Amy's Avatar

Amy

@ajzero118o2xi.bsky.social

Navigating life with SLE lupus | Sharing personal journeys, daily life, and lessons | Inspiring resilience & compassion one story at a time.

23 Followers  |  50 Following  |  38 Posts  |  Joined: 15.01.2025  |  2.0844

Latest posts by ajzero118o2xi.bsky.social on Bluesky

Yes πŸ’™ I wish I could have read it as a teenager. Maybe it would have helped me understand myself a little better back then. It brought back memories of trying to fit in, making mistakes, and feeling everything so intensely.

05.11.2025 02:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

"And in that moment, I swear we were infinite"- Charlie
Finished reading Perks of Being a Wallflower, by Stephen Chbosky and I think this has been my favorite book I've read this year. #booksky πŸ“š

05.11.2025 00:59 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1

If you’re on SNAP or a gov worker not getting paid, Taste Community Restaurant in Fort Worth & Arlington offers pay-what-you-can meals πŸ’› Their mission: to feed, educate & serve Tarrant County’s food-insecure neighbors. #governmentshutdown #snap #tastecommunity

29.10.2025 00:52 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Video thumbnail

So proud of Fort Worth , TX! 10/18/2026
#nokings2.0

21.10.2025 22:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Chronic illness teaches you resilience and to keep showing up even when it’s hard. This past Saturday I did just that. Volunteered at the No Kings Rally in Fort Worth, TX w/my dear friend, because I love this country. Serving, caring, and standing up for what’s right.
#NOKINGS #democracy #USA

21.10.2025 22:11 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

The first half of the book was hard to get through, but once I got past it i ended up really enjoying it. But yes it is a hard one to get started.

19.08.2025 19:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

Saw this today on my way home: #StopStarvingGaza
My heart aches for the people of Gaza.
No one deserves to starve. No child should suffer like this.

28.07.2025 22:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image 04.07.2025 18:03 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Happy Independence Day, TX-30.

Let this day be a reminder that democracy doesn’t protect itself.

We’ve got to keep showing up, speaking out, and standing firmβ€”until freedom feels real for everyone.

04.07.2025 17:08 β€” πŸ‘ 8048    πŸ” 1440    πŸ’¬ 293    πŸ“Œ 33

Getting sick shouldn’t mean going broke.
Healthcare should be a right, not a punishment!

03.07.2025 11:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The joys of having Lupus:
Went to ED for a blood clot.
Left w/a $1K bill & that's w/ insurance! It πŸ’” thinking about the people losing Medicaid or not having insurance. How are they supposed to survive this system?
#usa #Medicaid

03.07.2025 11:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Woke up feeling wrecked from yesterday’s Benlysta infusionβ€”headache, nausea, the whole package. But my husband showed up with my favorite 7 Brew like a true hero. Love and caffeine might not cure lupus, but they sure help me survive it. β˜•β€οΈβ€πŸ©Ή

01.07.2025 13:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

This is very random, but this floss brings me more joy than it probably should. Small wins, y’all. 🌿🦷 #cocofloss #lupus

27.06.2025 00:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I just went to a screening and QA and this film was powerful and inspiring. It even got my teenager asking how high-schoolers in his school district can get involved to help the fight against book bans .thats how impactful it was

18.06.2025 03:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I just attended a screening of this film in Texas and it was powerful and inspiring.

18.06.2025 03:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I just attended a screening of Banned Together in Texas.It was informative, emotional, and a reminder of why voices and stories matter.

18.06.2025 03:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Just attended the Banned Together screening w/my amazing friend πŸ’› Powerful, inspiring, and so needed right now. Grateful for the voices speaking up and standing strong. πŸ“šπŸ’™ #FreedomToRead #BannedTogether

18.06.2025 03:15 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Getting ready for bed and starting this new book tonight. The tagline says β€œThe couple who slays together, stays together”... should I be concerned? πŸ˜…πŸ˜³ πŸ“šπŸ’™

17.06.2025 00:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

In honor of #MensHealthMonth, we’re sharing our new blog highlighting the challenges men with #lupus face β€” including delayed diagnoses, stigma, and more severe complications.

πŸ’™πŸ”— Learn how we’re raising awareness, building community, and supporting men: buff.ly/AKmxWDX

09.06.2025 12:40 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

It took me a few tries to get into A Court of Thorns and Roses. I wasn’t feeling the writing style at first and almost gave up more than once. But once I hit the halfway point, it got so good I couldn’t put it down. Now I’m already on book 3. #bookskyπŸ“š

25.05.2025 16:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

As a woman living with chronic illness this just adds to the anger and frustration I've had since November. Pertussis (whooping cough) is also on the rise just to add to the list, in case you weren't aware.
#chronicillness #USA #politics

22.05.2025 11:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

POV: You try to take a cute selfie but your dog decides it’s their time to shine.
Personal space? Never heard of her.

19.04.2025 02:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image Post image

Ice cream party with a purpose. Sweet treats for everyone, including our sweet pup.
Ben & Jerry’s for the win tonight.
#ben&jerry's #dogs

19.04.2025 01:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Anyone else out there fighting a chronic illness and still trying to find the energy to fight for our democracy too? I’m exhausted mentally, physically & emotionally. But staying silent isn’t an option. #ChronicWarriorsForDemocracy #WeThePeople #AutoimmuneAndActive #StrengthInTruth

18.04.2025 15:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

A fun-filled day at Bishop Arts District, where I never leave without a new book from the local book store and my favorite French candies from Marcel!
#booksky #candy

22.03.2025 00:41 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you, i will add both to my reading list 😊

10.03.2025 21:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Just finished Onyx & now nothing else hits the same-I need more Empyrean! It’s benlysta infusion day, so I’ve got an hour of uninterrupted reading. Currently diving into The Seven Husbands of Evelyn Hugo,any recs for books that i can add to my reading list? #booksky #LupusWarrior

10.03.2025 20:50 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
Post image

To every woman who feels overlooked or unheardβ€”Women’s History Month is a reminder of your strength and worth. Together, we move forward in solidarity.

01.03.2025 14:45 β€” πŸ‘ 13288    πŸ” 2682    πŸ’¬ 347    πŸ“Œ 105

Nobody is celebrating President Trump and Vice President Vance’s embarrassing behavior in the Oval Office more than Vladimir Putin. Today was a distressing moment for those of us who value democracy and America’s role as a force for good.

28.02.2025 21:02 β€” πŸ‘ 2011    πŸ” 380    πŸ’¬ 128    πŸ“Œ 16

We apologize to our Ukrainian supporters. We are embarrassed by how our president and vice president have behaved. We are fighting to redeem the soul of America. πŸ‡ΊπŸ‡Έ

28.02.2025 20:04 β€” πŸ‘ 42111    πŸ” 6192    πŸ’¬ 507    πŸ“Œ 202

@ajzero118o2xi is following 20 prominent accounts