ME RESPITE

ME/CFS patient estimates have doubled – but the disease is still ignored Tens of thousands of New Zealanders are thought to have myalgic encephalomyelitis (ME), formerly known as “chronic fatigue syndrome”.

Patient estimates doubled, political and medical attention in #NZ? Non existent. Why??? #ME/CFS #LongCOVID #CFS #ChronicFatigueSyndrome

Latest edition of #ME Matters is out! Highlights #ME/CFS and #LongCOVID #research and includes findings from an internal project. With the economic climate threatening funding, it's even more important to support initiatives that further our understanding these illnesses. #ChronicFatigueSyndrome

ME/CFS research program shuts down at Columbia after Trump cuts ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.

It's not the first and very sadly won't be the last... #ME/CFS #MECFS #CFS #Research #Trump #StatNews #ColumbiaUniversity #Chronicillness #LongCOVID #FM

Metabolic Disruptions Found In Myalgic Encephalomyelitis Patients A groundbreaking study examining the cerebrospinal fluid of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has revealed significant metabolic…

Findings from #GeorgetownUniversity study centred on exercise could help to "define more objective diagnostic markers for #ME/CFS, allowing for the implementation of targeted and effective therapeutic interventions". #ME #CFS #MECFS #CFSME #ChronicIllness #ChronicFatigueSyndrome #research

YouTube video by SciShow Exercise Actually Makes Chronic Fatigue Syndrome Worse

Finally this is getting picked up by more mainstream channels, a great summary #SciShow thank you for the well researched and accurate, palatable video on #ME/CFS. Like, comment and share it gang, keep getting it out there! #MECFS #CFS #ME #ChronicIllness #ChronicFatigueSyndrome #YouTube

Long Covid: Patients show brain swelling linked to memory, concentration problems The swelling is in an area of the brain also linked to poor concentration, and has similarities with people myaligic encephalomyelitis/chronic fatigue syndrome, a study has found.

Pleased to see this reported by Radio NZ today #ME/CFS #LongCovid #ME #CFS #ChronicIllness #MECFS #CFSME #LongCovidResearch

Our fourth edition of #ME Matters has just been published, grab a cuppa and have a read. In this edition we feature an inspiring story from one of our younger members with #ME/CFS, an interview with a longstanding #volunteer, research updates, event updates and more. #CFS #chronicillness #longcovid

YouTube video by ME RESPITE Top 5 ME/CFS Myths Debunked

Still today #ME/CFS sufferers fight for visibility and understanding. Help us to combat outdated ideas and misinformation, please share our latest myth debunking video. #mecfs #ME #CFS #chronicillness #myalgicencephalomyelitis #fibromyalgia #chronicfatiguesyndrome #longcovid #pots #millionsmissing

New RECOVER study: SARS-CoV-2 infection raises the risk of developing ME/CFS nearly fivefold compared to uninfected individuals. 4.5% of COVID patients met ME/CFS criteria after 6+ months, with PEM the most common symptom. #MECFS #LongCOVID #ME #CFS #ChronicFatigueSyndrome #ChronicIllness

YouTube video by ME RESPITE Interview on Helping Heroes Podcast, with Phil and Wendy

This a vulnerable and honest interview, at times sobering but well worth a listen. Please share to help people understand the impacts on individuals and their families who live with #ME/CFS. #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #LongCovid #Fibromyalgia

'Up yours long COVID': The women refusing to let their baby dreams die Long COVID is snuffing out some patients' dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they ...

#LongCovid #ME/CFS #Fertility #ChronicIllness #ME #ChronicFatigueSyndrome

Improving the experiences of people with ME/CFS: consultation outcome

The recent UK Gov ME/CFS consultation outcome revealed key needs: more funding for research, better healthcare training, and improved support for patients and carers. Final plan due in March 2025. #ME/CFS #ME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness

YouTube video by ME RESPITE What is ME/CFS?

Please share this video for anyone wanting to be educated and to increase for #ME/CFS awareness:
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS