@hdfcures.bsky.social
The mission of the Huntington's Disease Foundation is to fund transformative research to find treatments, and ultimately a cure, for Huntington's disease. Learn more about us: HDFoundation.org
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community.
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease
23.12.2025 23:11 — 👍 0 🔁 0 💬 0 📌 0
As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD
19.12.2025 17:15 — 👍 0 🔁 0 💬 0 📌 0
These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD
17.12.2025 16:22 — 👍 0 🔁 0 💬 0 📌 0
news.uci.edu/2025/12/12/u...
#cureHD #HuntingtonsDisease
We are so proud of Sarah Tabrizi, a member of our SAB, on being named one of Nature's 10: Ten people who helped shape science in 2025. Sarah is highlighted as a "Huntington’s hero" for "leading the clinical efforts to treat the devastating brain disease." Read it here: tinyurl.com/Nature-10-Ta...
12.12.2025 21:49 — 👍 0 🔁 0 💬 0 📌 0
THANKS to all who signed & lent their voice to this petition. Reaching 35k signatures demonstrates the strength, determination, & heart of our #Huntingtonsdisease community. ⭐️⭐️⭐️Our new goal is 50,000k by 1/1/2026⭐️⭐️⭐️. To reach more families, please LIKE and SHARE this post. bit.ly/Hope4HD
#curehd
Every donation brings us one step closer to a treatment, and ultimately a cure for Huntington’s disease. Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
www.change.org/p/bring-hope...
#curehd #huntingtonsdisease
If you would like to share your perspective on how the FDA's decision about uniQure's AMT-140 impacts individuals and families affected by #HuntingtonsDisease, visit: bit.ly/Hope4HD
#curehd
Minutes from uniQure’s AMT-130 application discussion with the FDA were released. This is a key step to understand the regulatory path forward for a therapy holding meaningful potential for the #HuntingtonsDisease community.
Read it here: www.uniqure.com/investors-me...
#cureHD
Congrats, Sarah Tabrizi, for being awarded the British Neuroscience Association Outstanding Contribution to Neuroscience Award for 2025!
Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...”
www.ucl.ac.uk/news/2025/no...
There have been remarkable breakthroughs in science & clinical trials recently. For the first time, we can envision potential treatments for #Huntingtonsdisease. There's still work to be done. Your gift ensures critical research continues for HD. hdfoundation.org/donate
#cureHD
#curehd #huntingtonsdisease
25.11.2025 16:08 — 👍 0 🔁 0 💬 0 📌 0
Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease
24.11.2025 23:05 — 👍 0 🔁 0 💬 0 📌 0
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...
17.11.2025 19:31 — 👍 0 🔁 0 💬 0 📌 0
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
Three promising Young Investigators are in the spotlight
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
05.11.2025 17:09 — 👍 2 🔁 0 💬 0 📌 0
HDF-funded Young Investigators are diving into therapeutic delivery strategies, targeting disease modifiers, & researching protein clumping. Results may lead to new breakthroughs in HD science. REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
04.11.2025 16:47 — 👍 0 🔁 0 💬 0 📌 0HD research is moving faster than ever. Each step we’ve taken...is taking us to the top of the mountain...it will still take time, teamwork, & persistence...every step forward brings us one step closer to treatments that change lives.
en.hdbuzz.net/additional-c...
Great news! Leslie Thompson, UC Irvine neuroscientist & HDF Scientific Advisory Board Chair, was awarded over $2m by CA’s stem cell agency to probe one of medicine’s most baffling mysteries: why HD devastates some brain cells while sparing others. @ucirvine.bsky.social
news.uci.edu/2025/10/08/c...
Researchers Ai Yamamoto & Katherine Croce examine in HD mice the ALFY gene that slows HD's onset by up to 23 years, making it one of the most potent disease onset modifiers & an attractive therapeutic target. Congrats to the team!
Read the full article here: www.sciencedirect.com/science/arti...
Watch anytime! Our $1m Transformative Research Award recipients are pursuing innovative strategies to target the triggers of HD & open new pathways for potential treatments. Learn more: hdfoundation.org/webinars-eve...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta
This is an exciting time for the HDF - learn more at hdfoundation.org
#curehd
"Congratulations to the global Huntington's disease community. This result belongs to everyone." @profwild.bsky.social #curehd
www.youtube.com/watch?v=bhEx...
We are thrilled to celebrate this morning's historic announcement from uniQure showing positive results in their gene therapy trial for #Huntingtonsdisease, the first time any drug has been shown to alter the course of HD in a clinical trial. #curehd
uniqure.gcs-web.com/news-release...
Researchers have discovered genetic "messages" that may appear only when HD is active. Would silencing these messages stop HD? Learn more on Wed, 9/17, 12-1pm ET. Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
