Penny

Still no reply forthcoming from my local MP. So disappointing. Must I share every minute detail of how awful it is to have one's life shredded by chronic illness? Sorry, but we all already have to live under a microscope! #TakingThePIP #StopTakingThePIP #CareNotCuts

Let's hope so. But in fairness, Scope have been a driving force since the proposals were announced.

The Disability Charity Scope handed a petition with over 100,000 signatories to 10 Downing Street today. Requesting that the welfare cuts do not go ahead. www.instagram.com/p/DK9f3OjMcoj/
#StopTakingThePIP #TakingThePIP

Instagram Create an account or log in to Instagram - Share what you're into with the people who get you.

www.instagram.com/reel/DK2C-Br...

How are you doing, Sheryl? Thinking of you. Xx

Liz Kendall MP posted a video about Carers Week. Not welcome.

I am awaiting a reply from my local MP. I have emailed twice, requesting that they consider voting no. I have shared more than I wanted to, but had to.

Incredible work you all do. Puts a lump in my throat.🐘💕

Text Image: Well, I have sent a SECOND email to our local MP asking him to vote against proposed cuts to PIP etc. Hopefully I will receive a reply/acknowledgement this time, as I lack capacity to send another. My soul has been laid bare, I have nothing more I can say. Over to you Sir John! #StopTakingThePIP #TakingThePIP

As the proposals are due to be debated imminently, I have emailed again.
#TakingThePIP #StopTakingThePIP #ChronicIllness #Disability

A deep pink rose in bloom in the sunshine

#RoseWednesday Such a pretty bloom, very dense with a delicate perfume ⚘️

ChatGPT is down but The Museum of English Rural Life still stands, proving once again that Silicon Valley cannot compete with the history of rural England and its people.

In Voi, Rokka leads the orphan herd onto the vast - food filled plains - of Tsavo East.

With donor support, this is what second chances look like for orphaned elephants we rescue and raise. Be part of our mission to save individuals and support entires species; adopt or donate at: swt.bio/rokka

Birmingham’s free-running bull rehomed in Norwich animal sanctuary The animal, thought to have escaped from an abattoir, was corralled by council staff before being offered his new home

Wendy Valentine, founder of the Hillside Animal sanctuaries in Frettenham near Norwich & in East Runton on the north Norfolk coast, has given a home to Birmingham’s free-running bull.

We wish Liam & Wendy every happiness & encourage our readers to visit & see their work.

Report via The Guardian

Yes, you for have to stand your ground and be clear with that one for sure. They don't deal in subtleties.

I'm not sure if there is another term. My GP has described me as bed/housebound. Unless one would wish to use a sentence to describe the situation in more detail to soften the harsh reality I guess?

😔

Mmm. I may know where the buttons are. But the last time I saw the maypole, it was being used as a hobby horse atop with St Hibble's papier maché head. Whether it survived that particularly rainy day is a mystery.

#RoseWednesday

A blush pink rose in bloom

A rose in the garden has finally bloomed.🌹...beautiful scent too.

If the cast are in need of props, such as Bunting, I can't provide any. But looking forward to the mysterious plot being unravelled.

@mfairma.bsky.social thank you for sharing.

#BlueSundayForME #TeaPartyForME2025
I have donated to @smileforme and @meresearchuk - two proactive voices for the ME Community.💙

Thank to Anna of @theslowlane.me for this incredible initiative which has so far raised £100,000. for ME Charities.

And enjoy your cuppa!
☕️🍰😋

That's fabulous, an imaginary ME Village. Love it! I have found the fb group, thanks so much.

Yes, I'm in the UK. Thanks for the link. I will definitely hope to join a group call, but I do struggle with zoom in general. It is great to know about Pillow Writers. What a lovely initiative. Do you all mainly communicate via zoom groups, or do you have other online presence?

Thank you so much. And thanks so much for reaching out. Good to know of Pillow Writers.💙

May – ME Awareness Month I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the …

You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness  #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow

hopefoundinme.com/2025/05/12/m...

Even if disenfranchised, why vote for Reform?

ME Awareness Month poster describing why with 20+ years of ME I don't enjoy this month.

ME is real & takes a wrecking ball to people's lives, families, circumstances, careers, finances, hopes and dreams. Many, are not believed/supported, just belittled & gas lit. It MUST change.
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs

Comparison – the Thief of Joy Hello again from here. It is lovely to be writing a little again. Today the letter of ‘MEcfs Street is ~ Aaaaaaggh’!! Seriously though, thank you Sesame Street for the many cheery episo…

New on the blog. Thankful to have a space I can pour a few thoughts out.
Do pop by.

hopefoundinme.com/2025/04/23/c...

#HappyThursday
#pwME #HomeVisits #MEcfs #NeverGiveUpNeverSurrender #Homebound #MEAwareness #Equality #Disability

Meta Protest – The Society of Authors « All Events

📢Join us tomorrow at Granary Square 1pm for a protest Meta following revelations of pirated books being used to train their large language models. More details below 👇