin Bär?
Entscheidend sind die Budgets zur Medikamentenforschung. Ca. 2 Mio betroffene Kinder und Erwachsene in Deutschland können nicht weitere 10-20 Jahre warten!
Und mit jeder weiteren Covid Infektion werden es mehr!!!
16.10.2025 15:49 — 👍 5 🔁 1 💬 1 📌 0
If you count yourself in the massive majority of people who pretty much don't want to hear about COVID anymore...please read this thread. I'm sorry. Please. I write this from my father's house, where I am watching Long COVID completely destroy the mind and body of a person I love beyond telling.
16.10.2025 15:02 — 👍 47 🔁 15 💬 2 📌 0
Das Cover des Buches "Die verdrängte Pandemie - linke Stimmen gegen den Pandemierevisionismus"
Die erste Seite des Inhaltsverzeichnisses.
Hurra! DAS Buch ist angekommen!
"Die verdrängte Pandemie"
👀 @freval
#COVID19 #LongCovid
16.10.2025 15:32 — 👍 21 🔁 7 💬 0 📌 1
Headline says long Covid is real and it’s changing an entire generation hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize
Long Covid will steal the future from our children. Unless we do something about it.
www.rollingstone.com/culture/cult...
16.10.2025 15:37 — 👍 62 🔁 25 💬 5 📌 0
ClinicalTrials.gov
In Hannover läuft derzeit für #PostCOVID ein "PACE-Trial 2.0" (nur diesmal gleich ohne Kontrollgruppe).
Öffentliche Mittel für #PAIS -Forschung benötigen dringend einen besseren Verfahrensrahmen, der Qualität und Betroffenensicherheit gewährleistet.
#MECFS
📄ℹ️➡️ clinicaltrials.gov/study/NCT060...
16.10.2025 12:28 — 👍 22 🔁 9 💬 0 📌 0
Cure Long Covid & ME/CFS berlinbuyersclub.com
SH #TeamScience,😷💉11x #KinderdurchseuchungStoppen, #Klimakrise bekämpfen, für #Inklusion gegen narzisstische Arschl@cher, #FckAFD, Demokratin, Mitgefühl und Liebe statt Hass, #wirsindmehr #wirsindbunt, #PostCOVID #MECFS 💚💚 #standwithUkraine (she/her)
An #openaccess journal from #TheBMJ for specialist research that promotes multidisciplinary collaboration to improve the health of patients
23 | #MECFS #SFN |
hausgebunden
One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
🦼 #ME/CFS
Hungry for life, future, perspective.
Instead, stagnation, trapped in MECFS hell
"and then you have no choice but to search for life in the ruins" (A. L. Tsing)
#FCKNZ #noAFD
#LearnaboutME https://www.mecfs.de/was-ist-me-cfs/
Bis 08/23: Schule, Schach, Prog, Wandern, Politik, Fußball, Kultur, Wein, Schallplatten, Kunst. Seit 08/23: schwer an #MECFS #POTS #MCAS #CCI erkrankt und 23h/Tag bettlägerig. Komplett hausgebunden.
Antifaschistin. #eisern
11x💉🇺🇦🇪🇺🚲🧑🍳🥘🍰🐝
Für ein gemeinsames, demokrat. Europa, Medizin & Wissenschaft vs. alternative Fakten, für Bildung & Medienkompetenz; IT(K); Gegen rechtes Gedankengut
📢 Aktuell: https://bsky.app/profile/drmccoy.info/feed/aaanqyciujq2s
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
Ärztin, Team Praxis, she/her
#ÄrzteGegenRechts
#NoAfD
#MECFS #PostCovid
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Bildung, Beteiligung, Demokratie.
Policy. Advocacy. Public Health. Health Equity. SRHRJ. COVID-19.
Consultant to nonprofits and social impact organizations.
Harvard and Sarah Lawrence alum.
New Yorker. Midwesterner.
She/her.
editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Composer who is currently working on a Song Cycle.
Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife.
#Covidisairborne #FBCV
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#WearARespie ffp2/3
❌ to mask bans
#TransparencyCovid
Vote Green Party 💚
Artist | Author of THE LANGUAGE OF TREES | Rights of Nature 🌿Climate Justice | Long COVID 😷 Dysautonomia 🫠 | Tree Alphabet | Irish | Born @331ppm | RESIST
Bio: https://www.katieholten.com/about
Language of Trees: https://bit.ly/LanguageTrees
Wir, die Initiative #LiegendDemo, demonstrieren für Menschen mit #MECFS; egal, wodurch die Erkrankung ausgelöst wurde. Für #aufklärung #versorgung #forschung
Link zur Website:
https://mecfs-info.de
Link zu den Wert-T-Shirts:
https://shorturl.at/9bR9p