Anne Osterrieder's Avatar

Anne Osterrieder

@anneosterrieder.bsky.social

Public/community engagement and involvement. Based in Oxford, interested in scicomm, global health, MEL. Love fibre crafts, cats, plants and Bangkok. Views are my own. She/her. https://www.tropmedres.ac/research-areas/bioethics-engagement

612 Followers  |  1,207 Following  |  44 Posts  |  Joined: 08.09.2023  |  1.7552

Latest posts by anneosterrieder.bsky.social on Bluesky

Went trick or treating as myself last night. Because nothing seems to terrify some of the locals as much as an immigrant.

01.11.2025 07:39 โ€” ๐Ÿ‘ 208    ๐Ÿ” 29    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 2
Preview
National PPIE Summit 2025: Awaz se Aaghaz Join us for the 2nd National Patient & Public Involvement and Engagement Summit online or in-person at Avari Towers in Karachi!

The National Patient & Public Involvement and Engagement (PPIE) Summit 2025 marks the beginning of a collective national voice advocating for patients, their families and members of the public in health research.

Karachi, 1st Nov, 8-10.30 am GMT, join online.

www.eventbrite.ca/e/national-p...

30.10.2025 13:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?

Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'

intppinetwork.wixsite.com/ippin/post/p...

27.10.2025 15:31 โ€” ๐Ÿ‘ 1    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Preview
a man is eating a bowl of noodles with chopsticks and the words slow horses time above him ALT: a man is eating a bowl of noodles with chopsticks and the words slow horses time above him

Wouldn't a prequel to Slow Horses about Lamb's time in communist East Germany be marvellous?

24.10.2025 20:32 โ€” ๐Ÿ‘ 52    ๐Ÿ” 4    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 3

The need for better genAI literacy is incredibly urgent jfc. Also sea safety, apparently. (I check several sites before relying on them for tide times to account for discrepancies and errors!).

16.10.2025 10:33 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

This is also a disability justice issue.

14.10.2025 21:31 โ€” ๐Ÿ‘ 112    ๐Ÿ” 35    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2
Preview
Open Call for Social Science Presentations On Infectious Diseases - Global Strategy Lab INAMRSS was founded to advance social science research on infectious diseases, including but not limited to antimicrobial resistance (AMR). In 2026, we are partnering with ESCMID Global (17-21 April i...

Are you a researcher working in infectious diseases or #AMR, from a social science discipline (broadly interpreted?). INAMRSS has 3 great opportunities for you!

www.globalstrategylab.org/events/open-...

Abstract submission open now - move fast!

15.10.2025 09:19 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

One in six bacterial infections worldwide are now resistant to antibiotics, WHO warns www.bmj.com/content/391/...

15.10.2025 09:16 โ€” ๐Ÿ‘ 7    ๐Ÿ” 9    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Preview
The Shetland Fair Isle Kep - AgArts By Susan M. Strawn ย  ย  ย Late afternoon my second day in the Shetland Islands, I walked past the ferry terminal toward my hotel in Lerwick. I heard footsteps, quick and determined, following me. My sho...

โ€˜Knitting had been a safe way to soften the search for new friends each time I took up residence in a new city.โ€™ Susan M. Strawn
๐Ÿงถ

12.10.2025 07:52 โ€” ๐Ÿ‘ 12    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Every morning waking up to news about how migration is Bad, Very Bad, Very Bad for the UK. That it's ruining this country. Picture it like water from the roof of a cave, falling on the head of every migrant who's made their home here: drip, drip, drip, every second, for years, making a hole...

01.10.2025 07:02 โ€” ๐Ÿ‘ 11    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

I was just wondering how youโ€™re doing, having seen the news updates! Thatโ€™s a shame.

23.09.2025 06:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

This is the most anti-science thing I have watched today.
What is most shocking about this is all of these statements are being made without any scientific evidence to back it up.
There are very few safe options to treat pain and fever in pregnancy so this is also an attack on women's health.

22.09.2025 21:40 โ€” ๐Ÿ‘ 462    ๐Ÿ” 137    ๐Ÿ’ฌ 24    ๐Ÿ“Œ 9
Post image Post image

We mourn the passing of our Editor-in-Chief Steve Long.

His vision to establish one of the first journals dedicated to Global Change over 30 years ago was truly ahead of its time. Through GCB, researchers have demonstrated that biology and ecosystems are not simply victims of global change..

18.09.2025 18:32 โ€” ๐Ÿ‘ 64    ๐Ÿ” 22    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
Video thumbnail

When speaking to Tommy Robinson at the far right demonstration in London today, Elon Musk wore a t-shirt saying "What would Orwell think?"

So let's dive in - what would George Orwell think about Tommy Robinson and Elon Musk? ๐Ÿงต

13.09.2025 22:36 โ€” ๐Ÿ‘ 1290    ๐Ÿ” 620    ๐Ÿ’ฌ 85    ๐Ÿ“Œ 96

This thread has some excellent book suggestions! Everything I wanted to suggest was already there, so I now have a massive new list of fun distracting sounding books to listen to/read. Thanks!

