Still recovering, I have a few weeks left before I can resume normal life. I caught norovirus about 2 weeks after surgery and that suuuucked
15.09.2025 10:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@luckyrambles.bsky.social
๐ป๐๐ฒ๐บ๐ โ 32 โ It's Complicated with Joe Camel โ Unsolved Mysteries Superfan โ NEW MOTHER TO AN OLD BUS
Still recovering, I have a few weeks left before I can resume normal life. I caught norovirus about 2 weeks after surgery and that suuuucked
15.09.2025 10:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0I dont ever check this website anymore.
For those curious, surgery went well and they were able to remove all the cancerous and bad organs in one go, so no further treatment is needed. โ๏ธ
I got very lucky and im glad this is all behind me now
Things are insanely expensive and I will be out of work for at least 6 weeks, possibly longer if I end up needing chemo or radiation. I'm having a hard time wrapping my head around all of it, but if you happen upon this, anything helps
www.gofundme.com/f/help-bridg...
we know we are looking at cancer. I have surgery on the 18th, things are moving fast and unexpectedly. Total unilateral salpingo-oophorectomy, renoving everything except 1 ovary, in order to get a look at/biopsy a 19cm mass. They cant see where it attaches or stage it until surgery.
14.08.2025 01:32 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 1I have not but that's a really helpful tip if I end up having invasive surgery thanks for that
07.08.2025 11:30 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0Hell yes thank you
07.08.2025 11:29 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0The cyst is a problem itself but im so nervous about what they will find behind it
07.08.2025 01:52 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Oh sorry it's just about!! It's so big they thought it was my bladder at first and almost said everything was fine then they realized it was not my bladder
07.08.2025 01:52 โ ๐ 1 ๐ 0 ๐ฌ 2 ๐ 0What is?
07.08.2025 01:24 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Thank you. Unfortunately it's just the cyst getting removed so they can look at the mass. It's quite large. I have no idea what to expect with that.
07.08.2025 01:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Anyway, until next time, here is my totally obvious abdominal bulge that I somehow did not notice on myself for god knows how long. But now it seems obvious!!
07.08.2025 00:20 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0I just... it's just that sometimes I feel like my entire existence in this world has been one big test that just gets increasingly more difficult over time and it really sucks. It really does get to me sometimes. I have run out of ways to be silly.
07.08.2025 00:20 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I find out tomorrow if the surgery can even be minimally invasive, the cyst is so large they don't think they can avoid cutting me open, and, given my other health conditions, bering cut open would cause a whole new problem as I have delayed wound healing and fragile tissues.
It feels like a joke
I'm terrified. My support system does not fucking exist. I'm more afraid of like, how I'm supposed to heal from surgery, or God forbid cancer treatments, when I dont have a single capable adult to assist me in any way. I don't have anyone to fill the gap for me. I'm just real fucking afraid.
07.08.2025 00:20 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0For several months early this year I was repeatedly mocked by multiple grown men for being dramatic and always talking about being sick and I just wanna say like, sometimes people are actually fucking sick man and sometimes they find out there's a reason for it because they were dramatic enough
07.08.2025 00:20 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0small update. I was referred to oncology yesterday to discuss exploratory surgery
There is a mass, but they can't see it to diagnose on scans, because I happen to also have a 16x14cm cyst on my ovary blocking the view
Surgery to remove the ovary and then they can diagnose the mass in there
A medieval cafรฉ named Bites Of The Round
29.07.2025 10:26 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Thank you for reaching out ๐ซ
26.07.2025 16:38 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0My great grandmother died of endo cancer in her 30s. My grandfather's mother, Clarice. She didn't find out until it was too late to do anything. That is a scary thought!
Worst case scenario, I was already diagnosed with vEDS so I mean what's another few years off the ol' lifespan
That is all I really have to share. Again, only posting for my friends and dipping back out so if you'd like to reach me, please do so via phone or IG, as I won't see messages here. โ๏ธ medical care in my area is slow as fuck so I won't have an update for a while
26.07.2025 01:42 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I'm really just beside myself at this point, im angry at myself, I've never missed a pap before but somehow in taking care of my other health issues I end up here.
Frankly, a lot of what I've been attributing to EDS, SVT and POTS is likely whatever is going on here.
Having been so focused on my other health issues, I missed my pap last year, unfortunately. Forgot it. I'm not sexually active so I didnt think it was a huge deal.
looking back, i had other early symptoms last summer that could have been detected early.
started losing weight drastically, and hair, I had a few blood panels that showed some markers for cancer and when they did an exam they found my uterus is three times the size it's supposed to be. I dont have fibroids. Adenomyosis not ruled out, but it doesnt cause those things
26.07.2025 01:42 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I dont really use this place anymore but I owe it to the few friends I have here to let them know that I have started the process to screen for endo cancer, and im unfortunately checking a lot of boxes so far.
โฅ๏ธ
Real world actions require real world consequences in my opinion.
24.04.2025 10:34 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0I'll be back to posting bus content in the next couple of weeks on those pages for anyone who was following that, and I'll be on IG (itsluckypurr) for those who wish to stay in touch. I'll pop into Discord as well, I'm sure.
โ๏ธ
I don't really know what's going on or if it's just one person or many, but I'm moving forward with everything and doing myself a favor and deleting both apps from my phone
These people are actually insane and I don't want to think of the implications of these calls i keep getting
I wasn't even on twitter from april-october I deleted the app and lost my whole original account in March and didn't come back until october...maybe late September but like, who was getting to know meeeeee
24.04.2025 04:02 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0Laying in bed after a deep tissue massage is a top tier feeling
24.04.2025 04:01 โ ๐ 6 ๐ 1 ๐ฌ 0 ๐ 0I am going to bed now. I hope I don't wake up to more surprises. I would really like for things to go back to normal.
I feel much better after my massage. I did not realize how much tension i was holding onto. My body aches from the rubbing, but I feel much better.