"Consequently, all those studies proved that ME/CFS is a physical disease and that ME/CFS patients do not suffer from dysfunctional beliefs."
15.01.2025 20:41 — 👍 14 🔁 3 💬 0 📌 0
Yea seems to be relatively new. I mean it's still better than Fukuda, but I fully agree it needs the ICC only. CCC can be okay if experienced clinicans use them. All others not strict enough for proper ME research.
15.01.2025 11:34 — 👍 1 🔁 0 💬 0 📌 0
Always the same. Use ICC and find stuff. Use Fukuda etc and you cant replicate it. Some researchers are too stupid. Did you see this Open Letter? Unfortunately including IOM + NICE. www.s4me.info/threads/2024...
15.01.2025 11:18 — 👍 1 🔁 0 💬 1 📌 0
"Previously, we demonstrated that ME/CFS patients meeting stringent criteria (CCC or ICC) exhibited altered hippocampal subfield volumes compared to those meeting less stringent criteria (Fukuda)."
15.01.2025 05:46 — 👍 2 🔁 0 💬 1 📌 0
Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
Psychological psychotherapist Heidelberg| Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy adapted to ME/CFS
Paper:
https://doi.org/10.3390/medicina59040719
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙
#MyalgicE
#MEawareness
#MyalgischeEnzephalomyelitis
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung.
- Univ.Prof. und Ärztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association
NB: Posts should not be considered advice
Registered Charity Number 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