11.09.2025 07:41 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
PEM warrants recognition as a neurological pathology resulting from metabolic and immune dysregulation (3). Approximately 48 hr after a triggering eventโ€”physical, cognitive, or emotionalโ€”patients experience what is colloquially termed a โ€œcrash.โ€ This involves a surge in neurological symptoms that may render them unable to function: profound fatigue, cognitive slowing, hypersomnia, photophobia, phonophobia, tinnitus, nausea, headaches, migraines, executive dysfunction, word-finding difficulties, working memory impairment, pain, and worsening dysautonomia with orthostatic intolerance, mood disorders. Although these symptoms may be present at baseline, they rapidly escalate in the disabling cacophony of the โ€œcrashโ€. Many patients report diurnal variation, with symptoms peaking midday and easing somewhat towards night, repeating daily until resolution, suggesting a neuroimmune process with a circadian rhythm. Patients often experience disablement until the episode resolves over days or weeks.

PEM warrants recognition as a neurological pathology resulting from metabolic and immune dysregulation (3). Approximately 48 hr after a triggering eventโ€”physical, cognitive, or emotionalโ€”patients experience what is colloquially termed a โ€œcrash.โ€ This involves a surge in neurological symptoms that may render them unable to function: profound fatigue, cognitive slowing, hypersomnia, photophobia, phonophobia, tinnitus, nausea, headaches, migraines, executive dysfunction, word-finding difficulties, working memory impairment, pain, and worsening dysautonomia with orthostatic intolerance, mood disorders. Although these symptoms may be present at baseline, they rapidly escalate in the disabling cacophony of the โ€œcrashโ€. Many patients report diurnal variation, with symptoms peaking midday and easing somewhat towards night, repeating daily until resolution, suggesting a neuroimmune process with a circadian rhythm. Patients often experience disablement until the episode resolves over days or weeks.

Great to see a UK GP writing a BMJ e-letter like this:

"Research must consider Post Exertional Malaise as a neurological event underpinning fluctuating cognitive dysfunction in Long Covid"

www.bmj.com/content/390/...

#PEM #LongCovid

10.09.2025 23:57 โ€” ๐Ÿ‘ 55    ๐Ÿ” 26    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 2
Post image

๐Ÿšจ Weโ€™re hiring! ๐Ÿšจ
We are looking for a Head of #DataEngineering & Informatics to play a leading role in our ongoing development & lead our data strategy.
๐Ÿ“ Oxford, UK ๐Ÿ“… Apply by Sep 17 ๐Ÿ”— www.iddo.org/about-us/jobs
#NTDs #EmergingInfections #Malaria #GlobalHealth
@tropicalmedicine.ox.ac.uk @ox.ac.uk

09.09.2025 13:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
IRC welcomes landmark ruling to give refugees legal status to work in Thailand | The IRC The International Rescue Committee (IRC) welcomes the news that after 40 years of hosting communities fleeing violence in Myanmar, the Royal Thai Government will grant these refugees legal status to w...

After 40 years of providing refuge to Myanmar refugees, Thailand has made history, granting them legal status to work.

"This not only grants a future of self-reliance and dignity to this population, but also an opportunity to contribute to Thailand."

www.rescue.org/press-releas...

29.08.2025 12:13 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

I'm peer reviewing a manuscript for a reputable publisher and came across fake references which must be AI-generated - including to an article attributed to me which sounds fascinating but which I never wrote.

23.08.2025 18:54 โ€” ๐Ÿ‘ 285    ๐Ÿ” 64    ๐Ÿ’ฌ 13    ๐Ÿ“Œ 24

Not enough people are talking about how they took the mini crossword from us

29.08.2025 02:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Headdesk

14.08.2025 09:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

I ran the numbers on the UK government's recommendation to delete old photos and emails to save water in data centers andymasley.substack.com/p/contra-the...

13.08.2025 16:49 โ€” ๐Ÿ‘ 201    ๐Ÿ” 81    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 20
Preview
Mitochondrial function is impaired in long COVID patients The Long COVID syndrome is a major global health problem, affectingย approximately 10โ€“20% of individuals infected with SARS-CoV-2 virus with many remainingย symptomatic beyond one year. Fatigue, redu...

London study of 27 long COVID patients found their immune cells burn oxygen faster but waste energy as ATP synthase runs in reverse, hinting at a bioenergetic defect tied to fatigue and poor quality of life.

www.tandfonline.com/doi/full/10....

13.08.2025 14:08 โ€” ๐Ÿ‘ 18    ๐Ÿ” 9    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
Preview
AI tools used by English councils downplay womenโ€™s health issues, study finds Exclusive: LSE research finds risk of gender bias in care decisions made based on AI summaries of case notes

It is nearly impossible to imagine how a product conceptualised and delivered by a horde of #TechBros could ever deliver a result like this, isn't it?

11.08.2025 07:36 โ€” ๐Ÿ‘ 39    ๐Ÿ” 18    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 3
Post image

Thanks to Emily Dugan and the Sunday Times for exposing this aspect of how Maeve died from ME. A Devon County Council cover up. Maeve was taking them to judical review, dying in the attempt.
Devon County Council may have learnt nothing from the inquest. I have learnt a lot about them.
1/4

10.08.2025 07:17 โ€” ๐Ÿ‘ 84    ๐Ÿ” 51    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 2

The world's food production is strongly linked to the Haber-Bosch process. Without this means of producing synthetic nitrogen fertilizer, global human population would potentially only be half as large. Source: ourworldindata.org/grapher/worl...

10.08.2025 06:26 โ€” ๐Ÿ‘ 15    ๐Ÿ” 4    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
Preview
Didnโ€™t Take Long To Reveal The UKโ€™s Online Safety Act Is Exactly The Privacy-Crushing Failure Everyone Warned About Well, well, well. The โ€œage assuranceโ€ part of the UKโ€™s Online Safety Act has finally gone into effect, with its age checking requirements kicking in a week and a half ago. And what do you knoโ€ฆ

Didnโ€™t Take Long To Reveal The UKโ€™s Online Safety Act Is Exactly The Privacy-Crushing Failure Everyone Warned About - www.techdirt.com/2025/08/04/d... "exactly the privacy-invading, freedom-crushing, technically unworkable disaster" great takedown by @mmasnick.bsky.social #osa #privacy

05.08.2025 06:11 โ€” ๐Ÿ‘ 153    ๐Ÿ” 74    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 9
Preview
UK has got โ€˜fatโ€™ on decades of free labour by women, says MP Jess Phillips Minister points to โ€˜sexistโ€™ practice of country relying on women to provide services so government did not have to

I see this every time I work with community groups. Women stepping in to fill gaps left by LAs and government, only to find the more they step in, the more gaps appear, as government sees this free labour as a solution that their funding crises. It is not. www.theguardian.com/politics/202...

03.08.2025 07:46 โ€” ๐Ÿ‘ 109    ๐Ÿ” 45    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 9
Logo: Science for ME: Where science and ME/CFS community meet

Post-exertional malaise (PEM)
Key points
๏‚ท People with ME/CFS have episodes when they are much more ill than usual
following physical or mental exertion. This is called post-exertional malaise, or
PEM.
๏‚ท PEM is a hallmark of ME/CFS and is important for diagnosis
๏‚ท Activities like a short walk or reading a few pages may trigger PEM. For the
most severely ill, even chewing may trigger it. For many, light, sound and
other sensory stimuli also trigger PEM. Often it is the combined effect of all
activities and stimuli over a day or more that triggers PEM.
๏‚ท PEM usually starts hours or a day or two after it is triggered and can last for
hours, days, weeks or longer. During this time, a person cannot do as much
as usual and needs to rest.
๏‚ท There is no effective treatment for PEM.
๏‚ท PEM is not the same as the fatigue and muscle soreness anyone can
experience after more activity than usual.

Logo: Science for ME: Where science and ME/CFS community meet Post-exertional malaise (PEM) Key points ๏‚ท People with ME/CFS have episodes when they are much more ill than usual following physical or mental exertion. This is called post-exertional malaise, or PEM. ๏‚ท PEM is a hallmark of ME/CFS and is important for diagnosis ๏‚ท Activities like a short walk or reading a few pages may trigger PEM. For the most severely ill, even chewing may trigger it. For many, light, sound and other sensory stimuli also trigger PEM. Often it is the combined effect of all activities and stimuli over a day or more that triggers PEM. ๏‚ท PEM usually starts hours or a day or two after it is triggered and can last for hours, days, weeks or longer. During this time, a person cannot do as much as usual and needs to rest. ๏‚ท There is no effective treatment for PEM. ๏‚ท PEM is not the same as the fatigue and muscle soreness anyone can experience after more activity than usual.

5-page @scienceforme.bsky.social post-exertional malaise ( #PEM ) fact sheet
www.s4me.info/docs/PEM_Fac...

Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM

#MEcfs #CFS #PwME

30.07.2025 17:27 โ€” ๐Ÿ‘ 28    ๐Ÿ” 13    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 2
Preview
Narrative CVs are rewriting academic stories and identities - Impact of Social Sciences A new study explores how narrative CVs are reshaping research evaluation and academic representation

๐Ÿ’ฅ New: Narrative CVs are rewriting academic stories and identities

โœ๏ธ Wolfgang Kaltenbrunner & Judit Varga #AcademicSky #ResearchAssessment

23.07.2025 10:00 โ€” ๐Ÿ‘ 7    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@anneosterrieder is following 20 prominent accounts