Lauren Towler, Ph.D.

An NHS hospital is starving a severe ME patient and has now stopped giving her fluids Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk

URGENT:

An NHS hospital is starving a severe ME patient & has now stopped giving her fluids. Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk. @h-sharland.bsky.social has the story
www.thecanary.co/uk/analysis/...

New @vicclarke.bsky.social and @ginnybraun.bsky.social paper about social perceptions of dating and physical disability.

doi.org/10.1037/qup0...

“A successful date also hinged on Cameron being the good disabled person—triumphing over the adversity of their disability, being positive and optimistic, compensating for deficits through “jolliness” (Smith et al., 2007), and performing extensive emotional labor around their disability.”

Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness Scientists have found the first robust evidence that people’s genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community. Early findings from the world’s largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. Continue reading...

Scientists find link between genes and ME/chronic fatigue syndrome

Trans allies including Kate Nash sign letter slamming new sex education guidance Alan Cumming, Kate Nash, Stephen Fry, and more have signed a petition condemning the government's RSHE guidance about trans identities.

Trans allies including Kate Nash and Alan Cumming criticise new UK schools sex education guidance

On today’s Hall of Fame we have @jeremycorbyn.bsky.social

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights

Shocking numbers of disabled and older people deprived accessible housing thanks to the Tories

12 million people do not have the accessible housing they need - and Labour has failed to do anything after the Tories failed to, as well
www.thecanary.co/uk/analysis/...

Who else?