@amlown1.bsky.social
Gorgeous! It snowed here in Hertfordshire around 6 or 7 am before I finally got to sleep. All gone when I awoke at lunchtime. Hope you get to enjoy a snowball fight ❄️ ⛄️
19.11.2024 17:18 — 👍 0 🔁 0 💬 0 📌 0If you are ME/CFS community, please find useful information in below posts 💙❤️🫂
17.10.2024 20:52 — 👍 57 🔁 21 💬 18 📌 1Hi Jan. In the same situation. Have a lovely day 💖
14.11.2024 19:48 — 👍 1 🔁 0 💬 1 📌 0Reposting with correct day: I'm thrilled to be speaking on FRIDAY at the NIH ME/CFS Research Roadmap workshop on Less-Studied Pathologies, on craniocervical instability and tethered cord and the interrelationship between comorbidities. Please come. event.roseliassociates.com/me-cfs-resea...
02.01.2024 20:06 — 👍 28 🔁 9 💬 1 📌 0
Abstract Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of researchers to date classify the disease as organic, many physicians still believe that ME/CFS is a psychosomatic illness. In this article, we show how detrimental this belief is to the care and well-being of affected patients and, as a consequence, how important the education of physicians and the public is to stop misdiagnosis, mistreatment, and stigmatization on the grounds of incorrect psychosomatic attributions about the etiology and clinical course of ME/CFS. Keywords: myalgic encephalomyelitis; chronic fatigue syndrome; ME/CFS
🧵
New
Why the Psychosomatic View on #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Is Inconsistent with Current Evidence and Harmful to Patients
Free full text:
www.mdpi.com/1648-9144/60...
#MEcfs #CFS #PwME #GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT
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“a still widespread misconception about ME/CFS is the idea the disease is psychosomatic in its etiology or that psychological factors play a key role in the chronic nature of the disease. Contrary to psychosomatic hypotheses, replicable organic abnormalities are evident in ME/CFS [26]”
#CFS #PwME
Izzy the black-headed parrot models her new, better-fitting Aviator harness
Izzy's harness was somewhat ill-fitting, and she was getting more and more stressed about its removal process.
The good folks at www.aviatorharness.com came through with a new slightly larger harness sized just for caiques!
Patronize them for all your 🦜 harness needs
*pulls out thermodynamics textbook* oh wait you probably were not actually asking me
11.10.2023 20:47 — 👍 23 🔁 1 💬 1 📌 0
Earth Layers xkcd.com/2840
11.10.2023 17:28 — 👍 2795 🔁 597 💬 62 📌 66
Brown "hummingbird" moth hovering over a cluster of purple chaffhead flowers
The moth with wings spread, looking like a small bat
Miniature bat 🤎
(not really, it's a sphynx moth)
🌿🦋
Don’t forget the biscuits. Dark Chocolate Digestive are my favourite 🤤
11.10.2023 21:25 — 👍 1 🔁 0 💬 1 📌 014/
“However, we do not recommend routine exercise testing for patients with ME/CFS, given its propensity to generate PEM and to decrease functional capacity.”
#MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Screenshot of abstract
New pre-print
A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of
#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (ME/CFS)
Free full text:
www.preprints.org/manuscript/2...
#MEcfs #CFS #PwME #MyalgicE
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"Diagnosis of ME/#CFS is based on positive signs & symptoms and is therefore not a diagnosis of exclusion. It is estimated that up to 90% of people with #MECFS are yet undiagnosed, & 29% of those who have been diagnosed waited 5 years or more to receive an accurate diagnosis"
#PwME #MyalgicE
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6-minute video:
"@grachstephanie.bsky.social & @exceedhergrasp1.bsky.social of @meactnet.bsky.social
share insights from their Concise Review on the diagnosis and management of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome "
youtube.com/watch?v=WZLY...
#MEcfs #CFS #PwME
