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Fiona Christophers

@fionachris.bsky.social

Nature-loving city dweller. Sewing enthusiast and crafter. Life on pause due to Long Covid Oct 2020. #FBLC #longcovid #me/cfs

301 Followers  |  1,028 Following  |  16 Posts  |  Joined: 04.10.2023  |  2.3525

Latest posts by fionachris.bsky.social on Bluesky

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Failure to focus on covid suppression led to avoidable UK deaths, says expert - BMJ Group UK approach raises questions about medical and scientific advice Early in the covid-19 pandemic, the failure of UK government advisers to follow World Health Organization (WHO) advice and emerging evi...

โ€œHad the UK followed the same strategy and achieved the same excess cumulative death rate by March 2024 as South Korea, 69 instead of 344 deaths per 100,000, it might have prevented up to 180,000 UK deaths.โ€

bmjgroup.com/failure-to-f...

01.10.2025 08:46 โ€” ๐Ÿ‘ 87    ๐Ÿ” 35    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 1
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The UK had by my calculations, per capita, twice the number of fatalities as the Republic of Ireland. Ireland wasnโ€™t exactly gold standard. Experts were begging the UK govt & opposition to follow basic science, to no avail. The UK scientific establishment was silent. Only Independent SAGE spoke out

05.10.2025 21:23 โ€” ๐Ÿ‘ 249    ๐Ÿ” 74    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 0

Itโ€™s five years today since I caught COVID at work and never recovered. Those of us with Long Covid are still not eligible for the Covid vaccine despite proving how susceptible to the virus we are. #longcovid #mecfs

03.10.2025 09:09 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Long Covid Risk for Children Doubles After a Second Infection, Study Finds

Long Covid Risk for Children Doubles After a Second Infection, Study Finds.
Children you say?

#longCOVID

www.nytimes.com/2025/09/30/h...

01.10.2025 03:09 โ€” ๐Ÿ‘ 42    ๐Ÿ” 20    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1

this study highlights that Long Covid remains a risk with every Covid infection, including for children and adolescents.

Particularly relevant as the Children's module opens for the UK Inquiry.

It's nonsense to say that children are and were at no risk from Covid.

01.10.2025 09:14 โ€” ๐Ÿ‘ 173    ๐Ÿ” 101    ๐Ÿ’ฌ 7    ๐Ÿ“Œ 2
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๐ŸšจOur upcoming documentary on the VIP Lane made the ITV news this evening.

โ€œWaste of taxpayers' money': Whistleblower says billions wasted on unfit PPE during Covid pandemicโ€.

๐ŸŽฅTune in to ITV Sunday 10.15pm to watch the rest of โ€œThe Covid Contractsโ€

www.itv.com/news/2025-09...

19.09.2025 22:22 โ€” ๐Ÿ‘ 161    ๐Ÿ” 93    ๐Ÿ’ฌ 11    ๐Ÿ“Œ 13

People are dying from ME without a specialist service, please support this important campaign! #Justice4ME

19.09.2025 12:00 โ€” ๐Ÿ‘ 12    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Where the separate divisions of ANTIFA landed on the beaches of Normandy on June 6, 1944:

18.09.2025 23:19 โ€” ๐Ÿ‘ 36120    ๐Ÿ” 12774    ๐Ÿ’ฌ 861    ๐Ÿ“Œ 649

hey, did you know?

there are tens of millions of people globally suffering with ME/CFS, and there still isn't a single treatment available for it anywhere in the world.

all we have are off-label drugs (that don't address the root condition) which most people can't even access.

13.09.2025 18:50 โ€” ๐Ÿ‘ 27    ๐Ÿ” 7    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ”ฅ Please share - Very important care campaign for anyone with ME #pwME #pwLC โ™ฅ๏ธ๐Ÿ’™๐Ÿซ‚

"Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness"

justice4me.uk

29.08.2025 18:25 โ€” ๐Ÿ‘ 16    ๐Ÿ” 14    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 5
The disease that makes everyone an expert In the absence of a known cause for chronic fatigue syndrome, the illness has become an arena for our fears and anxieties - get CFS and you are labelled a failure

Hark back to when our current Secretary of State for the Appeasement of War Criminals and Other Genocidal Maniacs wrote sarcastically about ME in the Indy...

I think she thought the sarcasm would help. I don't think it does. ๐Ÿ™„

www.independent.co.uk/voices/the-d...

06.09.2025 10:12 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Study Reveals Symptoms Of Long COVID In Young Kids โ€“ Here's What To Look Out For The authors say itโ€™s proof a โ€œone-size-fits-allโ€ approach doesnโ€™t work with this condition.

Now we have toddlers with long COVID! www.iflscience.com/first-of-its...

02.09.2025 08:54 โ€” ๐Ÿ‘ 14    ๐Ÿ” 10    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Link to donate for LEGAL ACTION : #pwME - Currently at ยฃ4754 11:15 31/08/2025

crowdjustice.com/case/justice...

#Justice #JusticeForME
#MyalgicEncephalomyelitis

PLEASE SHARE IF YOU CARE!
(If you havenโ€™t already)

Thank you ๐Ÿ’™

31.08.2025 10:47 โ€” ๐Ÿ‘ 18    ๐Ÿ” 11    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

www.crowdjustice.com/case/justice...
Some of the comments on this fundraiser are heartbreaking, @ashleydaltonmp.bsky.social, I'm sure you're busy with constituency & pre-conference business but please take a moment to read.
Action on this will change history for the better ๐Ÿ™๐Ÿผ

31.08.2025 09:40 โ€” ๐Ÿ‘ 24    ๐Ÿ” 11    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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THIS โฌ‡๏ธ since 2020

โ€œWe found that people with Long COVID are often left to fend for themselves in a system that isnโ€™t adequately informed about their condition and doesnโ€™t offer them appropriate medical supportโ€
www.eurekalert.org/news-release...
@longcovidsupport.bsky.social @joplatt.bsky.social

21.08.2025 05:39 โ€” ๐Ÿ‘ 32    ๐Ÿ” 14    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 3
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Long COVID, Work Impairment, and Financial Outcomes This cohort study describes differences in work and financial outcomes among individuals with current, resolved, and no LC up to 3 years after initial infection

โ˜ ๏ธ Dead people don't shop
โ˜ ๏ธ Sick people can't work

Yet another crucial message regarding the costs of doing fuck allโ€ผ๏ธ

jamanetwork.com/journals/jam...

13.08.2025 08:46 โ€” ๐Ÿ‘ 101    ๐Ÿ” 29    ๐Ÿ’ฌ 6    ๐Ÿ“Œ 1
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What if everyone had masked up? Analysis of app data has an answer Modelling study based on almost 250,000 positive COVID-19 tests in the United Kingdom shows that universal masking could have cut transmission markedly.

UK: What if everyone had masked up? Analysis of app data has the answer:
"Respirators would have dropped the rate of COVID transmission by an estimated factor of 9, compared with 0.6 for surgical masks. A factor of 9 is enough to put SARS-COV-2 into exponential decay!
www.nature.com/articles/d41...

08.08.2025 16:46 โ€” ๐Ÿ‘ 891    ๐Ÿ” 414    ๐Ÿ’ฌ 25    ๐Ÿ“Œ 60
Long COVID, a condition with similar symptoms and starting, like most cases of ME/CFS, after an infection, has one genetic association near FOXP4 (72), but this was not shared with
ME/CFS (p = 0.59 for rs9367106).

Long COVID, a condition with similar symptoms and starting, like most cases of ME/CFS, after an infection, has one genetic association near FOXP4 (72), but this was not shared with ME/CFS (p = 0.59 for rs9367106).

I finally checked the DecodeME preprint to verify the โ€˜no overlap with LCโ€™ claim:

1) DecodeME only had 462 people with C19 caused ME

2) they did not run a separate GWAS on the LC cohort (itโ€™s too small)

3) this is the piece of text people are referring to: itโ€™s just a reference to another study

09.08.2025 07:28 โ€” ๐Ÿ‘ 37    ๐Ÿ” 6    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 3

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

07.08.2025 18:19 โ€” ๐Ÿ‘ 152    ๐Ÿ” 65    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 12
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Today we honor Severe ME.

We hear you.
We see you.
We care.

Today is a day of awareness & visibility for the estimated 25% of people living with Severe ME

#SevereME #SevereMEDay2025

08.08.2025 13:12 โ€” ๐Ÿ‘ 50    ๐Ÿ” 18    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Graphic created by the World ME Alliance for Severe ME Day, on August 8th. Dark background with small photo of a person in bed. Text in circles surround it, each describing the impact of Severe ME.

Graphic created by the World ME Alliance for Severe ME Day, on August 8th. Dark background with small photo of a person in bed. Text in circles surround it, each describing the impact of Severe ME.

Today is #SevereMEDay ๐Ÿ’™

Around 1 in 4 people with ME are severely affected by the condition.

They experience extreme physical, cognitive and sensory dysfunction that leaves them bed or housebound.

08.08.2025 11:01 โ€” ๐Ÿ‘ 11    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

My GP fired me last year.

She didn't feel it was fair that we said that she seemed to know nothing about my illness.

She had admitted that she hadn't read anything about ME/CFS yet, even though I had been her patient for over two years at that point.

17 GPs refused to take me on as a patient.

08.08.2025 10:25 โ€” ๐Ÿ‘ 6    ๐Ÿ” 4    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

Thinking of all those with severe/very severe ME today and always #MECFS #severeMEday

08.08.2025 11:05 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

โ€œPonting said the study wld enable medical researchers to have a โ€˜laser-likeโ€™ focus on where to target treatments or repurpose existing drugs at a โ€˜breakneck speedโ€™. He added: โ€˜Iโ€™m actually quite angry that this [genetic analysis] was not done 15 years ago, just like for every other major disease.โ€™โ€

06.08.2025 19:32 โ€” ๐Ÿ‘ 35    ๐Ÿ” 16    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1
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Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests peopleโ€™s genetics could โ€˜tip the balanceโ€™ on whether they would develop the illness Scientists have found the first robust evidence that peopleโ€™s genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community. Early findings from the worldโ€™s largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. Continue reading...

Scientists find link between genes and ME/chronic fatigue syndrome

06.08.2025 18:15 โ€” ๐Ÿ‘ 326    ๐Ÿ” 155    ๐Ÿ’ฌ 12    ๐Ÿ“Œ 24
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Clip: Channel 4 News, Prof Chris Ponting tells a participant that the DecodeME study found eight genetic differences in people with MECFS โ€” demonstrating that itโ€™s a biological, organic illness.

06.08.2025 18:35 โ€” ๐Ÿ‘ 53    ๐Ÿ” 25    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 2
DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says โ€˜We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.โ€™ At the bottom left of the graphic is an image of a research paper.

DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says โ€˜We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.โ€™ At the bottom left of the graphic is an image of a research paper.

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
-
Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s

06.08.2025 18:24 โ€” ๐Ÿ‘ 253    ๐Ÿ” 147    ๐Ÿ’ฌ 17    ๐Ÿ“Œ 37
A collage showing retro designs: a vinyl record poster, patterned phone case, cushion, and mug, me, a bookshelf print and T-shirt with an illustration of Forton Services.

A collage showing retro designs: a vinyl record poster, patterned phone case, cushion, and mug, me, a bookshelf print and T-shirt with an illustration of Forton Services.

I know I keep banging on about my designs but itโ€™s not easy being a small business at the moment.
Take a look at my wares and please repost.
gailmyerscough.co.uk
Thanks!

06.08.2025 08:35 โ€” ๐Ÿ‘ 115    ๐Ÿ” 104    ๐Ÿ’ฌ 8    ๐Ÿ“Œ 5
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Tens of thousands of cornflowers in a field in Wicken. Research shows that the sight of them will help you recover from sources of stress more quickly & boost dopamine release in your brain, lifting your moodโ€ฆin case you need it just now:

04.08.2025 18:46 โ€” ๐Ÿ‘ 9213    ๐Ÿ” 1519    ๐Ÿ’ฌ 317    ๐Ÿ“Œ 82

@fionachris is following 20 prominent accounts